Dysautonomia, POTS Syndrome. Diagnosis, symptoms, treatment, causes, doctors, nervous disorders, prognosis, research, history, diet, physical therapy, medication, environment, and more all covered! Facts & Information
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About this ebook
Dysautonomia, POTS Syndrome affects many people. This books aims to provide the information sought out by those people who suffer. Frederick Earlstein has written this medical education guide to provide an understanding of Dysautonomia, POTS Syndrome including POTS and Associated Disorders, signs and symptoms, causes and treatment, living with POTS, research and resources, and medical definitions.
Diagnosis, symptoms, treatment, causes, doctors, nervous disorders, prognosis, research, history, diet, physical therapy, medication, environment, and more all covered!
The book is written in an easy to read and understandable style.
In a straight forward, no nonsense fashion, Frederick Earlstein covers all aspects of Dysautonomia, POTS Syndrome. The book is full of informative content and answers to your questions – including some you didn’t know you had!
Frederick Earlstein
Retired high school biology teacher Frederick Earlstein lives to research. When his only niece was diagnosed with postural orthostatic tachycardia syndrome (POTS) at age 14, Earlstein felt helpless. His answer was to start researching the condition and sharing everything he learned with his sister and her family. That project not only resulted in a book on the subject, but also to the successful management of the girl's condition.Earlstein applied the same approach to his own minor problems with blood pressure, allergies, and degenerative disc disease. "It's all about critical mass," he says. "When the notes on my laptop and those piled up on my actual desktop reach a certain level, I start realizing there's a book in there somewhere."Writing about medical issues in plain English has become Earlstein's second career. After retiring from his career as an educator, he began looking around for something to occupy his time. "You can only clean out the garage so many times," he said. "I was trained to be an academic and old habits die hard."Now Earlstein works daily in his home office on whatever manuscript he has at hand. He describes the work as the perfect combination of intellectual challenge and self-employment. "I decide what to write about and when to write it," Earlstein says. "Typically I pick a subject because I know someone who is grappling with the problem and with understanding the information they're being given."A firm believer in the power of informed consent, Earlstein is appalled by how difficult the medical community makes it for the average person to really understand a condition and make good treatment choices. "There's no reason why this material can't be presented in plain English," he says. "You just have to make an effort to really understand what you're talking about."Although Earlstein makes no claims of being a doctor himself, he does feel he has a good role as an interpreter. "I don't write about any condition until I've studied the material and have a good handle on the mechanics of the problem or the illness," he said. "I'm not shy about calling up a doctor or surgeon and asking questions."Recently, when his eye doctor told him he was suffering from eye strain, Earlstein immediately began to research the condition. "I knew I had been staring at the computer a lot," Earlstein said. "I didn't know that just getting lightly tinted lenses in my glasses could help. I'm still gathering information and yes, there's a book in the works."When asked if he prefers writing over teaching, Earlstein makes it very clear that in his mind, he's still a teacher. "I'm just using a different method," he says. "One where I don't have to listen to the snores if I put anyone to sleep!"
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Reviews for Dysautonomia, POTS Syndrome. Diagnosis, symptoms, treatment, causes, doctors, nervous disorders, prognosis, research, history, diet, physical therapy, medication, environment, and more all covered! Facts & Information
2 ratings1 review
- Rating: 5 out of 5 stars5/5As a parent faced with a child who exhibited ALL of the symptoms, and was seen by a myriad of doctors over a three-year period with no diagnosis given, I nearly wept reading this! The experiences mentioned in this text mirrored my son's own; at one point a leading pediatric neurologist got in his face and exclaimed: "There's nothing wrong with you, it's all in your head!" I am grateful to the author for putting his niece's experience to paper and for creating this valuable source of information.
Book preview
Dysautonomia, POTS Syndrome. Diagnosis, symptoms, treatment, causes, doctors, nervous disorders, prognosis, research, history, diet, physical therapy, medication, environment, and more all covered! Facts & Information - Frederick Earlstein
Dysautonomia,
POTS Syndrome
Diagnosis, symptoms, treatment, causes, doctors, nervous disorders, prognosis, research, history, diet, physical therapy, medication, environment, and more all covered!
By Frederick Earlstein
(www.FrederickEarlstein.com)
~~~
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Foreword
Let me get one thing off the table immediately. I am not a doctor. My experience with POTS began when my only niece started to have unexplained fainting spells just after she turned 14.
I watched with growing frustration while my sister and her family went through doctor after doctor after doctor. It seemed as if every day a new email appeared in my InBox describing the latest test the doctors forced Sylvie to endure.
There were frightening diagnoses
that turned out to be wrong within days, never mind the agony the family suffered in those long hours before some doctor basically said, Oh. Sorry. Wrong!
It was scary, maddening, and needless to say made us all less than respectful in our attitude toward the medical community. Over a period of months, everyone in the extended family started searching the net for Sylvie’s strange symptoms as the poor child got sicker and sicker.
In truth she was getting more and more terrified of what would happen if she stood up, and in no time was being home schooled and had no social life beyond the contacts she maintained online. The once sunny, happy young woman was clearly depressed and miserable.
Finally the acronym POTS
came into the discussion. Research links started flying and my sister put the question to Sylvie’s pediatrician. Thankfully, he was open to reading the information and then acted on what he learned. That got the ball rolling, and we learned — to our immense relief — that she would likely grow out of her symptoms in time.
I found myself envious of some of the recommendations she received to improve her condition. I struggle with maintaining a normal blood pressure level and Sylvie was being told to eat more salt! One dietary guide recommendation suggested she have a shot
of pickle juice each morning. (That I could do without.)
After changing her diet and beginning a program of exercise to overcome the deconditioning
that resulted from her time at home, which was largely spent reclining, Sylvie is doing very well. There were also some necessary accommodations at school, but I’m happy to say that once the administrators understood the nature of her illness, they were very helpful.
Sylvie must stay well hydrated and have salty snacks throughout the day, and in the beginning only attended afternoon classes since mornings were tough on her — but now she is back on campus and thrilled to be with her friends again.
The information that I’ve compiled in this book is based on my own notes and reading over the several months it took for Sylvie to be accurately diagnosed. Certainly it’s all out there on the Internet,