Documenti di Didattica
Documenti di Professioni
Documenti di Cultura
doi:10.1111/cfs.12055
Correspondence: A B S T RA C T
Juliette Borenstein,
Department of Social Work and Kinship care is the fastest growing form of out-of-home care in
Social Policy, Australia, as it is in many other countries. The Victorian Govern-
La Trobe University, ment’s response has been to establish 18 programmes across the state
Bundoora, Vic. 3068, to provide support to kinship families. The scoping project described
Australia here, based on interviews with key programme staff, explores the
E-mail: julietteborenstein@gmail.com experiences of the new programmes in providing support, specifically
respite care, to kinship families. It has produced a picture, based on
Keywords: carer support, kinship, qualitative and quantitative data, of how respite care is understood,
respite care
the perceived respite needs of kinship families, how services are
Accepted for publication: organized and provided, identified barriers to families accessing
November 2012 support, the effect of respite provision and what constitutes optimal
practice. The findings establish a basis for a best practice model of
service provision for this increasingly significant family type.
50 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
Consistent with international findings (Gladstone & stress and use of alternative placements, and increased
Brown 2007; Nixon 2007; Hunt 2008), kinship carers the satisfaction of carers.
in Australia are likely to be subject to a number of Another review conducted by O’Brien (2001)
structural disadvantages, with regard to age, health, was based more broadly on international outcome
income and education (Boetto 2010). They also expe- studies, evaluations and the experience of welfare
rience stress from their caring role, which can be practitioners. He similarly concluded that respite care
exacerbated by issues arising from family relation- could contribute to the prevention of abuse, neglect
ships, and contributed to by the complex needs of the and family breakdown, by decreasing stress and iso-
children in their care (Dunne & Kettler 2008; Farmer lation, and increasing social supports. Aldgate (1998)
2009; Boetto 2010). It has been found that assuming also found in the context of a study conducted in
the care of a child or young person ‘places significant Scotland that children reported respite to be a posi-
burdens on carers’ (Nixon, 2007, p. 7), and that tive experience.
kinship carers require ‘considerable personal and There is international evidence, however, that
other resources in order to manage the unexpected related carers are less likely to be offered support
and ongoing demands of kinship care’ (Department of and other services, such as respite, than unrelated
Human Services, Government of Victoria 2009). An carers, and that they are also less likely to request it
inverse relationship has also been found between carer (Cuddeback 2004; Farmer 2009). Kiraly (2011)
stress and quality of care provided to children (Farmer noted that lack of support to kinship carers was a
2009). consistent theme in Australian research reports and
In a Victorian Government report drawing on the publications.
results of extensive consultation with stakeholders and
a review of the current national and international lit-
The Victorian kinship model
erature, it was noted that: ‘Most children in kinship
care have suffered considerable upheaval and adver- In Victoria, the response to the increase in kinship care
sity . . . (t)he nature and extent of the trauma, grief has been the roll-out since 2010 of state-wide pro-
and loss experienced prior to placement by children grammes to provide support to kinship families.These
placed in statutory kinship care are very similar to programmes are government funded and are operated
children placed in foster care or residential care’ by community service organizations.
(Department of Human Services, Government of Vic- The services provided by programmes under the
toria 2009, pp. 4–5). It has been found that these Victorian Kinship Model are information and advice,
background experiences result in more complex family services (a limited number of hours per family,
behavioural issues (O’Neill 2011). accessible to statutory and non-statutory kinship
arrangements) and placement support (limited place-
ment establishment services, and case management,
for statutory kinship care only) (Victorian Depart-
Kinship respite care
ment of Human Services Kinship Program Model
There is no universally accepted definition of ‘respite 2009, p. 15). There is no direct reference to ‘respite
care’, but a practical form that has been proposed is: care’ in the model, other than as an example of pos-
‘A short term alternative care arrangement that assists sible support that might be provided by the ‘extended
in supporting and maintaining the caregiving role’ family network’ (Victorian Department of Human
(Enduring Solutions 2003). Services Kinship Program Model 2009, p. 8).
