Discover this podcast and so much more

Podcasts are free to enjoy without a subscription. We also offer ebooks, audiobooks, and so much more for just $11.99/month.

UnavailableScience didn't understand my kids' rare disease until I decided to study it | Sharon Terry
Currently unavailable

Science didn't understand my kids' rare disease until I decided to study it | Sharon Terry

FromTED Health


Currently unavailable

Science didn't understand my kids' rare disease until I decided to study it | Sharon Terry

FromTED Health

ratings:
Length:
15 minutes
Released:
Jun 15, 2017
Format:
Podcast episode

Description

Meet Sharon Terry, a former college chaplain and stay-at-home mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require researchers to share biological samples and work together.
Released:
Jun 15, 2017
Format:
Podcast episode

Titles in the series (100)

From way-new medical breakthroughs to smart daily health habits, doctors and researchers share their discoveries about medicine and well-being onstage at the TED conference, TEDx events and partner events around the world. You can also download these and many other videos free on TED.com, with an interactive English transcript and subtitles in up to 80 languages. TED is a nonprofit devoted to Ideas Worth Spreading.