Quiet Lives: Stories from Beyond the Stethoscope
By Bill Toms MD
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Quiet Lives - Bill Toms MD
Copyright 2020 by Bill Toms, MD
First Edition
All rights reserved. No part of this publication may be reproduced, distributed, or transmitted in any form or by any means, including photocopying, recording, or other electronic or mechanical methods, without the prior written permission of the author, except in the case of brief quotations embodied in critical reviews and certain other noncommercial uses permitted by copyright law. For permission requests or other information, please contact the author at btoms0691@gmail.com.
ISBN: 978-1-09831-458-3
E-BOOK ISBN: 978-1-09831-459-0
Printed in the United States of America
Net proceeds from this book will be donated to
Rangeley Health and Wellness
25 Dallas Hill Rd.
Rangeley, ME 04970
Acknowledgements:
I wish to thank our daughter, Kara Toms, for her art work on the cover design. I also want to gratefully thank my partner and best friend, Mary Angela Toms, who has not only been universally supportive and immensely helpful throughout the years of my writing these Stories, but also was the steadfast editor of this book.
The following Stories have been published previously in the Journals noted.
Pulse: The Heart of Medicine:
Presentation
, Riding The Rails
, Sounds
, Back pain
Yale Journal of Humanities in Medicine:
relearning
, Home Visit
Hospital Drive:
malaise with a cough
Journal of Cancer Education:
desktop info
, space
, special things
Dartmouth Medicine:
talking
, taking the time
, relearning
, A New Hampshire Couple
, Greta
, risk factors
, declarations
, predictions
, life and ….
, knowing
, smiling
, siren
, Yup
, 41
Contents
Chapter One:
Lives, quiet
102
A good guy
Back pain
Gardening
Cartoons
Dancing
Deference
Call
Failure
Diabetes check
Forty-one
Indigestion
Infections
Dream
Leaving
Wedding
That’s why
Organs
Remembering
Save
What will I say?
The medical student
An old friend
Confusion
Scared
Seen too much
Greta
A New Hampshire couple
By any measure
Declarations
Favorites
Hearing
Joke
Leave ‘em laughing
Newspapers
Predictions
Yes
Rings
Sharp
Shopping
Smiling
Siren
Stories
Choosing
Talking
The birds
Worth it
"Yup"
Together
Chapter Two:
Lives, blended
Biopsy
Heads
Kleenex
Getting old
Sick, scared
Belief
Teammates
Touch
Chapter Three:
Conversations
Fault
Nursing home memory
Pills
Advance Directives
Relativity
System
Understanding
Patch
Seven seconds
Listening
Chapter Four:
Disease
Fear
The room
The necklace
Two words
The alien
Surgical Suite, Cancer
Checkout
The tube
The name
The monkey
Not feeling better
Lonely
Sweetness
Anger
Turning
Say the name
Chapter Five:
The Longest Loss
Losses
Slipping
Empty
Words
Emote
Hiding
Losing it
Still
The bridge
Chapter Six:
Medicine
Space
Never liked them
Malaise with a cough
Relearning
The scent
Sounds
Taking the time
Fair
The Award
Tomorrow
An exceptional man
Chapter Seven:
Getting Too Close
Worrying
Bradycardia
Friendly chat
Migraine
Worry
Waiting
TGA
What would they say?
Interesting
Smart
Life and …..
The convincer
What I don’t know
Senses
Risk factors
Teaching
Journals
Desktop info
Special things
Quiet Lives
Stories Beyond the Stethoscope
The short stories that follow introduce readers to the lives and voices of patients that I have known over the years. The voices are quiet, heard only if we are willing to listen just a little harder. These voices have come through a metaphorical stethoscope, the listening device of a family doctor.
Almost fifty years ago, as a medical student, I began writing stories about experiences in medicine, particularly about the people, the people we refer to as patients. Over the years many of these patients have become my friends and have had unique, interesting and timeless stories that illustrate much of what it means to be human. The overwhelming truth and power in their everyday lives as they coped with their healthcare issues propelled me to write stories about them and medicine.