In studies relating to kinship care, there is a con-
sensus as to the importance of support for kinship
The research
families, and respite care is often cited as a significant
support need (e.g. Cuddeback 2004; Worrall 2005; The rapid growth in kinship care has resulted in a lag
Aldgate & McIntosh 2006; Boetto 2010). There is not in research and policy development. There have been
a large body of literature relating to respite care in the increasing calls internationally for more work to be
context of out-of-home care for children. Hartley done to establish a specific framework for practice for
(2008), in a review of international studies, concluded this distinct form of care (Cuddeback 2004; Aldgate
that despite some methodological unevenness and & McIntosh 2006; McHugh 2009). There has also
diverse study contexts, there was consistent indication been insufficient focus on respite care as a potential
that respite care for primary carers reduced levels of support for kinship families. Farmer (2009) noted
51 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
that development in this area needs to be based on programmes. Human research ethics approval was
practice evidence regarding outcomes and the services obtained for the project from Anglicare Victoria (see
required to maintain care arrangements. Note 2).
A further impetus for this study was the opportunity The targeted sample for the study consisted of
to tap into the emerging practice in the new Victorian 17 mainstream kinship programmes and 1 more re-
kinship programmes, and to inform their develop- cently established specialized Aboriginal kinship pro-
ment, and the broader field. gramme.The number of kinship families working with
It was in this context that the present scoping each programme varied (from 3 to over 130), with an
project was completed in Victoria, the second most average capacity of around 50 statutory kinship fami-
populous state in Australia, in late 2011 and early lies per programme, together with a fluctuating
2012. The study was funded and developed by the number of non-statutory kinship families.
Respite Care Consortium (see Note 1) as an exten- An invitation was sent to agencies to invite their
sion of earlier work focusing on respite (Lewis et al. participation in the project. All agreed to telephone
2009; McNamara 2009; McNamara et al. 2010a,b; interviews being conducted by the research team with
Ochiltree et al. 2010). an appropriate staff member (100% response rate).
The aim of the study was to broadly examine the These interviews were undertaken using a semi-
provision and organization of respite care for kinship structured interview schedule, which was provided in
families in Victoria. The areas of inquiry were as advance. The agencies and nominated interviewees
follows: the understanding of respite care, the respite were given information about the project, and all pro-
needs of kinship families, how services are organized vided written consent to participation.
and provided, what are the barriers to families access- Interviews ranged from 0.5 to 1.5 hours in length,
ing supports, the effect of the provision of respite and and a written record was made. Both qualitative and
what are the elements of best practice in relation to quantitative data were collected and the responses
respite care. were analysed using Excel and thematic analysis
It was intended to include in the study a specific (Liamputtong 2010). No individual or organization is
focus on the provision of respite care to Indigenous identified, except with their consent.
children and their families. However, owing to the
later commencement of the Indigenous kinship pro- FINDINGS
gramme, there were insufficient data to allow for a
meaningful consideration of this specialized area of The analysed data are presented here organized into
practice. The available data also did not support a areas of research interest: the make-up of the group
specific exploration of how respite care operates for of carers working with the programmes, how respite
children and families from culturally and linguistically care was practically defined and understood, the
diverse communities. need for respite care, how this need was being met,
what outcomes resulted for the kinship families and
what was preventing access to necessary supports.
