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Volume 2, Issue 7 February 2011

The mission of The UNC Dance Marathon is to unite the University, community and state in fostering emotional
and financial support that improves the quality of life for the patients, families and staff of N.C. Children’s Hospital.

Upcoming “I would rather die standing


Events
Feb. 3: Just Dance!:
than live on my knees!”
-– Emiliano Zapata
Join UNC-DM, BSM and
CHispA at Players from
10 p.m. to midnight.
$5 for under 21, $3 for
over.
Feb. 4: Dodgeball Tour-
What’s
Month? Up This
nament: Check-in at Not just for a cure, a kid or a block
4:45pm, tournament at
5pm in Fetzer Gym A. UNC-DM, Relay For Life and Habitat for Human-
Register online at ity teamed up for a collaborative fundraiser at
Kildare’s on Jan. 27.
Ashlyn Still
uncmarathon.org. $3
per person, 6 people See Page 2
per team.
Feb. 10: Date Auction:
Creaming the Crazies
UNC and N.C. State fans joined together at the
Presence in the Hospital
Bid at Players for a Jan. 29 basketball game to try to raise more than
At this month’s hospital social, patients and
chance at a date with Duke’s Crazies Who Care. families got to enjoy playing with UNC cheer-
campus celebrities. See Page 3 leaders, men's soccer players, baseball play-
Feb. 11: UNC-DM Day: Kid co-captain profiles ers and Rameses. Christian (above, right)
Support UNC-DM by Eighteen current and former patients at N.C. loved being with Rameses so much that he
visiting stores and res- Children’s Hospital will cheer on dancers at the
marathon. asked for Rameses to say “Hi” to him when-
taurants in Chapel Hill.
See Page 4-5 ever he left. When Rameses left for good,
Feb. 18-19: The 2011
UNC Dance Marathon:
Energizing the event Christian followed him out for one last hug.
Visit dancers, moral- Moralers and volunteers signed up to participate The athletes also visited all the rooms on the
ers, volunteers, kid in February’s marathon, taking on the vital task of 5th, 6th and 7th floors because many kids
co-captains, families keeping dancers pumped up. can't come to the Play Atrium. The patients
and committee mem- See Page 6
bers in Fetzer Gym and loved taking pictures with the athletes.
Summer fun for campers
witness the culmina-
tion and impact of the
2010-11 fundraising
A UNC-DM grant sponsors two pediatric endocrinol-
ogy patients to attend Camp Carolina Trails during
the summer.
For the Kids Story
efforts. Tommy was a previously healthy 16-month-
See Page 7
old who was thought to have a virus, but
Just keep breathing he in fact had a large brain mass. Tommy
Mexico is famous A grant sponsored by UNC-DM supports the Chil- had surgery and was hospitalized for more
for the Mexican dren’s Lung and Asthma Center at N.C. Children’s
than 20 days. Hospitalization was difficult
Hat Dance. It's Hospital.
See Page 8 both emotionally and financially for his fam-
usually performed
by two people A day for the kids ily. Tommy’s parents have other children at
with a sombrero. home and had to make many trips between
The town of Chapel Hill will officially recognize
The dance ends UNC-DM and its work at N.C. Children’s Hospital on home and N.C. Children’s Hospital. The For
with a clap and a Feb. 11. the Kids Fund provided them with a Walmart
shout of "Olé!" See Page 8 gift card and gas assistance.
February Newsletter
UNC-DM hosts a benefit night with Relay
For Life and Habitat for Humanity Hannah Harrill
Three of UNC-Chapel Hill’s big- many other Carolina students felt zations are working together because
gest fundraising groups teamed up the same!” said Sarah Beth Wilkison, they all touch a different part of
for a collaborative benefit dinner at overall coordinator for UNC-DM. campus yet have equally important
Kildare’s Irish Pub on Franklin Street All three groups recognized that service goals,” he said.
on Jan. 27. each one of their causes is important “This is a great way to get all stu-
The UNC Dance Marathon, Relay and necessary, and the event was dents involved in service. Essentially
For Life and Habitat for Humanity a tribute to the groups’ support for they are serving the community by
hosted a benefit dinner from 5 p.m. each other. doing something they would have
to 10 p.m. at Kildare’s. “This event isn’t just for a cure, it’s done anyways—eat dinner.”
Ten percent of the proceeds from not just for the kids, and it’s not just Students showed overwhelm-
those hours were split between the for a block,” said Kristel Harlacher, ing support for the three groups at
three organizations. UNC Relay For Life fundraising chair. Kildare’s, waiting an hour in a line
This was the first time that UNC- “We are uniting as one to make a dif- out the door to get in.
DM, Relay and Habitat have ever ference.” “I’m so glad we pursued this oppor-
come together for a benefit night. Will Thomason, a UNC junior who tunity to collaborate this year, and
This time, no one had to choose has been involved in all three organi- I hope to see the event continue to
which benefit night to support be- zations, said he was excited to see all grow and become a tradition,” Wilki-
cause choosing to eat at Kildare’s three groups team up. son said.
supported all three organizations. Thomason is a 2011 Relay For Life For more information on UNC Habi-
“I was incredibly excited about our team captain, 2011 UNC Dance Mara- tat for Humanity, visit studentorgs.
collaborative event with UNC Relay thon dancer and Build a Block con- unc.edu/habitat.
For Life and Habitat for Humanity, tributor. For more information on UNC Relay
and it was obvious at the event that “It’s cool that these three organi- For Life, visit www.uncrelay.org.

