ACCESS TO PALLIATIVE CARE AND SYMPTOM RELIEF

KELOMPOK 2
1. Essha Amanda Yudhistira 1711011048
2. Firdaning Ayu Kumala Ningrum 1711011055
3. Agustin Dwi Pratiwi 1711011065
4. Desi Indah Lestari 1711011069
5. Nevi Lia Elvi Andhy 1711011070
6. M. Rifki Hamdani 1711011075
7. Putrsi Surya Dewi 1711011085
Agenda Style
01 Inhibiting Factors For PCC Development

02 Estimating the global need for PPC

03 Mapping levels of palliative care development

04 Disparity in access to palliative care

 INHIBITING FACTORS FOR PCC
DEVELOPMENT

1. Geography
2. Lack of education
3. Lack of public awareness
4. Stigma and lack of consensus on the diseases
and conditions appropriate for PPC

There is resistance to admitting that children need palliative care because it is

emotionally difficult to admit that children suffer and die. Further, many myths persist
about caring for seriously ill children, including a belief that children are not aware of
their condition and do not experience pain in the same way as adults
ESTIMATING THE GLOBAL NEED FOR
PPC
Several estimates of the global need for PPC have been
undertaken in recent years (2,3,38). One estimate identified
11 categories of conditions that generate a need for PPC at
the end of life only and the percentage of the need due to
each condition.
MAPPING LEVELS OF PALLIATIVE CARE DEVELOPMENT

• Evidence (from figure 2) of broad palliative care provision for

children. Approaching full integration within health care
services as well as a national policy to support children’s
palliative care.
• Evidence of broad palliative care provision for children with
training available and focused plans for development of
services and integration into health care services.
• Evidence of localized palliative care provision for children and
availability of training.
• Evidence of capacity building activities for the provision of
children’s palliative care.
• No known provision of children’s palliative care.
 Measurement of need for, and capacity to deliver, PPC
are necessary elements in planning PPC in a country or
region. This is usually done by knowledgeable
individuals (including a national palliative care
association if there is one) and can be done
sequentially. In most LMICs, there are few PPC
programmes, and these few may be known to key
informants.
 The primary information needed is the capacity
of these institutions to deliver PPC including:
1. number of patients who received care in one year
2. Diagnoses
3. length of service by diagnosis and overall
4. average daily census
 DISPARITY IN ACCESS TO PALLIATIVE CARE

#
Currently, 98% of the need
for PPC is in LMICs, and nearly
50% of the need is in the African
region (Figures 3 and 4). Yet few
clinicians in LMICs have any
training in PPC
DISTRIBUTION OF CHILDREN IN NEED OF PALLIATIVE CARE AT THE END
OF LIFE BY WORLD BANK COUNTRY INCOME GROUP
 PROGRAMMES IN PPC
An accurate estimate of the number of PPC programmes worldwide is
not available at present. However, a number of centres of excellence
have been identified that can serve as models for development:

 Members of ICPCN: http://www.icpcn.org/members-directory/

 All 196 members of the United Kingdom association Together for
Short Lives: https://www2. togetherforshortlives.org.uk/portal/publ
ic/volunteer/List.aspx
 Members of the United States National Hospice and Palliative Care
Organization that have paediatric palliative care services: https://w
ww.nhpco.org/find-hospice
Thank you