DETAILS OF THE STUDY Also represented here are the views of respondents
A N D PA R T I C I P A N T S about how the need for respite care would develop in
The scoping project targeted the 18 funded kinship the future, how that need would best be met and
programmes that were operating at the commence- what would be best practice elements in the provi-
ment of the project. It is primarily a qualitative descrip- sion of respite care.
tive study, using mixed methods to represent the views,
Composition of carer group
experiences and perceptions of programme managers
and team leaders with regard to the provision of respite Of the 14 programmes that provided data about the
care. relationship of carers to the children in their care,
The research team analysed respondents’ ‘lived the majority reported that grandparents were their
experience’ through phenomenological interpretive largest constituency. However, non-grandparent carers
analysis (Smith & Osborn 2008). Where appropriate, made up a significant minority. Overall, half of the
Curtin & Fossey’s (2007) principles for ensuring respondents reported between 30% and 59% non-
the validity of qualitative research have been fol- grandparent carers with their programmes. This
lowed. To this end, descriptive statistics regarding group included aunts, uncles, siblings, family friends
respite provision have also been collected from the and one great-grandparent.
52 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
The study explored the understanding of the term Respondents were asked for an estimate of the pro-
‘respite care’ by asking respondents what they consid- portion of kinship carers who requested respite care;
ered to be the purpose, as well as examples, of this the results are represented in Fig. 3. Not all respond-
form of support.The results are shown in Figs 1 and 2, ents gave enough information to answer this question
with indication of the number of respondents nominat- and one respondent (P7) provided separate figures for
ing each category of response. Not all interviewees statutory and non-statutory kinship carers requesting
answered each question. respite care.
The responses showed that respite care is seen more The estimated rates of requests for respite from
commonly to provide a break for carers, rather than as carers varied across programmes and were distributed
a mutual break for carers and children. There were, relatively evenly across the range from ‘never’ to
however, separate benefits (different social and recrea- 100%. One programme reported different propor-
tional experiences, and an expanded network) that tions of statutory and non-statutory carers requesting
were identified for children. respite (80% and 20%, respectively).
The most commonly accepted idea of respite Worker assessed need for respite care was also variable,
involved stranger overnight care (foster care). It is as shown in Fig. 4. Not all programmes provided a
clear though that some respondents had a broader response to this question.
understanding and use of the term ‘respite care’, and Nearly, one-third of the respondents expressed the
applied it to describe other options (such as day care, view that 100% of kinship carers need respite care,
before and after school care, and carer support and the majority indicated a medium to high (60–
groups), which did not involve overnight care. 100%) level of assessed need for respite care.
53 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
54 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
55 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
considered to be ‘vital for working carers’ and positive The link was also noted between improved func-
in terms of the child’s developmental needs. tioning and well-being for carers through provision of
While family and social networks were the first option respite care and improved outcomes for children. As
considered by programmes in identifying respite one respondent stated: ‘If we can look after the emo-
opportunities, the potential issues were also identified tional wellbeing of carers through respite, the quality
by respondents. It was noted that respite within the of care will improve and this will assist with the emo-
family can be helpful, but there can also be complica- tional stability and [developing a] sense of belonging
tions, e.g. with the transfer of carer payments and for the child.’ In practical terms, the respondent felt
behaviour issues. Pressure can also be brought to bear that without respite care, the quality of care for the
on carers by family members, especially in the context child may not be different from the situation from
of complex family relationships and court-ordered which they were removed.
contact arrangements. The question of the effect of the provision of respite care
on the safety, stability, development and well-being of chil-
dren in kinship families was considered by respondents
Outcomes for carers and children
to be more complex.There was agreement that respite
This study did not attempt to formally evaluate the care could be of benefit to children. A strongly
impact of respite on the well-being of kinship family expressed concern, however, was that this would only
members. However, the overall response to the effect be the case if the individual circumstances were care-
of respite care on the functioning and well-being of carers fully considered, the views of the child were sought
was unequivocal. All respondents considered that and respite was well managed and (preferably)
carers benefitted from respite. This was especially planned.
seen to be the case because of the older demographic The benefits of respite care for children in kinship
of kinship carers. Comments were made that the families were identified as either those arising from
value of respite care for kinship carers could not be addressing problematic issues or, in a more positive
overstated, and that respite was ‘imperative’ and sense, from opportunities that are presented through
made the difference between the placement continu- respite care. Issues that respite care was seen to
ing or not. It was the view of one respondent that address were stress, relationship difficulties (especially
three out of six placement breakdowns for kinship for adolescents), lack of contact with other children
families with their programme were attributable to and safety (‘providing another lens on the child’).
lack of respite. This appraisal was supported by other It was also considered that respite care can create
responses. opportunities for children by increasing access to
The benefits of respite care for kinship carers were activities and new experiences, increasing social con-
seen to include: tacts and relationship possibilities, allowing the devel-
• Providing a break (‘a calm clear space to breathe, opment of resilience, self-esteem and other skills, and
and to think about what is going on’) creating opportunities to have fun.
