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    Helping Your NF1 Child: A Parent's Guide To Neurofibromatosis
    Helping Your NF1 Child: A Parent's Guide To Neurofibromatosis
    Helping Your NF1 Child: A Parent's Guide To Neurofibromatosis
    Ebook50 pages23 minutes

    Helping Your NF1 Child: A Parent's Guide To Neurofibromatosis

    By Christopher Maloney

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    About this ebook

    NF1 parents may feel that the genetic nature of the disease means that little can be done for their children. But the diagnosis of NF1 tells us very little about what to expect.

    In this short, simple book, Dr. Maloney explains why NF1 varies so widely in how it affects children. For the parents of NF1 children or newly diagnosed adults, Dr. Maloney covers the genetics of NF1 simply. He shows why the disease cannot by predicted by NF1 alone and gives cutting edge research possibilities for its treatment.

    Adults living with NF1 may be concerned about passing on their symptoms to their children. Dr. Maloney gives a clearer view of the non-genetic aspects of NF1, those that really determine how well or poorly your child will do going forward. He breaks down the different major deficiencies with a focus on learning issues. For those who think that NF1 is simply a disease, Dr. Maloney takes the view that it is an essential part of the evolutionary process. Our children may be slightly more evolved to deal with a high-stress world full of distractions.

    LanguageEnglish
    PublisherChristopher Maloney
    Release dateApr 12, 2018
    ISBN9781370178131
    Helping Your NF1 Child: A Parent's Guide To Neurofibromatosis
    Author

    Christopher Maloney

    Dr. Christopher Maloney has spent his life trying to become the doctor he was unable to find when he was ill himself. His practice can be summed up by: when you get hit by a bus go see your M.D. When you just feel like you were, it is time to see me.

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      Book preview

      Helping Your NF1 Child - Christopher Maloney

      Helping Your NF1 Child

      A Parents' Guide To Neurofibromatosis (NF1)

      Dr. Christopher Maloney, N.D.

      Copyright 2018

      Published by Hygeian Publishing at Smashwords

      Smashwords Edition License Notes

      This ebook is licensed for your personal enjoyment only. This ebook may not be re-sold or given away to other people. If you would like to share this book with another person, please purchase an additional copy for each recipient. If you’re reading this book and did not purchase it, or it was not purchased for your enjoyment only, then please return to Smashwords.com or your favorite retailer and purchase your own copy. Thank you for respecting the hard work of this author.

      CONTENTS

      Acknowledgements

      Warning

      Preface

      1 Treating Mr. B.

      2 Are NF1 Children Mutants?

      3 What’s Happening Inside An NF1 Child?

      4 What’s Happening Inside An NF1 Child’s Head?

      5 What Should My Child Eat?

      6 What Should My Child Do?

      7 For Children With NF1-Deficient Parents

      8 Final Thoughts: An Anti-Inflammatory Life

      About the Author

      Other Books By This Author

      Connect With Dr. Maloney

      Dedication

      To all children diagnosed with NF1 and all the parents who care for them. May you find daily happiness in small victories.

      Acknowledgements

      I would like to thank my friend Joe for suggesting researching NF1, and all of the researchers across the world who have given us the little knowledge we have about this condition. Thanks go to all my beta readers for finding and correcting errors and omissions. I want to thank Mr. B for inspiring me to continue researching for possible treatments long after the trails had gone cold. My own family and my wife especially deserve thanks for letting me take the time to study and write.

      WARNING

      No book can take the place of contacting and having an open dialogue with an expert in NF1. These doctors are usually at research hospitals in major urban centers, and most families would be wise to make the journey at least once to establish a doctor/patient relationship before any crisis hits. Please use this book simply to educate yourself and your family so you can better understand clinical trials and new treatments.

      Preface

      It seems best to start at the beginning of my own inquiry into neurofibromatosis. Simply because I have a doctor’s degree doesn’t mean I know anything about the disease. We often assume that men in white coats know what they are talking about, particularly when they can spout off a long latin word like neurofibromatosis without pausing. I am sometimes troubled by the enthusiasm of parents whose child has been given a genetic diagnosis. At least we know what it is, even if nothing can be done to stop it, they tell me. All I

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