Fundraising with ‘Fido’


A chocolate lab puppy is auctioned
off at the 13th annual Benefit
Reception for UNC-DM, held at
the Franklin Hotel on Jan. 28. The
event included a live and silent auc-
tion, as well as a keynote speech
from Jessica Hill—the mother of
Kid Co-captain Ciana. Also in atten-
dance were Kid Co-captain Asheton
Ayotte’s parents, who won the
puppy.

Molly Sutherland
February Newsletter
Basketball fans compete with Duke
to raise money for the kids Emily Tracy

The Third Annual Smith Center


Children’s Challenge on Jan. 29 com-
bined two favorite pastimes at UNC:
raising money for N.C. Children’s
Hospital and beating Duke.
The goal of the event was to raise
$1 per person during the UNC men’s
basketball game against N.C. State
in the Dean E. Smith Center to raise
thousands for the hospital.
The event, sponsored by UNC Dance
Marathon, competes against the Emily Lucas
Crazies Who Care, who raise money
Rameses crowd-surfs in the Smith Center student section during the N.C. State men’s basket-
for Duke Children’s Hospital and the ball game, when UNC-DM committee members competed to raise more money than Duke.
Emily Krzyzewski Center.
The competition is to see which or- different from canning at other shortly thereafter on UNC-DM’s blog.
ganization can raise the most money events, like football games, because Bethany Nelson, Fundraising Proj-
by percentage for their respective the chance of beating Duke gives a ects committee chair, said the
hospitals. whole new sense of camaraderie to winner will be determined by the
“It is wonderful to see this com- the fundraising.” amount raised per person because
petitive spirit channeled into making Although fans were asked to give Duke can only raise funds in their
a huge impact on the patients and $1, many were donating more. student section. UNC-CH’s funds will
families of N.C. Children’s Hospi- Terry Smith, mother of a UNC grad- be calculated as dollars raised per
tal,” Overall Coordinator Sarah Beth uate, donated $2 to UNC-DM. attendee and Duke’s will be calcu-
Wilkison said. “I always donate to a good cause, lated as dollars per student.
Freshman Alyssa Patel said that but in this case, it was especially be- “In past years we have not really
raising money at the basketball cause I hate Duke,” Smith said. followed up with who has won the
game was easier than canning at The Crazies Who Care will be can- competition,” she said. “This year
football games in the fall. ning at their home game against N.C. there has been a huge increase in
“Everyone wants to beat Duke — State on Saturday. The winner of the publicity of the event so we are
even State fans,” Patel said. “It’s the competition will be announced planning on announcing the winner.”
February Newsletter
UNCDance Marathon Meet Your 2011
Kid Co-Captains
A laughing child and a crying parent,
Overwhelmed with joy, gratitude’s apparent.
One night is nothing in the span of our existence,
But lives are touched from our 24 hour persistence.
We rave, and dance and act like we’re on speed,
But by 4 a.m. it’s caffeine that we need.
