E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-03, Ser.

107-10 (Pd:01st Mar-30th Apr, 2020)

E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-05, Ser.107-10

(Pd:01st Mar-30th Apr, 2020)

(Information contained herein is for private circulation, to empower Persons with Intellectual
and Developmental Disabilities (PwIDDs) and their families
Editor: Col. Dr. VK Gautam, 09426446402,
Email: vkgautam13@rediffmail.com

PARIVAAR- NCPO, New Delhi

Regd Office Address: C-4/5, SDA, I floor, Opp. IIT Main Gate, New Delhi-110016.
Administrative Office: A-1, Green Acres CHS, Salunke Vihar Road, Pune 411048.
Registered: Under: The Societies Act, 1860 and Regn. No. 30635 of 1996.
FCRA No. Regd under the Foreign Contributory (Regs) Act, 1976- No.231660416.
Registered with NITI Aayog: UDI No. KA/2016/0098714022 of 13.07.2016.
Registered under the PD Act, 1995: Regn. No.022/ser. 251 dated 29.07.2016.
IT exemption for donation under Sec- 80G of the Income Tax Act, 1961.
Affiliated to Inclusion International as a full Member of II, since 2006.
Partner with CBM, Germany as a full Member of (CBM-SARO), since 2005.

Contacts Persons:
President: Cdr. Shrirang N Bijur (Retd.) -07387625555-Pune.
Immediate Past President: Col. Dr. VK Gautam-09426446402-Ahmedabad
General Secretary: Maj. Sudhakar Pillai- 09497166311, 0794359199, Kerala.
Treasurer: Mr. Bhanuprasad-Chauhan-0989820724-Gandhinagar (Gujarat)
E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-03, Ser.107-10 (Pd:01st Mar-30 th Apr, 2020)

0.1 Important Issues: Veterans of Parivaar, Families, Calamities, Condolence:

1 From the President’ Desk and Important up-dates Since E-Newsletter Serial 106, and
informative inputs (Parivaar veterans’ records and updated lists).
2 COVID-19 and Achievements & Accolades (Including Honours, Training and
Innovations).
3 Central Govt Issues; like of the National Trust, NIEPID Actions, and Parivaar
Circulars, and Common Important Information from various sources.
4 Internal Issues: Zone/State-wise News: NZ, CZ, WZ, SZ, EZ, and NE Zone.
5 CBM-SARO Partnership Activities, SAFI, and Health & Safety Related Issues.
6 ESCAP, Inclusion International (II) and International events including special
education and general education.
7 Summary or Important Dates/Actions in Hand.
8 Miscellaneous Aspects and food for thought with value additions
9 To conclude, followed by Appendices, Annexures and Picture Gallery

1.0 From the President’s Desk:

1.1 President’s Address:
Dear friends,
We the parents are the pillar of strength to our children with intellectual disabilities. We are also
the last straw of hope to our children as long as we live. This becomes truer at the time of crisis
such as during COVID19 times. But when it comes to us as a person, whom do we fall back
upon! Necessarily on the near & dears, friends and those who understand our concerns, worries
and pains. Therefore, keep that in mind and groom these relationships by sharing your joys and
fears.
Fortunately all kinds of electronic media and apps are available today to stay connected with
friends and dear ones. Besides our children love to communicate (in their own way) with familiar
faces. So let them be also part of this relationship building. They will become the central figure
in due time.
Our children are more vulnerable to COVID19 because of inborn inflections and weaker
immunity due to variety of practical reasons. Therefore, we have to take that extra care to NOT
get infected ourselves and also to isolate our children from community as much as possible,
during these lockdown days.
Boredom is something which is playing on both children and parents’ mind. Boredom is also
‘devil’s workshop’ in present circumstances. So how to keep self and children occupied. Most
of our children miss their daily routine with which they are so familiar and habituated. So make
a routine for the child, keeping all the freedom of activities for him, like his other siblings. Even
if it means some extra time on mobile or on the favourite serial repeatedly, allow it for COVID19
sake. We can indulge in those time consuming hobbies and reading for which we could never
spare time, or so did we thought. Let there be no regret on this count in future.
Finally, it is also time to re-discover the beautiful relationships that sometimes remain in
background due to our earlier hectic schedule. Time to work together, pray together, play
together and laugh together!
Wish you a safe and happy time, Shrirang Bijur
1.2 Video Conferences in Apr and May: Both the conferences of EC meet and SHG were
conducted by the President, wherein; 42 and 23 persons participated, respectively and found
very fruitful (Source: Bhanuprasad Chauhan).
1.3 Assorted Issues for Schools: Please see three files attached at Appendix- “A”, containing,
“opening of schools after COVID”, “ Lockdown relief”, and “availability of toolkit”
1.4 Archives (History of PARIVAAR): List of first EC is attached at Appendix- “A”
(Source: Col. VK Gautam)
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1.5 Status Quo of RPMs: This input may be the last one, till we get some approval. A brief
conduct/ cancellation of RPMs in your region is as below:
No. Place State Tentative dates
1 Secunderabad Telangana Suspended due to Corona
2 Madhubani-1st RPM Bihar 7-8th Dec, 2019(conducted successfully)
3 Dharamshala-held in abeyance Himachal Pradesh Suspended due to Corona
4 Banaras Uttar Pradesh Suspended due to Corona
5 Thiruvantapuram/ Kozikode-2 nd Kerala 28-29th Dec, 2019 (conducted
RPM successfully)
6 Kolkata West Bengal Suspended due to Corona
7 Kakinada/ Vizag Andhra Pradesh 03rd RPM at NEIPID
8 Mangalore/ Manipal Karnataka Suspended due to Corona
9 Nagaland th
28-29 Feb, 2020 (conducted successfully)
Kohima
10 Gangtok Sikkim Suspended due to Corona
Please Note:
1. As you know that due to COVID-19, all impending RPMs were cancelled.
2. We should not expect many RPMs this year as well, due financial constraints of the Govt and social
constraints.
3. There is likely that next NPM may be postponed but NOT cancelled.

