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5.

Greater social inclusion for people


with mental health problems
WHAT CAN YOU DO?
MENTAL HEALTH:
The Programme for Government contains a welcome
commitment to establishing a cross-departmental group to
ensure good mental health is a policy goal across
Support the campaigns
OIREACHTAS MEMBERS’
Government. This commitment needs to be implemented
as a priority by the new Government and can build on the During the life-time of this Dáil both Amnesty International and Mental Health Reform will
good work already achieved by the Office for Disability and be engaged in ongoing campaigning and lobbying for mental health reform. We would greatly

BRIEFING PACK
Mental Health which has a cross-departmental remit. The
appreciate your support in attending events, signing petitions and advocating within the
group should include representatives from the Departments
of Health; Education; Children; Social Protection; Justice, Oireachtas and within your parties for the objectives we are pursuing. To be added to our
Equality and Defence; Environment, Community and Local mailing lists please contact mentalhealth@amnesty.ie
Government; Arts, Heritage and Gaeltact Affairs and Public
Expenditure and Reform.

This group should set out how responsible Departments will


progress the social inclusion recommendations of A Vision
for Change and report regularly and publicly on progress. It
Join the Cross Party Group
The Cross Party Oireachtas Group on Mental Health was established during the 30th Dáil as a
should also ensure that mental health is adequately
reflected within the work of other Government structures forum for discussion and an increased political focus on the issue of mental health. Deputy Chris
such as the National Disability Strategy and the Office for Andrews and Senator Frances Fitzgerald convened the group in July 2009. Its purpose is to
Social Inclusion. promote political activity, awareness and understanding of mental health issues in a non-partisan
forum within the Oireachtas. The group has become an important forum for discussion and
6. End stigma, prejudice and discrimination advocacy on the issue of mental health in the Oireachtas.

© House of the Oireachtas


The stigma and discrimination associated with mental
health problems can be as difficult to manage as the
If you are interested in becoming a member of the group, please email:
experience of being unwell. Research by See Change, the crosspartymentalhealth@gmail.com
National Mental Health Stigma Reduction Partnership,
found that half of those surveyed would not want anyone to
know if they had a mental health problem, while one in “It’s horrible. It’s awful. It makes you feel like
four young men would delay seeking help for fear of
someone finding out.
you’re the loneliest person in the world, the only
person in the world that has a problem or is
Find out more
If you would like to speak to someone about any of the work we are currently doing, or if you
It is clear that much remains to be done to improve experiencing some difficulties.” would like to order any of our publications or campaign materials please contact Barry Johnston Amnesty International Ireland (AI) is a worldwide movement of over 3 million people who
attitudes and the commitment in the Programme for
Government to reducing the stigma associated with mental Anonymous Service User (bjohnston@amnesty.ie; 01 863 8325). campaign for internationally recognised human rights for all. We research, campaign and
health problems is welcome. To fulfil this commitment the lobby to uphold human rights. In Ireland we seek to hold the Government to account for its
Government must fund and support evidence-based public equal opportunity, and exercising their rights under Irish obligations under international human rights law. In particular we are campaigning for the
campaigns to combat prejudice and discrimination against equality legislation to challenge discrimination and seek right to the highest attainable standard of mental health to be made a political priority.
people with mental health problems. redress.

It must build on the positive work already being done by It also requires courage and leadership from individual Mental Health Reform (MHR) is an alliance of organisations seeking to improve the lives of
See Change – the National Mental Health Stigma politicians to speak out and challenge prejudice and “We are not asking for anything more than for the human rights of people experiencing mental health people with mental health problems. We are campaigning for reform of mental health services
Reduction partnership – and also work with relevant state discrimination against people with mental health problems
agencies to eliminate the barriers experienced by people where they encounter it and to encourage open and problems to be respected. We want them to be treated with dignity and respect. To be truly given a in Ireland by increasing the pressure on those with the power to improve these services.
with mental health problems in achieving equality and informed discussion on the topic in politics and society. Members of the alliance include Amnesty International Ireland, Shine, Bodywhys, Grow and the
choice in relation to treatment. We want a system that supports everyone’s right to housing,
Irish Advocacy Network and this membership is growing.
employment and education – all essential to recovery and well-being.”
AI’s Experts by Experience Advisory Group

References:

1. The term ‘mental health problem’ refers to the psychological and emotional problems that people may experience such as depression, anxiety or schizophrenia. The term was
specifically chosen as it is non-stigmatising and avoids diagnostic or labelling language. It does not include intellectual or learning disabilities.

