NPR

How Social Media Can Reveal Overlooked Drug Reactions

Even big clinical studies can miss important drug side effects. Researchers, doctors and drugmakers are looking at patients' experiences posted on social media for clues on problems that were missed.
When patients connect online, they often share information that reveals how treatments work in the real world.

When Allison Ruddick was diagnosed with stage 3 colorectal cancer in October 2014, she turned to the world of hashtags.

After her initial diagnosis it wasn't clear if the cancer had metastasized, so she was in for a nerve-wracking wait, she says. She wanted outside advice. "But they don't really give you a handbook, so you search kind of anywhere for answers," Ruddick says. "Social media was one of the first places I went."

Under the hashtags #colorectalcancer and #nevertooyoung on Facebook, Twitter and Instagram, other patients were sharing a fuller picture of their experience with cancer treatments.

Later she found even more advice on specialized message boards. Patients posted everything from the details of their surgeries to the ice packs they liked best as they recovered. "These weren't things that my doctor could tell me, and as much as I appreciate their expertise, it's also really limited by the fact that they've

You’re reading a preview, subscribe to read more.

More from NPR

NPR2 min read
Short-term Loss For Long-term Gain? The Ethical Dilemma At The Heart Of EVs
As mines meet mineral demands for electric vehicles, they put communities and ecosystems at risk. Sustainability researcher Elsa Dominish says the EV industry cannot repeat fossil fuel's mistakes.
NPR4 min read
Yes, Apple's New IPad Ad Is Ugly And Crushing, But Art Can't Be Flattened
The newest iPad ad depicts instruments, books and art supplies flattened into Apple's thinnest product ever. But anyone who owns and loves art in any form knows: The practicality isn't the point.
NPR2 min read
2 Skiers Killed After Being Caught In Utah Avalanche, Sheriff Says
Two skiers were killed and one was rescued after they were buried in an avalanche in the mountains outside of Salt Lake City that occurred after several days of spring snowstorms, authorities said.

Related Books & Audiobooks