Dance Marathon is much more than a night of no Best I Ever (Republic of) Chad
sleep, Name: Shayla
Age: 5
It’s passion, hard work and bonding with friends who About me: Shayla was a bone marrow
we keep. transplant patient at N.C.
Carolina is huge, with a ton of organizations to enjoy, Children’s Hospital. She likes
but joining DM’s better than spending a day with Roy. 1 iCarly, pink and purple, Jus-
tin Bieber and dancing.
It may be stressful or overwhelming throughout the
year,
But the kids put life into perspective – they’re just Drop it Drop it Low in Puerto
happy to be here. Rico
Whether it’s stuffing my face with mounds of ice Name: Tifany Gonzales
cream, 2
Or line dancing and singing like a crazy person to the
extreme,
Dance Marathon has my heart and it always will – Hungry
The number one spot on my favorites list it will for- Hungary Hippos
ever fill. Name: Colleen
3
The best part though, is not the golf tournament or
pit sitting, What a Feelin’
Nor standing on my feet for hours without quitting, in New Zealand
Nor mail drop, or canning or tacky holiday sprint, Name: Betzayda
Nor painting banners on Sunday in my best print.
Of course visits to the hospital and DRW are exciting,
And we are anticipating a potential Ellen sighting, 4
But it’s about the kids, for the kids, and kid inspired.
DM to me means love, a love that’s never tired –
Of course it’s an unexplainably crazy ride with unex- Italy’ve You
pected twists, Breathless
This is my Carolina experience – it’s why my love for Name: Nikaia
the school exists. 5
That last hour of the marathon makes everything
worth it, Oh Can I Dance
Name: Ashlynn
But so does a year of “backstage” work, I must admit. Age: 3
They say it’s your best one night stand, About me: Ashlynn’s favorite color is
But the meaning of this phrase I would like to expand. red and her favorite Disney
princess is Sleeping Beauty.
Forget about one night stand, DM’s about love.
6 She’s a typical middle child
It’s crazy, happy, determination and all of the above. who goes with the flow.
February Newsletter
Kenya Dig It? I Whip My Zaire Back ’n’
Name: Alexia Forth, We Israel Crunk
Age: 2 Name: Marquese
About me: Alexia’s mom says that she Age: 4
is a tomboy who prefers cars About me: Marquese has Leukemia and
over dolls. According to her has had two bone marrow
mom, she’s the “happiest transplants, and loves to
little girl in the world.”
7 15, 16 play with action figures.

Say My Nambia Team America, Haiti On Me


Name: Karolyne Haterz
Age: 10 Name: Name: Asheton
About me: Karolyne is from Clayton, Age: 10
N.C. She has severe asthma. About me: Asheton was born premature,
She loves singing, reading, weighing 1 pound, 5 ounces.
drawing and taking care of She plays the piano and loves
her pet fish.
8 17, 18 The Beatles.

Mambahamas, Don’t Stop Shake Your Tailfeather In


Belizin’ Turkey
Name: Sage Name: Ciana
Age: 6 Age: 5
About me: Sage has Cystic Fibrosis. He About me: Ciana likes pink and Mickey
loves boogie boarding, play- Mouse. She is dramatic and
ing the Nintendo Wii and do- creative, and loved getting
9,10
ing fast 360s on his tricycle. 19 letters from dancers last year!

