Almost 15 Million Americans Now Caring for Loved One With Alzheimer's

By Madonna Behen
HealthDay Reporter – Tue Mar 15, 11:48 pm ET
TUESDAY, March 15 (HealthDay News) -- Nearly 15 million Americans are
caring for someone with Alzheimer's or another form of dementia, and the
number is rising, according to a report released Tuesday.
"People with Alzheimer's who are otherwise healthy may live as long as 20
or 25 years," said William H. Thies, chief medical and scientific officer at the
Alzheimer's Association, which is publishing the report in the March issue of its
journal, Alzheimer's & Dementia. "These are individuals who need increasing
levels of care over time, and that can be very difficult for families.
About 5.4 million people in the United States have Alzheimer's disease, and
their 14.9 million caregivers provided a total of 17 billion hours of unpaid care,
valued at more than $200 billion, according to the report, which also highlights
the physical and emotional burdens that caregivers face every day.
"There's a real lack of understanding among families about the toll that this
disease is ultimately going to take," said Beth Kallmyer, senior director of
constituent services at the Alzheimer's Association.
"Too many people wait until they're in a middle of a crisis to seek help, which
is why we encourage people to start the care-planning process as soon as
someone gets the diagnosis," she said.
Alzheimer's is the sixth-leading cause of death in the United States and the only
cause of death among the top 10 that cannot be prevented, cured or slowed, the
report noted.
What's more, while the death rates for heart disease, stroke and several other
major diseases declined from 2000 to 2008, deaths related to Alzheimer's
disease increased by 66 percent. By the year 2050, the annual total number of
new cases of Alzheimer's and other dementias is expected to double.
Dr. Gary Kennedy, director of geriatric psychiatry at Montefiore Medical Center
in New York City, said that newly diagnosed patients and their families often
receive little if any information about support services.
"The physical exam and the X-ray and the meds, all of which don't have a big
impact on preserving a person's independence, are the things that are paid for by
insurance, while things like talking and counseling tend to be discounted, and so
they're not covered," Kennedy said.
The disease is particularly hard on caregivers, he said, because of behavior
changes that often accompany the person's memory problems.
"If people with the illness become aggressive, or they try to push their family
members away, or they become so agitated that they can't sleep at night, these
are the kinds of issues that can make it very hard for family members to cope,"
Kennedy said.
Another caregiving expert said that people need to know what their limits are and
what they're good at and then share the responsibilities of care so that no one
person shoulders the entire burden.
"Maybe one adult child is good with numbers and can handle the finances, while
the other can visit Mom two or three times a week," said Kym Hance, director
of client and community services at Home Helpers and Direct Link in Saratoga
Springs, N.Y. "You don't want people to get to the point where they're so burned
out they can't handle it anymore."
A valuable resource for caregivers, Kallmyer said, is the Alzheimer's
Association's 24/7 Helpline (800-272-3900). "We average around a quarter-
million calls a year, but with 15 million caregivers out there, we aren't as well
known as we'd like to be," she said.
More than 30 drugs currently in clinical trials are aimed at slowing or stopping the
progression of the disease, Thies noted. But the earliest any of these drugs could
be on the market is four to five years from now, and it might end up being closer
to 10 or 12 years.
In the meantime, he said, the government needs to significantly increase its level
of funding for dementia research.
For every $28,000 that Medicare and Medicaid spend on care for individuals with
Alzheimer's and other dementias, the U.S. National Institutes of Health spends
only $100 on Alzheimer's research, according to the Alzheimer's Association.
Unless more federal funding is allocated for new research, "this is a crisis that's
going to bankrupt our health-care system," Thies said. "It's not something we
think is going to happen. We know it's going to happen."
More information
The U.S. National Institute on Aging has more on Alzheimer's disease.

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