Professor Emeritus, Ohio University School of Nursing Houston J. & Florence A. Doswell Endowed Chair in Nursing for Teaching Excellence, Texas Womans University, Dallas Campus Objectives At the conclusion of this webinar, participants will be able to: Discuss todays changing landscape & needs for care delivery Identify usefulness of the Family Health Model (Denham, 2003) Identify essential aspects of thinking family in nursing practice Characterize the nursing practices needed for relationship based care delivery Describe how a family lens can be used to drive care delivery across multiple contexts Implications of Changing Health Care System Landscape Affordable Health Care Act Technology Growth in Knowledge Roles of Health Practitioners Consumers Chronic Illness Care Needs Aging Populations Increasing Diversity of the U.S. Population $$$$$$$ Health Care Since 2005, 2,000-4,000 articles added daily to Medline database Physicians Desk Reference grown from 77 pages in 1942 to 3,250 pages in 2012 edition Explosive growth of health websites on the internet Billions in medical research (we spend thousands $$$$ for single person to implement treatments) group association of people who share common beliefs or activities blended families children economics spouse consanguinal Same Sex grandparents patriarchal Illness Care System Exceptional almost miraculous Billions wasted on unnecessary & inefficient services Millions get too much or too little Quality of care vs. volume of care services Questions about the quality, adequacy, equity, value & satisfaction with care Health vs. Illness Acute illness: short duration, but usually severe Chronic illness: persistent illness for >6 months, can worsen or get better Health: State of complete physical, mental and social well- being, not merely the absence of disease www.diabetesfamily.net/family see: Family Health Model An Ethnographic Study of Family Health in Appalachian Microsystems (1995 -1996) 8 Appalachian families/4 interviews with each Family Health During Transitional Change (funded by the American Nurses Foundation, 1996) Family Health in a Disadvantaged Population (funded by the College of Health and Human Sciences, 1997) Nurturing & emotionally supportive A caring unit for its members Meets individual needs, celebrates, and values members Dynamic changes are likely to occur over the life course HEALTHY FAMILY Family Health An adaptive state that occurs across the life course as the family unit serves as a major resource for the day-to-day living and wellbeing of its members. A household phenomenon that effectively uses available resources to maximize the wellbeing of its members and the family unit through supportive interactions with their embedded systems, dynamic relationships, and member routines. It is experienced when individuals fulfill personal goals, enjoy a meaningful life, and experience full capacity of wellbeing. Think Family Every time you see an individual... Even when others are not physically present... Note similar care needs in families with children & those with adult members Family Theory (Domains) Family Structure Family Function Family Process Family Systems Theories Family Health Model Contextual Domain Functional Domain Structural Domain Contextual Domain Microsystem Mesosystem Exosystem Macrosystem Contextual Domain Household niche Immediate neighborhood Family members & close links to others that are like family Characteristics, genetics, race, age, spirituality, culture, and other family traits Microsystem My Family Microsystem Contextual Domain Mesosystem: Multiple influences as individuals interact within member sub-systems within & outside the household niche. Exosystem: Systems that do not directly involve individuals as active participants, but events still effect the family. Macrosystem: Policy (e.g., social, health, public); larger environments Chronosystem Timing of events. Number of events in a given time. Length of time of events. Perceptions of time over time. Social life course. Time and place. Human agency. Timing of lives. Interdependent lives. Actual passage of time. Special moments in time. Age differences. Intergenerational transmission. Historical past. Experienced and inexperienced present. Desired futures. Normative & Non-Normative Events Normative Events * Events that developing persons and families anticipate; culturally bound events; have shared meanings (e.g., birth, puberty, graduation, marriage, retirement, etc.). Non-Normative Events * Events that appear unexpectedly; families ill-prepared; may be viewed as crisis; linked to historical contexts (e.g., genetic disorder, divorce, losing job, premature death, chronic illness, etc.) Functional Domain Individual factors (e.g., values, attitudes, beliefs, abilities, & roles) Member processes (e.g., communication, leadership, decision making, problem solving, etc.).... dyads & triads Family unit processes (e.g., cohesiveness, individuation, identity, boundaries, resilience, etc.) Functional Domain Relationships with others Relationships with social