These stories are about regular people, people like our families and our friends. I found them to be both typical and representative, while still being profoundly unique. An attempt has been made to change names, easy identifiers and personal information. If you think you find yourself in here and it’s complimentary to you, please go ahead and assume the story is about you.
Most of the stories are written in verse rather than prose, as verse seems to more accurately reflect the depth and context of our mutual shared experiences. The stories are all fairly short and carry all the hazards and insufficiencies of brevity. Most of the stories have a brief comment at the end with a personal perspective.
Some of the stories were written many years ago and reflect the medical understanding and technologies of the time. They have been left in their original form in an attempt to maintain an honest perspective of the person’s story.
The Chapter distinctions are somewhat arbitrary and not exclusive but seem to sort themselves as follows:
Lives, quiet: true stories about individual patients
Lives, blended: stories that are a very slightly fictional composite of multiple real patient experiences
Conversations: stories told as dialogue, at
times verbatim
Disease: stories about diseases that afflict
real patients
The Longest Loss: stories about patients dealing with dementia
Outside the Lives: stories that more generally reference the science, art or business of Medicine
Sometimes Getting Too Close: stories about when medicine has become personal
Why write stories about patients or medicine? Every writer might have his or her own reason to do so. For me writing is a tool toward the goal of being able to improve the way we listen to what our patients are trying to tell us, at times with great difficulty. Modern medicine and health care have evolved very far from their humble historical beginnings and even from where they were twenty or even ten years ago. There is now tremendous potential for diagnosis, treatment and care of even the most dread or exotic diseases. Yet the basics of listening to what patients are saying, what they are trying to tell us, the truth in their lives, is a task that is becoming more elusive and difficult. My hope is that we can honor our patients’ trust in us by remembering and maybe re-telling their stories, even if anonymously. It is also my deepest hope that as you read these stories you will sense the respect, appreciation and affection that I have had for my patients over the last forty-five years.
Bill Toms, M.D.
Dedication
This book is dedicated to my patients who embody the quiet stories, both those recorded here and the so many other stories still waiting to be heard and, perhaps, to be retold. It is also dedicated to our children, Angela, Kara and Matthew Toms, who easily forgave me for all the late dinners and missed games that happened while I was practicing medicine during their youth. They, along with their spouses, Chris, Dan and Kathy, and their collective nine children, our grandchildren, comprise a truly wonderful family and continually remind this family doctor what being a family is really all about. And, most of all, this book is dedicated to my wife and my huckleberry friend of 54 years, Mary Angela Toms, who not only tolerated my professional life with understanding and support but encouraged me to pull the Quiet Lives together into this book which she so kindly and skillfully edited. I owe everything to her, the heart of our family.
Riding the rails
Our train starts to move slowly down well-travelled tracks. It’s sunny out, clouds in the distance. We pick up speed.
We offer obligatory greetings,
my courtesy How are you feeling?
We both know why she’s here
but we both defer that talk
as if deferring for a few minutes will make it better.
The trackside turns to trash, human detritus, rusting hulks without utility.
I edge closer, negotiating perfunctory reviews,
her history, her physical, her labs, her imaging,
all clearly owned by her alone.
Then it’s time to enter
the forbidden room of abnormals:
machine-made shadows, the blood’s too highs.
Her cloak of woven fear lays quietly on her shoulders.
It stays immobile when I say the halfway word tumor.
It doesn’t wrinkle or slip upon finally hearing
that we have arrived at our destination,
the train stop with the Cancer
sign swinging,
greeting us as we brake to disembark.
We enter the cavernous shell of an ancient building, great columns suggesting the strength of history, pigeons circling columns as if this was normal. At the center of the main floor the newly electronic train schedule flashes its options. It suggests we are free to