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    Fibromyalgia Chatter
    Fibromyalgia Chatter
    Fibromyalgia Chatter
    Ebook129 pages1 hour

    Fibromyalgia Chatter

    By L. S. Fayne

    3.5/5

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    About this ebook

    L. S. Fayne has had fibromyalgia since 2001. In this book, she describes fibromyalgia symptoms, and how it has changed her life.
    She describes how it affects intimacy. Most importantly, she tells about the things she does to regain freedom.
    This book is not about a cure. It isn’t even about pain management. It’s about life management, and what can be done to get the most out of life.
    It’s about getting out of bed and living again!
    Updates are now included from 2017. Also from 2018, “Good Pain vs Bad Pain - BDSM”

    LanguageEnglish
    PublisherL. S. Fayne
    Release dateJan 29, 2012
    ISBN9781609030292
    Fibromyalgia Chatter
    Author

    L. S. Fayne

    I love to write. I love to entertain. I try to make people feel. I write fantasy adventures with a paranormal twist.Ha, in saying that... I'm at a stand still right now. Writer's block? Hell no! When a person writes, they feel... They Feel Everything. Sometimes, it can just get overwhelming. We laugh, we cry, we excite. It has to go deep to spring back up.The "O'Byrne" family is an idea of what it might be like if a Druid family was able to keep their ancestry alive. Their beliefs and their magic. This family has held tight through changes and generations. Truly, family comes first. Books are for teens through adult.The MONOP series are rather naughty. It is adult fiction. MONOP has their own ideas of how they want to protect those entrusted to them. There is a strong BDSM theme.About myself? Life can be stranger than fiction. Right now, it's baffling. I did just get a dog. Lol.

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      Book preview

      Fibromyalgia Chatter - L. S. Fayne

      FiBroMyAlgia

      Chatter

      By,

      L. S. Fayne

      Copyright 2012 L. S. Fayne

      Original Publication by Fayne Artists

      ISBN-13: 978-1-60903-029-2

      REVISION C - Updated 2018

      Smashwords Edition

      License Notes: This ebook is licensed for your personal enjoyment only. This ebook may not be re-sold or given away to other people. If you would like to share this book with another person, please purchase an additional copy for each recipient. If you're reading this book and did not purchase it, or it was not purchased for your use only, then please return to Smashwords.com and purchase your own copy. Thank you for respecting the hard work of L. S. Fayne.

      To gain permission of content use, contact…

      Fayne Artists

      E-Mail: lsfayne@gmail.com

      Web: https://www.facebook.com/lsfayne

      The author reserves rights, Freedom of Speech, to express her views on subject matter. Names have sometimes been changed to maintain privacy.

      Table of Contents

      Introduction

      The Oregon State Fair

      The Day After

      Before Fibromyalgia

      How? What? Fibromyalgia

      Fear and Confusion

      Model of Loss

      Finding Solutions for Living - Year 2011

      Time Out

      Look Good – Feel Good

      Clothing

      Grooming and Maintenance

      Environment – Home

      Drugs and Alcohol

      Eating and Drinking

      Exercise

      Sleep

      Spa/Massage Time

      Socializing with Groups

      The Intimate Partner

      Companions – Pets

      Traveling

      Stress/anxiety Management

      Work

      Money

      Appointments

      Fibro-Fog

      Fighting with Depression

      Intimacy—oh dear

      For Her Eyes Only

      What it’s about...

      2017 Update

      2018 Good Pain vs Bad Pain - BDSM

      From the Author

      Internet Links

      Dedication

      To those who persevere, even though in pain, and bring life, warmth, and joy to the lives of those around you, thank you. You are an inspiration to us all.

      Appreciation

      To my husband, for loving me and supporting me even when I’m not at my best. Thank you for making life good.

      Revision B - Updated 2017

      There are things which have changed through the years. I started to edit and update the content, but realized it would destroy the spirit of the book from when it was originally written. The path would also be disrupted.

      This book is a path of discovery. For that reason, I’ve left the content alone and added a sectional Update to the back. It may create contradictions. Life is a learning process.

      TOC

      Introduction

      I have fibromyalgia. This is my story. It was finally diagnosed as fibromyalgia in 2008. Seven years after the surgery which had caused it. There are self help books out there which tell you how to be free of the condition. Maybe they work. I won’t judge. If a book even helps one person that would be wonderful. This book is about living a full life even with fibromyalgia. Good job to those who have beat it! I fear though that you are a lucky few.

