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Definition of Palliative
Palliative (adjective): Serving to palliate. Palliative (noun): Something that palliates. Palliate (verb): 1. To reduce the violence of (a disease) also: to ease (symptoms) without curing the underlying disease. 2. to cover by excuses and apologies.
Attributes
Individualized patient care Support for the family
Interdisciplinary teamwork
Trust
Safety
Effective Communication
Effective Communication
Safety
Interdisciplinary Teamwork
Trust
It focuses on all aspects of the patient care, rather then just controlling the symptoms.
Patients and their family members are asked to contribute to their specific goals of care. Care is focused on the patient and their idea of quality of life.
Interdisciplinary Teamwork
Many different health care professionals are involved in palliative care programs: physicians, nurses, social workers, chaplains, nurse aides, dieticians and volunteers. All members of the palliative care team work together, along with the patient and family, to create the best goals of care for the patient.
Trust
Patients must be able to trust the judgment of the team in that they will provide the best care available. It is crucial for the palliative care team to create a trusting relationship with the patient and family in order for the patient to received the most beneficial care available to them Patients and family members must also be able to trust in the treatments given. It is up to the medical team to properly educate the patient and family about the treatments the patient will be receiving and why they are important.
Safety
Continuity of Care: Competence of Care:
By maintaining continuity of care, patients and family members have a feeling of safety. They are able to build trusting relationships with team members, and do not have to worry about new team members that may not know the patients goals of care, needs or wants.
Patients and family members have a feeling of safety when they believe that competent care is being provided.
Effective Communication
Communication is vitally important in palliative care. It allows the patient, family and care team to have open conversations about advanced care planning and prognosis. Palliative Care allows patients and family members to get involved in the care and to help create goals of care.
Team members must maintain open communication with the patient and family in order to continually develop and change the care plan.
Antecedents
Acute or Chronic Illness. Examples: COPD, CHF, Dementia, Respiratory Failure, Acute or Chronic Renal Failure. Terminal or Potentially Terminal Illness. Examples: Cancer, Stroke, Brain Injuries.
Consequences
Patient Consequences: Advanced Care Planning Increased Coping Increased Quality of Life Relief of Suffering and Symptoms Enhancement of Human Dignity Effective Closure Family Consequences: Effective Closure Improved Bereavement Outcomes Healing of Relationships Decreased Guilt Decreased Psychological Distress Improved Coping
Effective Closure
Increased Coping
Patient Consequences
Improved Coping
Effective Closure
Family Consequences
Healing Relationships
Decreased Guilt
Nurses must know when to introduce to topic of palliative care to patients and their family.
Must not be afraid to bring up the topic of palliative care, or to suggest it to a physician.
SUPPORT Study
SUPPORT study (Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments)
Conducted in the U.S. to learn how to improve the care of the dying patient within our healthcare system. Indicated the need for earlier intervention in planning with patients and families. Development of new vocabulary to describe the time before endof-life when palliative care should begin. Access to palliative care and hospice care has less to do with the patients decisions and more to do with the systems of care and how they function.
References
Brenner, Paul R. (2000). Palliative care and hospice: One approach. American Journal of Hospice and Palliative Medicine, 17, 241-244. doi:10.1177/104990910001700409 Meghani, Salimah H. (2003). A concept analysis of palliative care in the United States. Journal of Advanced Nursing, 46(2), 152-161. Meier, Diane E., Morrison, R. Sean, Cassel, Christine. (1997). Improving palliative care. Annals of Internal Medicine, 127(3), 225-230. Kaur, Judith S. (2000). Palliative care and hospice programs. Mayo Clinic Proceedings, 75(2), 181-184. Philip, Jennifer A.M., Komesaroff, Paul. (2006). Ideals and compromises in palliative care. Journal of Palliative Medicine, 9(6), 1339-1347. Reb, Anne M. (2003). Palliative and end-of-life care: Policy analysis. Oncology Nursing Forum, 30(1), 35-50 Werkander Harstade, Carina., Andershed, Birgitta. (2004). Good palliative care: how and where?. Journal of Hospice and Palliative Nursing, 6(1), 27-35.