2. AI has published a discussion paper setting out a rationale and recommended provisions of this legislation.
WHAT ARE THE PROBLEMS? Prejudice and Discrimination found that people with slow progress. Previous experience with the Cancer Care
FOREWORD mental health problems perceive high levels of prejudice Strategy has shown the value of having a designated
This briefing has been produced as a resource for and discrimination in their lives and report experiencing individual championing an issue at the highest level within
members of the newly elected Houses of the unfair treatment across a wide range of areas, including our health services.
Mental health services
Oireachtas to inform them on key issues of concern among family, friends, in their communities, at work and in
for people with mental health problems. It is hoped mental health services. Their reports of isolation, We need to establish a dedicated senior executive position
Historically Ireland’s mental health services have been
that this will be of value to members in assisting them marginalisation, prejudice and discrimination point to a within the health service that is responsible for
dominated by inpatient treatment delivered in Victorian
to effectively represent their constituents who shameful lack of equality and respect and warrant a implementing A Vision for Change. Recommendation 16.3
institutional settings. Successive Government policies on
experience mental health problems and their families considered response from Government. of A Vision for Change calls for the establishment of a
and friends. mental health have called for fundamental reform of our
National Mental Health Service Directorate led by a
mental health system (Planning for the Future (1984) and
Director for Mental Health Services who has executive
All people have the right to the highest attainable
standard of mental health, as written in Article 12 of
A Vision for Change (2006)), but progress has been
painfully slow.
WHAT NEEDS TO HAPPEN? powers, an implementation budget and responsibility to
publicly report on progress.
the International Covenant on Economic, Social and
Amnesty International Ireland and Mental Health Reform
Cultural Rights. This gives people a right to mental A Vision for Change set out a policy framework for the
want to see all people in Ireland enjoy the highest
health services that are available, accessible, mental health of the whole population. In addition to
acceptable and of good quality and requires that our recognising the importance of mental health promotion and
attainable standard of mental health and be free from 3. Amend the Mental Health Act 2001
country create an environment that promotes the best discrimination. We believe this is entirely achievable once a
primary care, it called for a person-centred, recovery-
possible mental health for all people. As public firm political commitment is made to take the necessary The Mental Health Act 2001 regulates the involuntary
oriented and holistic approach to mental health services.
representatives you have a duty to work together to steps that will lead to this change. admission, detention and treatment of people with mental
It called for a shift from the existing system, which involves
make these rights a reality. health problems in inpatient facilities. The Act also sets
an over-reliance on institutional care and medication, to a
It is time for politicians and parties to articulate clearly out the functions and powers of the Mental Health
system centred on community-based care provided by
Internationally it is commonly agreed that one in four what steps they will take to turn these promises into a Commission and the Inspector of Mental Health Services.
multi-disciplinary mental health teams (including
people will experience a mental health problem1 at reality. The Oireachtas can finally end the shameful neglect The Act currently falls short of the latest developments in
psychologists, social workers, occupational therapists and
some point in their lives and mental health problems of people with mental health problems that has been a international human rights law and standards, for example,
affect men and women of all ages, social status and
service users working alongside psychiatrists and mental Underlying determinants of mental health health problem arose before completing their full time
persistent stain on Ireland’s human rights record. It can with regard to the overly paternalistic application of the
health nurses). Such services allow people with mental education stopped education due to their disability;
origin. Each of these people will have friends, family begin by doing the following: law, the lack of a recovery focus, the way the tribunal
and colleagues, meaning virtually everyone is affected health problems access to the services and supports they The human right to the best possible standard of mental ■ Almost half (47 per cent) of mental health service users
system works and how treatment is allowed for under
by the issue of mental health in some way. choose, while continuing to live and participate in their health is not limited to mental health services but extends surveyed for the Expert Group on Mental Health had at
the Act.
community, as is their right. to what are known as the underlying determinants of best a Junior Certificate; and
■ Of more than 4,000 people living in long-stay residential
1. Greater accountability for mental health reform
Mental health is an even more important issue in the health, such as housing, employment, education and social The Programme for Government contains a commitment to
context of the current economic situation. Financial There are examples of good practice in services around the security. In other words, the right to health is closely mental health care in 2007, one quarter were in
Implementation of reform of the mental health services has review the Mental Health Act 2001. For this review to be
stress, debt and unemployment are putting a massive country yet implementation of this plan has been related to and dependent on things like having a having a accommodation that did not suit their needs.
been slow and uneven to date. A Vision for Change has no adequate it must be carried out with reference to the UN
burden on people’s mental health. International inadequate overall. Services remain widely deficient, with home, a decent income, a job, and skills and training. comprehensive implementation plan, meaning it is Convention on the Rights of Persons with Disabilities,
evidence points to a link between times of economic very few complete multi-disciplinary mental health teams,
difficulty and greater demand on mental health impossible to measure and scrutinise progress. which Ireland must ratify. It must also take the opportunity