Shake Djibouti Greece Lightning, We


Name: William
Age: 6 months
Groovin’ Per Usual
Name: Jack
About me: William has a rare genetic
Age: 7
disorder and doctors said
About me: Jack likes drawing and math.
he wouldn’t make it to 6
months, but he has! He loves His favorite part of last year’s
his purple monkey, and he marathon was talking to the
11 loves to smile and laugh! 20, 21 dancers while onstage!

Scott ’til You Drop Czech This Senior Class Out


Name: Abigail Name: Rachel
Age: 11 Age: 11
About me: When Abigail was born at About me: When Rachel was born at 26
26 weeks, she weighed 2 weeks, she weighed only 1
pounds, ½ ounce. Now she’s pound, 15 ounces. She reads
on a jump rope team and can every chance she gets. Rachel
do all sorts of things! takes jazz, tap and ballet!
12 22

Thunder From Down Under, Czech This Senior Class Out


Get Chile Name: Jake
Name: Emalie Age: 2
Age: 4 About me: Jake was born eight weeks
About me: Emalie loves SpongeBob early. He spent two weeks
SquarePants! She has Cystic in the Newborn Critical Care
Fibrosis. She loves to color, Unit. Jake loves to play with
13, 14 draw and ride her bike. blocks. He’s a true Tar Heel
23, 24 and loves football games!
February Newsletter

Ashlyn Still
Operations committee member Bobby Nieland stands in the Pit to recruit volunteers and moralers to support the 1,600 dancers at the marathon.

More than 500 students pledge to support


dancers at February’s marathon Victoria Cook
UNC Dance Marathon committee ment and enthusiasm to every hour dancing and going crazy.”
members took a stand once again in of the marathon, even as dancers The efforts and endless support of
the Pit last month to recruit more grow tired and sore,” she said in an last year’s moralers inspired junior
crucial participants in the upcoming e-mail. “The appreciation dancers Beth Thompson of the Fundraising
marathon. and committee members have for Projects committee to give back by
Moraler and Volunteer Recruitment the energy that moralers bring is im- signing up to morale for the 2011
Week began Jan. 18 and ended Jan. mense. UNC Dance Marathon.
21. “Volunteers are equally important “They kept coming up to me and
During this time, more than 500 to making sure that the marathon would help get my energy level back
students signed up to help at the runs smoothly and is enjoyable for up by reminding me of how great the
marathon, where 1,600 of their fel- the dancers. Although their role is UNC-DM cause was and how much my
low students have pledged to stand ‘behind-the-scenes’, volunteers are dancing meant to the kids who ben-
for 24 hours. so important to making this event efit from the fundraiser,” she said in
Moralers signed up to help keep the happen year after year.” an e-mail. “They really helped me
dancers pumped and excited in sev- Sophomore Ashton Songer was a remember why I decided to dance in
en-hour shifts. Volunteers signed up dancer at the marathon last year the first place.”
to help be the backbone of the mar- and said she really appreciated hav- There are still spots available, and
athon for three-hour shifts, where ing all of the moralers there. registration will remain open until
they will make sure that things are “I actually went to the marathon Friday, Feb. 5.
organized and run smoothly. sick as a dog but determined that I With the final recruitment process
UNC-DM Overall Coordinator Sarah was going to stick it out,” she said. being completed, Wilkison said she
Beth Wilkison said that moralers and “I kind of got better, I think with the is excited for the Marathon.
volunteers are crucial to the success adrenaline and just everyone coming “I cannot wait to celebrate with
of the marathon. in all the time to pump you up and everyone who has contributed to the
“Moralers help make this 24-hour do stuff. … It was the best when you 2011 UNC Dance Marathon all that
event the true celebration that it had the (moralers) come and in your we can accomplish together,” she
is meant to be by bringing excite- face and getting you excited and said.
February Newsletter
“Cha Cha Slide” with SLI
Mentors and mentees of the Schol-
ars’ Latino Initiative do the “Cha
Cha Slide” at the SLI Mini-Marathon
in Siler City, N.C. The Outreach
committee collaborated with
program participants to create an
event where the students learned
more about UNC-DM, danced, made
cards for kid co-captains and made
goody bags for dancers. The event
was a great start to a new relation-
ship between UNC-DM and a student
group.

