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    Who Are You? (Surviving Dementia, From One Caregiver To Another)
    Who Are You? (Surviving Dementia, From One Caregiver To Another)
    Who Are You? (Surviving Dementia, From One Caregiver To Another)
    Ebook60 pages54 minutes

    Who Are You? (Surviving Dementia, From One Caregiver To Another)

    By Jen Leinweber

    ()

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    About this ebook

    I started my caregiving journey twelve years ago when my dad was diagnosed with dementia. During these years I've learned a lot about dementia and how to provide care for dementia patients.

    Working through this book I've done my best to provide helpful information about how to best care for your loved one while still maintaining your sanity. Additionally I've included information about getting affairs in order and organizing to keep stress levels to a minimum.

    This short book is packed with information, tips and techniques to help caregivers and their family members in the care of a dementia patient. I have purposefully kept it short because I know the average caregiver won't have time to wade through a 500 page dissertation.

    I've included helpful links to find additional resources in the back of the book.

    LanguageEnglish
    PublisherJen Leinweber
    Release dateJul 17, 2015
    ISBN9781310942853
    Who Are You? (Surviving Dementia, From One Caregiver To Another)
    Author

    Jen Leinweber

    About me ... isn't that always the biggest question! How to sum up the vastness of who you are in a few words. Well, here's my attempt - enjoy!I'm the oldest of four children. My siblings and I are quite close. I grew up in a small town but not too far from a major metropolis. I've travelled and seen quite a bit of the world. I'd like to see more. I enjoy an eclectic selection of music, from classical to modern top 40. I can't stand house, or twangy country. I enjoy a good cup of coffee, especially first thing in the morning. I read - constantly. I started putting letters together into words at the age of five and don't think I've been without an active book ever since.I love my family. I honor and respect all veterans and current servicemen and servicewomen.I am passionate about elder care. I love what I do and being able to make a difference in their lives. If I could have one wish it would be to help others catch my passion for caring for seniors.

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      Book preview

      Who Are You? (Surviving Dementia, From One Caregiver To Another) - Jen Leinweber

      Who Are You

      (Surviving dementia from one

      caregiver to another)

      Copyright 2015 Jen Leinweber

      All rights reserved.

      No part of this book may be reproduced in any form or by any electronic or mechanical means, including information storage and retrieval systems, without written permission from the author, except for the use of brief quotations in a book review.

      Acknowledgements

      Prologue - Why I care

      Dementia/Alzheimer's’ - Are they different?

      Odd behavior - What to do?

      Confrontation Management

      Bizarre thinking/Altered reality

      Caregiver sanity

      Grief - losing a loved one by bits and pieces

      Tips and Quick Guide

      Reach out for help

      Tough decisions - staying at home vs nursing care

      Getting your affairs in order

      Going to the ER, staying at the hospital

      A Final Word

      About the Author

      Web Addresses for State Aging Offices

      Acknowledgements:

      Dad and Grandpa, thank you for the time we had together and helping me become the caregiver I am today.

      R.I.P. Michael C. Leinweber, Sr and John Tom Ghormley, Sr.

      Chapter 1 Prologue - Why I care

      Daddy’s girl, that’s the way I’d describe myself. I loved spending time with my dad. If he was working in the garage on a car, I’d be there handing him tools. If he was relaxing in the living room reading a book, I’d be there reading one of my own.

      In the 3rd grade he’d seen a Marine Corps band, decided the uniforms were cool and that one day he’d be a Marine. He fulfilled that wish during the Vietnam War. When he returned he married Mom and they began their life together. I am the oldest of their four children. For the first part of their marriage Dad worked any job he could get; from sales to being a deputy sheriff and lots of things in between.

      The emergence of cell phone technology gave him the chance to merge his love for radios and electronics into a career he enjoyed. He took advantage of every training opportunity. He eventually worked as an engineer for a cellular company determining where cell towers needed to go for optimum coverage.

      September 2003 will be permanently marked in my mind as the month my life changed forever. I had just graduated with a degree in computer science and was looking forward to working in my new field. My parents came to my graduation and all seemed to be perfect.

      I say seemed because Mom had mentioned a few times that Dad was having some minor health issues and had done some things that were odd for him. He needed Mom to show him how to write a check. He needed my brother and me to help him replace an alternator. He couldn’t follow simple directions. He claimed there were boys playing around his vehicle and wrote a note on the window in permanent marker, telling them to stay away. They’d been going to see a doctor to figure it out. Shortly after graduation Mom arranged a meeting of our family; Mom, Dad, me, my two sisters and brother.

      On that fateful evening Mom told us what the doctors had discovered was causing Dad’s odd behaviors. Dad had Lewy Body Dementia. None of us had heard of this disease, my siblings and I looked at each other and our parents trying to figure out what this meant. Mom picked up a thin stack of papers and handed each of us a few printed pages. She had done an internet search for Lewy Body Dementia (also known as LBD) and printed off what she’d found for each of us. I looked at the 4-5 pages my mom had handed to me and thought, this can’t be all the information out there. I found out, it was.

      A quick read let us know that LBD was thought to be the second most common form of dementia and is caused by the same type of malformations (called Lewy Bodies) that also cause Parkinson's’ disease. I was staggered that the second most common form of dementia had so very little known information available.

      We discussed what we knew (next to nothing) and let the impact of this diagnosis soak into our hearts and minds. One piece of information was very clear - from diagnosis to death the average lifespan was 6 - 8 years. As we talked about the fact that my 55 year old dad would be dead before reaching retirement age. It seemed

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