The Chromosome 18 Registry & Research Society

_____________________________________________________________________________________________

7155 Oakridge Dr. • San Antonio TX 78229 • 210-657-4968

office@chromosome18.org • www.chromosome18.org

Board of Directors Marsha Shields

President McCombs Foundation
Jannine D. Cody, Ph.D.
755 E. Mulberry Ave.
Vice President for
Member Relations Suite 600
Katie Bailey
San Antonio, TX 78212
Vice President for
Development
Liz Woodfield Dear Marsha,
Secretary
Dave Aldrup
For over 30 years, Chromosome 18 has benefited Texas, national, and international
Treasurer
John Drymala communities by helping people with chromosome 18 abnormalities overcome the
Regional Coordinators
obstacles they face so they can lead happy, healthy, and productive lives. We are
Great Lakes leading the world-wide effort to make chromosome 18 (c18) abnormalities the first
 Melanie Gorrell
Great Plains treatable chromosome condition. Our work at Chromosome 18 supports the only
 Kerry Connolly research center in the world, the Chromosome 18 Clinical Research Center (CRC),
Mid-Atlantic
 Mike Fudala dedicated to improving the lives of people with c18 conditions.
Northeast
 Jason Goodman
Northwest Chromosome 18 seeks to not only alleviate the symptoms of c18 conditions, but also
 Joy Wilson
Rocky Mountain
eliminate the problem at its roots. We achieve this through member services and
 Angie Moss research, which is now needed more than ever with the current COVID-19 crisis.
South Central
 OPEN Chromosome 18 provides invaluable support to members and their families, including
Southeast
 Kimberly Minor
distribution of valuable research information, maintenance of an exclusive social
Southwest network for patients, and preparation of community educational events and fundraisers.
 Tracy Stevens
Texas Region
Additionally, Chromosome 18 provides funding for the CRC. Research from the CRC
 Tam Aldrup has resulted in treatment options previously unavailable to c18 patients, such as growth
International Coordinators hormone therapy and numerous means of preventative care. Through research, we
Australia
 Tracey Healy
hope to make c18 the first treatable chromosome abnormality.
Canada
 Shelley Hunt
Europe
We are asking for $9,160 from McCombs Foundation for the purchase of two blood
 Bonnie McKerracher sample storage tank kits for the CRC. This one-time gift will ensure the safety of
Syndrome Coordinators research cells for many individuals, allowing us to gather information about these
Tetrasomy 18p
 Marie Primeau
conditions for future research and study.
18q-
 Kelly Collins
18p-
Attached to this letter is a copy of Chromosome 18’s IRS letter. If you have any
 Katharine Newman questions, please do not hesitate to contact the office by email at
Ring 18
 Tanis Nicholson office@chromosome18.org or by phone at (210) 657-4968.
Trisomy 18
 Judith Wolpert

Sibling Coordinator
Sincerely,
 Kendall Powell

Bereavement Coordinator
 Catherine Burzio Neale Parker
Self-Advocate Coordinator Executive Director
 Racine Ghiz