• Allowing time for themselves The questions that need to be considered in assess-
• Reducing stress ing whether respite care would benefit a particular
• ‘Re-charging batteries’ – replenishing emotional child were identified as follows:
and physical energy • How long the child had been with the kinship family
• Increasing opportunities for self-care • Whether the circumstances of the child would
• Having ‘time out to be normal’ and to do things for render the experience traumatic, with consideration
themselves to attachments and past trauma
• Allowing kinship carers to engage in the activities • What the ‘message’ to the child might be in arrang-
‘of their life stage’ ing respite care (‘shouldn’t be seen as punishment’)
• Maintaining their contacts and connections • Whether there is sufficient consistency such that
• Spending time with their partner and other family stability is promoted
members Comments made were that respite care should be ‘a
• Reducing isolation and allowing for experiences to break and not a disruption’ and that it should be
be shared ‘normal and not special’. Also that: ‘[it is] attachment
• Allowing carers the time to deal with possible feel- which makes a placement last and not respite’. In the
ings of grief and loss associated with their role context of the care of Indigenous children, concern
transition was expressed that respite can ‘separate the child out
56 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
from family’, depriving the child of cultural experi- all children. Brokerage monies and adequate up-front
ences which they might have. funding were considered necessary to enable this (21%
of responses). Further resources were also deemed
necessary for more family work, so that the capacity of
Barriers to accessing respite care the family network could be identified and developed.
Developing relationships and protocols between
The majority of respondents (65%) believed that lack
kinship programmes and respite care providers was
of information or understanding is a factor in kinship
also identified (5% of responses) as a measure to
carers not expressing a need for respite care, com-
ensure a more flexible and responsive service to
pounded by issues of language and literacy.
kinship families. Also raised was a proposal for a cen-
Carer concerns and issues (about 70% of responses)
tralized information point to make information about
were also considered to significantly inhibit access to
respite care options readily accessible to workers and
respite care. These included guilt at letting the child
families. Education of kinship carers about respite
down and concerns for the child, difficulty in admit-
options was seen to be important in overcoming reluc-
ting that support is needed, apprehension about how
tance to access support.
they would be viewed by family and workers, reluc-
A point was made by several respondents about the
tance to be a burden and fear that the child would be
importance of early assessment of the need for support,
taken away from them. Some carers also did not want
and family work to determine an emergency contingency
to be part of ‘the welfare system’.
for the kinship carer to avoid future stress.
Some identified ‘system’-related barriers (20% of
responses) were the lack of support and responsive-
ness of the system, the lack of options for respite care, The future need for respite care
financial factors, the complexity and intrusiveness of
The majority of respondents (83%) expressed the
screening processes, transport issues and eligibility for
view that the demand for respite care would increase
services. The external factor of distance was also cited.
in the future; three respondents predicted that it
Child-related factors of relevance (5% of responses)
would stay the same. The prediction of increased
included the anxiety of the child and adolescents
demand was mainly based on the increasing incidence
making their own choices about what they want to do.
of kinship care, and the as yet untapped needs of
Respondents also noted that family issues (5% of
non-statutory kinship families who were just begin-
responses) or family conflict could influence whether
ning to engage with the programmes. The increasing
a carer expressed a need for respite care.
complexity of the issues of the children in kinship
families was also cited as a reason.