Courtesy of Diana Iglesias

Spotlight Grant: Pediatric Endocrinology


Margot Pien

Summer camp makes lasting mem- tians to meet campers’ needs. patients and parents to make the
ories — swimming in the lake, play- “Many studies have shown that nominations.
ing games of Capture the Flag and diabetic children who participate in “I believe that participation in a di-
bonding with other campers. These diabetes camp feel that they have abetes camp gives children the con-
are staples of many children’s sum- a better support system and in turn fidence to act like other ‘healthy’
mer vacations. improve upon their own coping skills children in a setting where they
Unfortunately, for some patients and problem-solving skills in regards are no longer ‘different’ than their
and families at N.C. Children’s Hos- to their chronic disease process,” peers,” Jain said.
pital, tight finances make attending said Dr. Nina Jain, coordinator of the By being around other children suf-
camp impossible. grant. fering from diabetes, patients feel
But thanks to a grant provided by The UNC-DM Pediatric Endocrinol- a better sense of belonging and
the UNC Pediatric Endocrinology Di- ogy grant was created one year ago. can even see improvements in their
vision at the hospital and The UNC The camp scholarship is named af- medical lives, she said.
Dance Marathon, two diabetes pa- ter Mary Ann Morris, a pediatric en- “The emotional support and con-
tients were sponsored to attend docrinologist who has treated many fidence that they gain during that
Camp Carolina Trails this year. children in the Chapel Hill area, Jain experience generally translates to
The week-long overnight camp in said. improved self-management of their
the Sauratown Mountains in King, In past years, Jain said that prac- diabetes,” she said.
N.C., is run by the American Diabe- titioners and a division committee Kayleen Neer, one of the students
tes Association and offers its share have helped decide which children chosen to receive the grant this year,
of enjoyable sports and activities. from underprivileged homes should sent a letter to Jain after the camp,
About 150 boys and girls between receive the grant. where she said she made friends,
ages 9 and 17 attend. The committee chose children who had fun and ate great food.
Camp Carolina Trails offers typi- “had actively participated in their “Being with so many kids my age
cal camp activities and counselors, diabetes care and management and that are going through the same
along with a complete medical staff, would likely benefit from attending things as I am gave me a whole new
which includes pediatric endocri- a camp dedicated to children with outlook for my life and future,” Kay-
nologists, physician assistants, reg- diabetes,” Jain said. leen said. “I no longer feel so iso-
istered nurses and registered dieti- This year, the hospital staff will ask lated, alone, and misunderstood.”
February Newsletter
Spotlight Grant: Children’s Lung
and Asthma Center
Breathing is the most basic func-
Jeffrey Sullivan

py, (a method of assessing airways)