and limited access to community care or the full range of In Ireland, there is increasing evidence that people living The rights of people with mental health problems to enjoy
services and high rates of suicide. Accountability for expenditure on mental health and to examine how legislation can be used to drive reform and
psychological supports that should be part of a modern with mental health problems experience social exclusion. all of their social and economic rights is reinforced by the
transparent information on how such expenditure is used to improve accountability and transparency in community
mental health service. In 2009 only one out of five staff in Statistics compiled for AI’s report The Missing Link show UN Convention on the Rights of Persons with Disabilities
In 2008 the Mental Health Commission estimated reform the services in line with policy has been lacking. We mental health services.
mental health services actually worked in community that: (CRPD), which Ireland has signed but not yet ratified. The
that the direct annual costs of poor mental health in simply don’t know enough about where or how public
settings, while many inpatient facilities remain totally CRPD adopts a ‘social model’ approach to disability
Ireland was €3 billion, or 2 per cent of GNP, the money is being spent on mental health services. Many of the provisions of the Mental Health Act 2001 are
unsuitable. Fifteen of the 63 approved in patient facilities ■ People with a mental health problem participate in the (including mental health) that emphasises the role society
majority of that in lost earnings, absenteeism and also closely linked to the issue of decision making capacity
date from the Victorian era or earlier. The Inspector of Irish labour force at a rate less than half that of the plays in creating barriers for individuals who have
early retirement and morbidity. Coupled with the huge A Vision for Change requires a detailed implementation and new mental capacity legislation must be published and
Mental Health Services has described some of these general population; impairments. It expresses intent to redress the “profound
personal suffering that is experienced, these are plan setting out deliverables, a timeline and who is enacted as a matter of priority to replace the out-dated
facilities as “entirely unacceptable and inhumane”. The ■ Adults with a mental health problem are more likely to social disadvantage of persons with disabilities” and to
problems of enormous social and economic responsible. Given that such a plan has not been produced wards of the court law currently in place.
situation for older people and people with intellectual have left their job due to their disability than people with promote their participation in civil, political, economic,
importance that we cannot afford not to address. A in the five years since A Vision For Change was published,
committed response to these challenges must be at disabilities is even worse as these specialist mental health other disabilities; social and cultural spheres.
it is clear we now need legislation to make binding the
services are almost non-existent. ■ Almost a quarter of the 77,665 people in receipt of
the heart of our recovery as a nation. level of planning and accountability necessary to track 4. Financial Commitment
illness benefit in 2009 cited mental health issues as the progress towards reform.2 Legislation could establish a
This briefing sets out the barriers that we face in fully reason they were unfit for work; Prejudice and discrimination
framework for sustained improvement of mental health As detailed above, mental health services in Ireland are
realizing the right to the highest attainable standard Resources ■ More than half (53 per cent) of people whose mental services and increased transparency and accountability in underfunded and have been subject to disproportionate
of mental health in Ireland and sets out clear Throughout the world, people with mental health problems
mental health expenditure, by clarifying the obligations of cuts. Progress on closing inappropriate Victorian mental
recommendations for overcoming them. Non-capital expenditure on mental health services was cut are among the groups that face persistent and pervasive
the HSE and the principles that should guide its fulfilment institutions in particular has been slow and in many cases
radically from €1.1billion in 2008 to €770million in “My local mental health support group has a discrimination, resulting in the denial of their human
of those obligations. this has been delayed by a lack of resources to develop the
Our organizations are committed to achieving reform 2009. This continues a historical trend where spending on rights, and profound social and economic exclusion.
of our mental health services and respect for the mental health has dropped from 13 per cent of the overall
regular meeting of about 12 to16 men and one Discrimination can take many forms. It can include actions
replacement community based mental health teams.
rights of people with mental health problems. We look health budget in 1986 to 5.3 per cent in 2010. A Vision woman once a week. All are unemployed. This of individuals (for instance, insults, harassment, or assault)
forward to working along side all members of the for Change recommends that the rate reach 8.4 per cent. – and the outcomes of legislation, and state policies or
2. A National Directorate for Mental Health Services We need to bring the proportion of funding on mental
Oireachtas to make these ambitions a reality. The public sector staffing moratorium has also position has remained unchanged for the last six practices (such as the denial of basic services and other
health services to 8% of the health budget by 2016, as set
A Vision for Change has no single senior executive within out in A Vision for Change and ensure clear reporting on
Colm O Gorman Orla Barry
disproportionately impacted on the mental health services: years and longer.” rights).
the HSE who is responsible for leading the reform mental health spending. We also need to fastrack funding
mental health represents just 9 per cent of the healthcare
Executive Director Director
work force but accounted for 20 per cent of the 1,500 Anonymous Service User In Ireland, research recently published by Amnesty
programme. As a result responsibility falls between the to provide improved community based services and recruit
Amnesty International Ireland Mental Health Reform cracks and no one can be held accountable for ongoing staff to work in these services.
posts lost through the moratorium last year. international in Hear My Voice: Challenging Mental Health

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