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    Retinitis Pigmentosa 101: How to Understand, Accept, and Live Your Best Life with Retinitis Pigmentosa
    Retinitis Pigmentosa 101: How to Understand, Accept, and Live Your Best Life with Retinitis Pigmentosa
    Retinitis Pigmentosa 101: How to Understand, Accept, and Live Your Best Life with Retinitis Pigmentosa
    Ebook95 pages1 hour

    Retinitis Pigmentosa 101: How to Understand, Accept, and Live Your Best Life with Retinitis Pigmentosa

    By HowExpert

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    About this ebook

    Are you someone who has been diagnosed with Retinitis Pigmentosa or a parent who has recently learned that your child is losing their vision? Then this book might just be for you. In this book, you will learn:

    • How to deal with your child’s vision loss. Parenting is already difficult but this book will help you learn fundamental lessons to pass on to your child as well as practical advice on how to help your child learn the skills they need to live independently.
    • How to deal with school, bullies, and make it through college. Bullies plague many children but living with a disability can make that bullying so much worse but learning skills that can help you avoid the bullies and make it through your first taste of independence safely and with confidence can make all the difference.
    • How to live independently from getting a job to dating to practical skills you can use in your everyday life. This book can help you.
    • How to get a guide dog. One of the most life-changing things a visually impaired person can do is get a guide dog. This book will walk you through how to get a guide dog and how that dog will change your life.

    If you’re tired of struggling with your vision loss, Retinitis Pigmentosa 101 will help you find the joy in life again along with showing you practical skills you need to function in your everyday life.

    About the Expert
    Katie McCoy may have been born with Retinitis Pigmentosa, but vision loss hasn’t slowed her down. With a Bachelor’s in history from the College of Charleston and a Master’s in museum education from George Washington University in Washington, D.C., Katie formerly worked as a museum education assistant and as a special education teacher, and now serves as an associate director of philanthropy for Southeastern Guide Dogs. She has a drive to help others with disabilities and to share the hope that many people need. Katie has participated in competitive gymnastics, vault on a horse, and is a long-distance runner. She has been able to adapt and excel despite her vision loss and would like to help others do the same.

    HowExpert publishes quick 'how to' guides on all topics from A to Z by everyday experts.

    LanguageEnglish
    PublisherHowExpert
    Release dateMar 18, 2020
    ISBN9781950864058
    Author

    HowExpert

    HowExpert publishes quick 'how to' guides on all topics from A to Z by everyday experts.

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      Book preview

      Retinitis Pigmentosa 101 - HowExpert

      HowExpert Presents

      Retinitis Pigmentosa 101

      How to Understand, Accept, and Live Your Best Life with Retinitis Pigmentosa

      HowExpert with Katie McCoy

      Copyright HowExpert™

      www.HowExpert.com

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      COPYRIGHT, LEGAL NOTICE AND DISCLAIMER:

      COPYRIGHT © BY HOWEXPERT™ (OWNED BY HOT METHODS). ALL RIGHTS RESERVED WORLDWIDE. NO PART OF THIS PUBLICATION MAY BE REPRODUCED IN ANY FORM OR BY ANY MEANS, INCLUDING SCANNING, PHOTOCOPYING, OR OTHERWISE WITHOUT PRIOR WRITTEN PERMISSION OF THE COPYRIGHT HOLDER.

      DISCLAIMER AND TERMS OF USE: PLEASE NOTE THAT MUCH OF THIS PUBLICATION IS BASED ON PERSONAL EXPERIENCE AND ANECDOTAL EVIDENCE. ALTHOUGH THE AUTHOR AND PUBLISHER HAVE MADE EVERY REASONABLE ATTEMPT TO ACHIEVE COMPLETE ACCURACY OF THE CONTENT IN THIS GUIDE, THEY ASSUME NO RESPONSIBILITY FOR ERRORS OR OMISSIONS. ALSO, YOU SHOULD USE THIS INFORMATION AS YOU SEE FIT, AND AT YOUR OWN RISK. YOUR PARTICULAR SITUATION MAY NOT BE EXACTLY SUITED TO THE EXAMPLES ILLUSTRATED HERE; IN FACT, IT'S LIKELY THAT THEY WON'T BE THE SAME, AND YOU SHOULD ADJUST YOUR USE OF THE INFORMATION AND RECOMMENDATIONS ACCORDINGLY.

      THE AUTHOR AND PUBLISHER DO NOT WARRANT THE PERFORMANCE, EFFECTIVENESS OR APPLICABILITY OF ANY SITES LISTED OR LINKED TO IN THIS BOOK. ALL LINKS ARE FOR INFORMATION PURPOSES ONLY AND ARE NOT WARRANTED FOR CONTENT, ACCURACY OR ANY OTHER IMPLIED OR EXPLICIT PURPOSE.

      ANY TRADEMARKS, SERVICE MARKS, PRODUCT NAMES OR NAMED FEATURES ARE ASSUMED TO BE THE PROPERTY OF THEIR RESPECTIVE OWNERS, AND ARE USED ONLY FOR REFERENCE. THERE IS NO IMPLIED ENDORSEMENT IF WE USE ONE OF THESE TERMS.