One respondent analysed the demand for respite
What is required to meet the need
care in the future succinctly:
The major identified issue was availability of both
It will remain high on the agenda. The need will remain high
formal and private care options (46% of responses).
and the supply will continue to fall short. Families will con-
There was a strong view that there should be a focus
tinue to get on with it – but placements will continue to break
on the recruitment of respite carers (of different cul- down without it.
tural backgrounds), with some prioritization and dedi-
cated funding. Another added to this analysis:
Respondents also identified a need for different There is no capacity to meet current need, let alone predicted
respite options to suit the range of requirements in a increased need in the future. The potential for placement
diverse group. The needs of adolescents were singled breakdown is shocking. Prior to breakdown, the child goes
out, as there was reported to be a lack of respite through emotional turmoil, and is probably subjected to
options for this age group. further harm, before the caregiver says ‘enough is enough’.
Comments were also made emphasizing the need
for flexibility in matching respite options to the indi-
Best practice in provision of respite care to
vidual circumstances of kinship families. It was also
kinship families
seen as important to ensure access to mainstream
options for kinship families (such as school holiday In considering optimal or best practice in provision of
programmes and camps), so that respite could be respite care for kinship families, respondents identi-
normalized and the same opportunities provided to fied the overall aim as enabling access to safe, regular,
57 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
58 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
differences in practices and approaches. Consistent areas that are not disadvantaged, there is more likely
with the result of practice comparisons elsewhere to be medium to high levels of access to respite. Also,
(Sinclair et al. 2007 cited in Farmer 2009), there were for programmes subject to geographic factors, there is
clear differences between the approaches of the pro- more likely to be medium to high levels of access to
grammes participating in this study. Some promoted respite, but where there are no issues of remoteness,
formal care options because of the use of trained low or medium to high access is equally likely. These
carers, the structured nature of the care and also somewhat contradictory results may be due to varia-
because it avoids problematic issues within the family, tion within the catchment area of each programme, as,
which may impact on the care of the child. Other e.g. with pockets of higher disadvantage, and more
programmes intentionally avoid formal care options, outlying areas.
as they view them as not being ‘normal’ experiences
for children in kinship arrangements, and as inconsist-
The effect of the provision of respite care
ent with the goal of self-management.
When considering the data, it does appear that As Hartley (2008) noted, the understanding of respite
more of the programmes that actively seek respite care has evolved from being seen as a support for
options within the family’s kinship network reported a carers to having a focus on the benefits for both carers
higher rate of access to respite care. and the children in their care. The findings of this
Comments provided by respondents suggest that study suggest that although there is variation in how
other variation in outcomes may be a result of differ- respite is viewed, it is considered to be an effective
ent programme practices, such as how, when and what support for kinship families. It is also clear that there
information is given to carers and what questions are needs to be an individualized approach to ensure that
asked, and the application of programme criteria, such as the interests of both carers and children are consid-
considering respite only for families with sibling ered, and that ultimately the outcome is positive for
groups. Lack of common understanding of what consti- both.
tutes respite care, and what language can be used to
describe it, may also be of relevance.
Development of best practice in kinship respite care
Other possible factors that were raised by respond-
ents are structural or contextual ones, such as local The distinct nature of kinship care as an alternative
availability of respite options, and relationships care arrangement is now acknowledged (Cuddeback
between kinship and local foster care programmes. 2004; Aldgate & McIntosh 2006; McHugh 2009). In
Geographic or socio-economic factors also needed Victoria, as elsewhere, kinship practice has been devel-
to be considered, and a comparison was made of the oped using a foster care paradigm, which in many ways
17 programmes with regional catchments through the has proved not to be a ‘good fit’. In considering what
use of indicators of socio-economic disadvantage (Aus- would constitute optimal or best practice in kinship
tralian Bureau of Statistics 2006a,b) and ‘remoteness’ care, many comments were made by respondents
based on information from the 2006 Australian about the importance of early engagement with kinship
Census. The result is represented in Table 1. families and their supportive networks. This can be
The comparison made is somewhat inconclusive: It seen to be of particular relevance to kinship carers, who
would be almost equally likely to have low or medium are often disadvantaged, and may have assumed the
to high access to respite in a programme serving areas care of a child suddenly and without planning, and as a
of high disadvantage. However, for programmes in result of a critical incident in the family.
