Relentless Mettle - My Cancer, My Rules
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About this ebook
In the words of Steve Brown, “I made a very early decision and commitment to live this story quite publicly. I wanted to be a voice and I wanted to lead by example. As a result I have been able to connect with so many fellow cancer warriors and their families. I feel safety in our numbers. And I feel strength in our resolve. I want patients and their families to take comfort in reading these pages and I hope they resonate hope and possibility”.
Foreword written by 6-time Ironman World Champion and long time Leukemia & Lymphoma Society supporter Dave Scott.
Stephen Brown
Author, artist, Reiki healer and horse trainer, Stephen Brown is a lover of Creativity in all its guises. His writing is varied, from fantasy, sci-fi and other novels, to poetry and haiku. He likes to be both deep and thought-provoking as well as humorous and nonsensical at the same time - in no way does he see the two things as contradictory. He writes for the sheer pleasure of it, but admits that if he can make a buck or two... well, that's fine too!
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Relentless Mettle - My Cancer, My Rules - Stephen Brown
RELENTLESS METTLE - My Cancer, My Rules
By Stephen Brown
Foreword by Dave Scott
Copyright © 2014 Stephen Sinclair Brown
All rights reserved. This book or any portion thereof may not be reproduced or used in any manner whatsoever without the express written permission of the publisher except for the use of brief quotations in a book review or scholarly journal.
ISBN: 978-1-312-77689-0
First Edition
Dedication
This is dedicated to all cancer warriors everywhere and to their extremely critical and sometimes overlooked support teams. While fighting this fight can be a challenge, there is safety, security, and strength in our numbers. To those warriors who have lost their battle, we will continue this fight in your name and in your honor. We will relentlessly push on until we find the cures.
Foreword
My involvement with The Leukemia & Lymphoma Society’s Team in Training program started in 1999. I was aware of Team in Training’s impact in the running community and several people approached me with the concept of starting a triathlon program. I became immersed into TNT and LLS to learn more about the blood cancer community and the profiles of the many people impacted by blood cancers. This led to incredible opportunities to work with people like Steve Brown, as I learned more about all of the wonderful work that TNT and LLS were doing. I saw so many patients reaching remission from their disease as a result of these efforts. This provided a wonderful sense of satisfaction and fulfillment for me as the national coach.
I have been able to connect with numerous patients such as Steve who was diagnosed with chronic lymphocytic leukemia in 2006 and who has fought through a couple of relapses since his initial diagnosis and I am amazed at the positive approach and outlook he has sustained throughout his journey when his future may have appeared at times uncertain. When I hear stories such as Steve’s, I am amazed at the irony of how positive people can be. I never sensed a forlorn feeling from Steve and his positive and upbeat outlook has had an infectious effect on so many of the people that he touches.
I am grateful for having had the opportunity to work with Team in Training and The Leukemia & Lymphoma Society over the years and network with so many patient athletes, bearing witness to the adversity they have had to overcome. I have had the good fortune of being a very healthy guy so I haven’t had to personally deal with the physical and emotional impacts of such a disease. I honestly don’t know if I would have had the intestinal fortitude to respond the same way as Steve and so many others have.
I know Steve Brown has always taken his definition of health very seriously, having had a great soccer career and decades of success in the sport of triathlon prior to his diagnosis. But through his disease he has found a way to continue to thrive and help others in the process. My hat is off to Steve and all of the folks I have been lucky enough to interact with through the years in this community.
Continued health, success, and best wishes,
Dave Scott
Acknowledgements
I believe we are all the products of every experience and personal exchange that we have encountered in our lives. I know that may be a little too much to digest and you may or may not agree with me. But think about all of the people who have touched you in some way through the years. While we remember most of the people who have had an obvious influence on our lives, the truth is that many of those experiences were subtle and we may not have even realized that they were meaningful at the time. Therefore many of these game changing experiences are long since forgotten and unrecognized.
There are many people and events that I have to thank for where I am in my life today. While I can’t thank them all here now, I can call out a few. First and foremost I need to thank God for giving all of us the strength and resolve to not only get through this
but to thrive and flourish in the face of adversity. I have an incredible sense of love, pride, and joy for my wife, daughters, and now grandchildren which cannot be measured or even articulated. To them, I say thank you. I’m a lucky guy. I feel blessed in that I look at every day as an amazing gift and just when I think things can’t get any better, they do.
I grew up in a pretty traditional household with two parents who were very loving and involved with everything I did. They seemed to strike a wonderful balance of being there without smothering or controlling me. They let me be a kid and find my way but with the understanding that a safety net would always be there. They allowed me to grow and be and fully supported me. While we lost my dad in 2005, my mom is alive and well and will soon turn 90 years old. To them, I say thank you.
Coaches, mentors, and teachers have always played a huge part in my life. I remember every single one and try to keep in touch with as many of them as possible. I remain in regular contact with a few coaches and teachers I had in high school and college. I owe them and want them to know they were and are still appreciated. To them, I say thank you.
My circles and networks are quite large. I like to call myself a people broker because I love connecting like minded people from all over in an effort to combine forces and shrink this oversized planet a little bit. To this day I talk to friends from my old neighborhood that I grew up with playing in the streets and playgrounds of Ardmore Pennsylvania. Some of these friendships date back to kindergarten and first grade. There is no doubt that those relationships formed so long ago, have helped define me. To each and every one of them, I say thank you.
Given the fact that I live with a chronic form of leukemia, I would be remiss if I didn’t acknowledge and openly express my gratitude for the many health care professionals who have played a part in my diagnosis, treatments, and ongoing care. We are lucky to have the resources that we have and to all of them, I say thank you.
Introduction
This collection is the intersection of my cancer experiences, my multisport lifestyle,