      NO PART OF THIS BOOK MAY BE REPRODUCED, STORED IN A RETRIEVAL SYSTEM, OR TRANSMITTED BY ANY OTHER MEANS: ELECTRONIC, MECHANICAL, PHOTOCOPYING, RECORDING, OR OTHERWISE, WITHOUT THE PRIOR WRITTEN PERMISSION OF THE AUTHOR.

      ANY VIOLATION BY STEALING THIS BOOK OR DOWNLOADING OR SHARING IT ILLEGALLY WILL BE PROSECUTED BY LAWYERS TO THE FULLEST EXTENT. THIS PUBLICATION IS PROTECTED UNDER THE US COPYRIGHT ACT OF 1976 AND ALL OTHER APPLICABLE INTERNATIONAL, FEDERAL, STATE AND LOCAL LAWS AND ALL RIGHTS ARE RESERVED, INCLUDING RESALE RIGHTS: YOU ARE NOT ALLOWED TO GIVE OR SELL THIS GUIDE TO ANYONE ELSE.

      THIS PUBLICATION IS DESIGNED TO PROVIDE ACCURATE AND AUTHORITATIVE INFORMATION WITH REGARD TO THE SUBJECT MATTER COVERED. IT IS SOLD WITH THE UNDERSTANDING THAT THE AUTHORS AND PUBLISHERS ARE NOT ENGAGED IN RENDERING LEGAL, FINANCIAL, OR OTHER PROFESSIONAL ADVICE. LAWS AND PRACTICES OFTEN VARY FROM STATE TO STATE AND IF LEGAL OR OTHER EXPERT ASSISTANCE IS REQUIRED, THE SERVICES OF A PROFESSIONAL SHOULD BE SOUGHT. THE AUTHORS AND PUBLISHER SPECIFICALLY DISCLAIM ANY LIABILITY THAT IS INCURRED FROM THE USE OR APPLICATION OF THE CONTENTS OF THIS BOOK.

      COPYRIGHT BY HOWEXPERT™ (OWNED BY HOT METHODS)

      ALL RIGHTS RESERVED WORLDWIDE.

      Table of Contents

      Recommended Resources

      Introduction

      Chapter 1: How to Deal with Your Child’s Visual Impairment

      Dealing with the News

      Raising Your Child

      Helping Your Child Deal with Bullies

      Giving Your Child Independence

      Advice from my Mom

      Take Aways

      Resources

      Chapter 2: Blending in With the Crowd

      Step 1: Looking the Part

      Step 2: Acting Confident

      Step 3: Find a Group

      Step 4: Use Your Resources

      Step 5: Kill Them with Kindness

      Take Aways

      Resources

      Chapter 3: We’re Going to College!

      Step 1: Orientation

      Step 2: Register with Disability Services

      Step 3: Talk to your RA

      Step 4: Tackling Your Classes

      Step 5: Telling Your Classmates

      Step 6: Getting a Life

      Step 7: Use Your State’s Blind Services

      Take Aways

      Chapter 4: How to Navigate the Work Force

      Step 1: Get Qualified!

      Step 2: Tell the Employer about Your Eyesight

      Step 3: Use Your Resources

      Step 4: What to do once you get a job

      Take Aways

      Resources

      Chapter 5: How to Navigate Dating

      Step 1: Understanding what you need in a relationship

      Step 2: Handling dating apps

      Step 3: Going on the date

      Step 4: Getting Home

      Take Aways

      Resources

      Chapter 6: How to Get A Guide Dog

      Step 1: Deciding you’re ready for a guide dog

      Step 2: Finding a guide dog school

      Step 3: Applying for a guide dog

      Step 4: Guide Dog Class

      Step 5: Taking your dog home

      Take Aways

      Resources

      Chapter 7: How to Learn Some Blind People Hacks

      Step 1: Use Technology

      Step 2: Using Your Resources

      Take Aways

      Resources

      Conclusion

      Additional Resources

      Reading List

      Watchlist

      About the Expert

      Recommended Resources

      Introduction

      My name is Katie and I am here to help you get through a life of living with Retinitis Pigmentosa. I was diagnosed with Retinitis Pigmentosa when I was six years old but my mom knew there was something wrong with my eyesight since I was a baby. I have twenty-eight years of experience living with vision loss and I would like to share my tips and tricks to dealing with vision loss.

      This book will take you through my life journey and share what I learned on the way.

      How to Deal with Your Child’s Visual Impairment

      In this section, parents will learn how to raise a child with a visual impairment. The biggest take away from this section is to treat your child like any other child. Yes, they will need some extra help sometimes but if you coddle them and are a helicopter parent, your child will miss out on fundamental childhood experiences. They will also grow up without independence. I promise you, your child can do anything a sighted child can. Just give them the opportunity.

      Blending in with the Crowd

      Bullying is a huge problem for many kids in today’s world but anyone who is different is bound to be picked on. In this section, I walk you through ways that I have learned to avoid bullying. From what to wear to how to act, you can blend in with the crowd and hopefully avoid some of the scars I still bare.

      We’re Going to College

      Striking out on your own for the first time can be an exciting and anxiety filled occasion. College will, for many of you, be the first

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