systems and larger society Member development, health, and well- being Ways family resources are used Influences family health potentials and how they are met or unmet Core Family Processes Caregiving Cathexis Celebration Change Communication Connectedness Coordination Caregiving Health maintenance Disease prevention Risk reduction Health promotion Illness care Rehabilitation Acute episodic needs Chronic care concerns Cathexis Attachment Commitment Affiliation Loss Grief and mourning Normative life processes Complicated life processes Celebration Culture Family fun Traditions Rituals Religion/faith practices Hobbies Shared activities Change Control Meeting expressed needs Meanings of change Contextual influences Compare and contrast Similarities and differences Diversity Communication Language Symbolic interactions Information access Coaching Cheerleading Teaching Counseling Knowledge and skills Emotional needs Affective care Spiritual needs Connectedness Partnering relationships Kin networks Household labor Cooperation Member roles Family rules Boundaries Tolerance for ambiguity Marginalization Coordination Family tasks Forgiveness Problem solving Decision making Valuing Coping Resilience Respect Reconciliation Stress Management Structural Domain Rituals, traditions, & routines
Family health routines Structural Domain Ways members use beliefs, values, attitudes, information, knowledge, resources, & experience to construct behaviors that impact health & illness.
Provides insight into individual & collective behaviors lifestyle & health behaviors.
Useful for assessment, intervention, & evaluation of the complex patterns affecting individual & family health or illness. Structural Domain Prior research suggests that family routines have potential for conceptualization, planning and implementation of interventions to promote healthy lifestyles & manage chronic diseases. (Denham, 2002a; Denham, 2002b) Family Health Routines Self-care Safety and precautions Mental health behaviors Family care Illness care Member care-taking Complex Family Health Interactions Household Niche Individuals & Others Routines Resources Personal Traits Interactions Community Transform Nursing Practices Household member behaviors Meet individual Assess Family Needs Tailor care One size does not fit all No quick single fixes Chronic care needs change over time Family behaviors matter Should not have to be on our own Change Care Delivery Move beyond visiting hour debates Think outside of the acute care settings What is collaborate care? How do we become partners in care? What are the implications of continuously coordinated care? How do we best support the lived experience linked with health & illness? See family, the household, & community as integral... PLACE MATTERS!!!! Focus on population needs & quality of life years Medical errors, safety, infection control, costs of care, etc. Moving from Patient to Family Focused Care Patient focused (dependent role) Individual focused (empowered role) Patient-centered & family-centered terms Family physicians & family nurse practitioners Family Focused Care Nursing is an art & science Evidence based practice See individuals - Always think family Identify care needs of people in context Holistic care Family as the Unit of Care Family is in the forefront Members are perpetually connected Even when members are not present, they are still important Shared lives, resources, & identities Thinking Family An attitude & mindset Approach for all care Value deeply connected & interdependent lives Respect expertise of family units experiences Traits of Family Focused Care Needed by young & old Intentionally focused Communication (crisis, conflict, multiple members) Identify household needs for individual members Reflection
Individual-Nurse-Family Partnerships Family is ALWAYS present, even when not physically present Hear the family story Value the expertise of family members Not an extra task, but usual practice in every situation Safe care (think home & community) Family Communication Who do I communicate with? What things need to be discussed? How do I conduct private conversations? How do I best use time to build trust & deliver care? What are the most important things to do? Continuity of Care Care coordination Address care fragmentation Self & family care management Family needs to know ways to support members care needs Health promotion, wellness, risk reduction & prevention Resources, barriers & needs Family strengths Interprofessional care needs Family Focused Nursing Practices Assessment: Gather, analyze & synthesize information from a variety of sources Clear communication Provide information, education, & support Care for acute, chronic, population care needs & wellness Doing For & Being With Doing For Task orientation (actions, busyness) Being With Sharing emotional presence (listen, hear story, value other, learn) Both important Do together Family Focused Care Intentionally focused Use reflection regularly Communicate effectively Trust & respect Build self-confidence sdenham@twu.edu