59 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
60 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd
Kinship respite care J Borenstein and P McNamara
Kiraly, M. (2011) Commentary: Kinship Care. Children Aus- O’Neill, C. (2011) Support in Kith and Kin Care: the experience
tralia, 36, 43–45. of carers. Children Australia, 36 (2), 88–89.
Lewis, P., Cash, S., McNamara, P., Bock, J., Halfpenny, N. & Ochiltree, G., McNamara, P. & Halfpenny, N. (2010) Respite
Wise, S. (2009) The Respite Care Project. National Alliance for Care: The Grass Roots of Prevention. Melbourne, Victoria:
the Prevention of Child Abuse and Neglect Conference, Perth, Respite Care Project Partners.
Western Australia, October 14–16. Smith, J.A. & Osborn, M. (2008) Interpretative phenomenologi-
Liamputtong, P. (ed.) (2010) Research Methods in Health. Oxford cal analysis. In: Qualitative Psychology: A Practical Guide to
University Press, South Melbourne, Victoria. Research Methods (ed. J.A. Smith), pp. 53–80. Sage Publica-
McHugh, M. (2009) A Framework of Practice for Implementing a tions, London, UK.
Kinship Care Program. Social Policy Research Centre, Univer- Sinclair, I., Baker, C., Lee, J.& Gibbs, L. (2007) The Pursuit of
sity of New South Wales, Sydney, Australia. Permanence: A Study of the English Child Care System. Jessica
McNamara, P. (2009) Respite care: its role in family preserva- Kingsley Publishers, London.
tion. International Association for Outcome-Based Research in Worrall, J. (2005) Grandparents and Other Relatives Raising Kin
Family and Children’s Services Seminar, St Catherine’s College, Children in Aotearoa/New Zealand. Report commissioned by
University of Oxford, UK, July 10–12. the Grandparents Raising Grandchildren Charitable Trust,
McNamara, P., Respite Care Project Consortium & Post Place- Auckland.
ment Support Service (2010a). Respite care and mirror
families: promoting child and carer wellbeing in Victoria, Aus-
tralia. In: Inside out: How Interventions in Child and Family Care
NOTES
Work: An International Sourcebook (eds E. Knorth, M. Kalver-
boer & J. Knot-Dickscheit), pp. 295–297. European Scientific 1 The Respite Care Consortium is a partnership of Victorian
Association for Research in Residential and Foster Care, organizations concerned with out-of-home care for children.
Groningen, Netherlands. September 22–25, ISBN 978-90- The current membership of the Consortium comprises:
441-2697-6. Good Shepherd Youth and Family Service, Berry Street
McNamara, P., Lewis, P., Carroll, R., Halfpenny, N., Elefsiniotis, Victoria, Anglicare Victoria, MacKillop Family Services,
J., Webster, M. et al. (2010b) Respite Care inVictoria: Findings of Victorian Aboriginal Child Care Agency (VACCA), Office
a Scoping Exercise. Australian Child Welfare Associations Con- of the Child Safety Commissioner-Victoria, Post-Placement
ference Sydney, August 5–8. Support Service, OzChild, Foster Care Association of
Nixon, P. (2007) Relatively Speaking: Developments in Research Victoria Inc. and La Trobe University School of Social Work
and Practice in Kinship Care. Research in Practice, Dartington. and Social Policy as academic partner.
O’Brien, J. (2001) Planned respite care: hope for families 2 Ethics approval to conduct this study was provided by the
under pressure. Australian Journal of Social Issues, 36 (1), Human Research Ethics Committee of Anglicare Victoria
51–65. (2011-02).
61 Child and Family Social Work 2015, 20, pp 50–61 © 2012 John Wiley & Sons Ltd