tion of life. Upon our entrance to handling more than 600 cases a year
this world, it is the first thing the — the most in the Southeast, Davis
doctors look for, and before we leave said.
this world, it is the last thing we try One way they are working to meet
to sustain. their goal of family-centered care is
This is a scary thought to a par- through the help of Lisa Stoltenberg,
ent who wakes up in the middle of asthma coordinator of the pediatric
the night with a child who cannot pulmonology division. Jeffrey Sullivan
breathe. Fortunately, for these par- A nurse for six years prior to com- Dr. Lisa Stoltenberg educates asthma patients.
ents, N.C. Children’s Hospital has re- ing to N.C. Children’s Hospital, Stol-
sources to help them. tenberg spends time with every fam- Notable Clinical Programs
The Children’s Lung and Asthma ily who passes through the center Cystic Fibrosis
Center, under the Division of Pediat- with asthma-related issues. Primary Ciliary Dyskinesia
ric Pulmonology, takes care of chil- Her primary mission is to educate Pediatric and Infant Lung Function
Laboratory
dren with lung diseases and disor- the parents and families of the chil-
Bronchoscopy
ders across North Carolina. dren.
Lung Transplantation
“(The center) is striving to improve “This really gives me an oppor- Airway Disorders
the care for children across the state tunity to explore a different side of Asthma/Allergy
by providing excellent clinical care nursing,” she said. “This side is more Technology Dependent Children
for children with respiratory diseas- about education.
es, as well as family-centered care The first year of Ms. Stoltenberg’s The Center’s current research projects are
and cutting-edge research,” said Dr. position was funded by a grant from in cystic fibrosis, primary ciliary dyskinesia,
Stephanie Davis, chief of pediatric UNC-DM. asthma and the effect of air pollutants on the
pulmonology. “Nurses are so busy on the floor,” lungs in children.
The center admits a lot of cystic she said. “This gives me the chance Multiple clinical trials are conducted in the
fibrosis and asthma-related cases. to give more to parents who’ve got- center. The clinical specialists are the lead
investigators nationally for many of these
They are also experts of bronchosco- ten very little previous education.” studies.

Chapel Hill to recognize UNC-DM’s efforts


Olivia Barrow accommodation and recognition.” committee heard about a UNC-DM
The largest student-run fundraising As part of the final push before week in Chapel Hill several years
organization at UNC-Chapel Hill now the marathon, UNC-DM is organizing ago and thought it would be an
has its own day in Chapel Hill. percentage days events at many event worth bringing back, but on a
The town will recognize The UNC of the town’s businesses on its smaller scale.
Dance Marathon and its work at N.C. designated day. “One of my committee members
Children’s Hospital on Friday, Feb. “We’ve lined up every restaurant took it upon themselves to e-mail
11, 2011, the day Chapel Hill Mayor in Chapel Hill to contact, and we’re the mayor, and they got a response,”
Mark Kleinschmidt has proclaimed going to see what comes of it,” said Outreach Chair Katie Dight.
UNC Dance Marathon Day. said Bethany Nelson, chair of the The Outreach committee then
“The UNC Dance Marathon provides Fundraising Projects committee. passed the project on to the
a great service locally,” said Mayoral “It’s going to be a big project, but it Fundraising Projects and Community
Aide Mark McCurry. “It’s a great could have a big reward.” Events committees, who will start
avenue for service for UNC students UNC-DM relies on local businesses talking to businesses this week about
to get involved to help those who are to join in the year-round fundraising the new opportunity.
most vulnerable in our community, effort and to help get the community “We do percentage nights once
which are our sick children. That’s involved. a month, but we’ve never done
something definitely worthy of A member of the Outreach something like this,” Nelson said.
February Newsletter
UNCDance Marathon thanks all of our sponsors for their generous
support in our efforts for N.C. Children’s
Hospital.

Aflac Chick-fil-A of University Mall Maitland Law Firm


All That JAS Cigna McIntee Fusaro &
Ben and Jerry's Curves of Carrboro Associates, PLLC
Blackhawk Hardware Delta Delta Delta Performance Porche
Cakes! By Abby Poeske The Franklin Hotel The Preserve at Jordan Lake
Carolina Athletic Golf Galaxy Saffron
Association Granville Towers Sherwin Williams
Carolina Dining Services Interfraternity Council Sigma Sigma Sigma
Chi Omega Kaplan Test Prep Vitamin Water
Chi Psi The Loop Pizza Grill The Warehouse Apartments

Next issue
Grant Spotlight: Beacon
Child and Family
Program
Marathon Results

* If you have any questions, comments or concerns contact 2011


Publicity Chair Rebecca Brenner at rbrenner@email.unc.edu

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