      I already know that this book is going to cause haters and lovers—which is actually better than being ignored. It seems that in today’s circumstances there is an awful lot of anger. It doesn’t even seem to pertain to any particular subject. The anger just seems to spew out on that which is vulnerable.

      Just so you know, I am an independent writer. No one owns this work except for myself. I have total control of it and its content. I am not writing this for money. In fact, it’s a rather sad laugh that people think writing a book means instant prosperity. It’s a lot of hard work, feels a bit naked, and can be expensive on many levels.

      Even thought I talk about my other books, this is not a plug by yet another indie author to sell her books. It is not! It is no different for us to talk about our books than a gardener to talk about their flowers, or a NASCAR racer to talk about cars and tracks. It’s just in us. It’s what we like.

      This book is written as honestly as I know how. It’s been rather confusing for me while I’ve been writing this, because every day feels much like the day before, and yet so very different. The little things matter. A diagnosis of fibromyalgia is elusive and hard to capture.

      I am hoping that writing this will help someone with fibromyalgia figure out how to get out of bed and start living again. I’m also hoping those who are around someone with fibromyalgia will find more enlightenment about dealing with this phenomena. It’s more than just understanding the problem. It’s about understanding the problem, and being aware of its affects on the person in that moment.

      Sometimes, it’s very hard to get up and enjoy life. What is harder though, is to regain your freedom once it has been taken away from you. Fibromyalgia can steal your freedom. It can steal away your life. People become bedridden from this ailment. It’s not about sucking it up and getting on with it.

      I was reminded—just yesterday in fact—of how we go around in life, contained in our little boxed worlds, seemingly unaware of those around us. We don’t really pay attention to them. We definitely do not see the details of their lives.

      There was something written into facebook about having all those on welfare, doing mandatory drug testing. Although, I wouldn’t have jumped on that particular band wagon. Not too long ago, I wouldn’t have really thought much about it, either. I would have simply read it, maybe agreed or not agreed—depending on my mood—and moved on to the next subject.

      This time, I actually paused to think about it. I thought about my newly acquired friend from the East coast. She suffers from Trigeminal Neuralgia. A very severe facial nerve disorder. In simple words, her face hurts—a lot. Sometimes, she can do nothing else except to cry. The pain is so, so bad.

      Using cannabis could help with that pain. Not very many drugs do. If she was to test positive for using cannabis, she would lose her financial assistance. Where would she be then? She can’t work! So because of fear, she doesn’t use the one medication which could ease her pain—help her to have a life again. It’s so senseless and petty of her state, and the feds, in making its use illegal.

      Too many times we just flitter from one subject to the next. Not thinking about how something will really affect our fellow person. We need to stop. We need to realize that nothing is ever simple, and to take a good look at what we are doing. Maybe—novel idea here—even let those affected make the decisions.

      It’s easy to jump at ideas which do not directly affect us. It’s easy to be opinionated about those things which make no difference in our lives. We tend to slow down only when something can actually make some type of impact on us. We should slow down more often.

      I used to be irritated by those who had a major life drama, and then suddenly become the world’s advocate about whatever that was. Now, I’m a little embarrassed by my insensitivity. Life has a way of humbling us. We are supposed to react to it.

      I’ve learned to respect those who step out and demand change. It was not an easy road for them to have taken—no matter why they chose to do it. With this writing, I’m not stepping out and shouting about change. I’m simply hoping to bring about an awareness—and a compassion. I hope to help someone.

      ***

      Fibromyalgia is sort of a buzz diagnosis right now. Very few people understand just how crippling it can be. There will be things I miss telling, either I forgot about it, or thankfully, I didn’t get to experience that particular derivative. There are a lot of combinations of symptoms with fibromyalgia. That is why it is so hard to diagnose.

      Sometimes, I will talk about myself, but sometimes I’m addressing you, the reader. When I say you. I’m really meaning the person who needs to hear what I’m saying. If he or she isn’t you—just move along.

      Fibromyalgia, it’s a bucket they put us in when they do all the tests, and can’t find anything else wrong. For me, they poked and prodded, scanned and took samples. Performed a colonoscopy and took a biopsy. They even looked at my brain a few times. At least, they finally started believing that it wasn’t just in my head.

      I find that the only way I can write about myself is by chatter. Writing about myself makes me feel weird—suddenly shy. So, I will just drift, and let the subjects introduce themselves. This may get a little non-linear at times, but then this book isn’t a reference. For a referenced document, see a doctor.

      A peer informed me once that the world did not revolve around me. I was rather shocked at him for saying this since I never thought it had.

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