2. Concerning COVID-19 and Achievements & Accolades (Including Honours,

Training and Innovations):
2.1 ABCD of COVID-19: Please see plate attached below. It would give a fundamental clarity
how to save yourself and others (Source: Col. VKGautam).

2.2 SOP in Hindi to fight COVID in Home: Please see 07 pages chart prepared to save yourself
and your wards- Refer Appendix- “B” attached (Source: Er. Pankaj Maru).

2.3 Guidelines to fight COVID-19 at Home: Collaborately, prepared guidelines for the PwDs at
home or school are attached worth 09 pages at Appendix- “B” (Source: Cdr SN Bijur).

2.4 Ministry of Labour and Employment (Govt Advisory) of 20th Mar, 2020: Govt. has advised
not to deduct salary of employees, due to COVID-19. Letter is attached at Appendix “B”.
E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-03, Ser.107-10 (Pd:01st Mar-30 th Apr, 2020)

2.5 Awards to Morvi’s Vijay Vyas at Bhopal: म दे श के भोपाल म तारीख:-22,23 फरवरी को " मीिडया महोस "
का आयोजन क ीय रा मं ी ी अजुन मे घवाल जी की अ तामे आ था. दे श के सभी रा ो के सं पादको,संचारक, लेखक, प कार
,िविश ने चौपाल म िह ा िलया था
गु जरात से मोरबी के डाउन िस ोम बालक "जय िवजय ास" उ -14 साल ने मॉडिलंग फोटो ाफी और फैशन के े म ितभा िदखाई ,
मन के सुंदर भावो से सबको श कर दीया, सिटिफकेट के साथ जय िवजय ास को स ािनत िकया गया (Source: Mr. Vyas, Morvi)

3. Central Govt Issues like of NIEPID Actions, The National Trust, Parivaar
Circulars and Common Important Information:

3.1 Home Bound Videos: NIEPID RC Kolkata has started preparing small 40 -60 seconds videos
on various activities and is being disseminated to CWSN through 26 WhatsApp groups. These small
capsules are being specially designed to keep them engaged during this critical time. Apart from a
Special Educator two specialist are also a part of this group. This mode of teaching learning method
is being widely accepted and appreciated by families. This is very interactive from both ends.
(Source: Cdr SN Bijur).

3.2 Renewal of 12A/80G by 31-August-2020 (R): Regarding renewal requirement has been passed
into law on 27-March-2020. Effective date is 1-June-2020. All NGOs/charities must file for renewal
of 12A/80G by 31-August-2020. If they don’t, they will no longer be exempt from tax or be able to
raise funds. Separately, proposed CSR Rules 2020 already exclude charitable trusts and societies
from accepting CSR funds.
All NGOs/Charities will be tied down to helping with the Corona crisis - they won’t have time
to push renewal papers at the Government.
At this point, the question is whether civil society should help in the fight against Corona Virus or
get tied down in filing for tax renewals?
You should, therefore, write and ask CBDT / MoF /PMO for deferral of the effective date. Please
also mention this to your MPs/MLAs, explaining how it distracts you from the Corona fight. Please
also share this with any religious trust/corporate foundations/ associations that you know.
It is likely the government will listen to you - several ministers, including the PM, have been
referring to need for Civil Society’s help over the last couple of days.
Questions, doubts? Pl write to us at query@developaid.org.
Certified counsellors (+91 97414 18103) will be available on the below numbers, to provide the
*counselling support to Persons with all kind of Disabilities (& their Parents), to mitigate anxiety
due to the Coronavirus Crisis*. (source: Uma Sharma-9869972078).

3.3 Latest Updated Theme and sub-theme for the RPMs/ NPM in Year 2020-21: It shall be
finalized soon by the Parivaar office in conjunction with NIEPID. You may suggest better
options, to him by mail or by any form of communication (Source: Cdr SN Bijur).

4. Internal Issues and Zone/State-wise News: Almost all the states and Parivaar affiliated units
had been active, throughout the COVID-1 Period but information was not disseminated. Hence, lets
activate in information sharing.
4.1North Zone:
4.1.1 Panjab: Two stories of COVID Fighters shall appear in next issue (Source: Mr Amarjit S
Anand)

4.2 Central Zone:

4.2.1 SNEH-Nagda: Recipient of Grant from LCIF-USA for PPE Kit: Grant worth 7.5 Lakh to
SNEH, received. See details at Appendix- “D” (Source: Dr. N. Christian).
4.2.2 During COVID-Initiative by Sarthak Kadam: Lockdown period म school के अनु भवी
teachers के मा म से ब ो को घर बैठे काय िदया िजसम उ ोंने drawing/ painting कर एक दू सरे ब ो को
E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-03, Ser.107-10 (Pd:01st Mar-30 th Apr, 2020)

े रत िकया और watsup के मा म से photo भेजे। और ब त से ब ो ने योगा/ ायाम कर अपने आप को

थ रखा। ू ल के छा ाओ ने घर के घरे लू काम कर घरवालो के कामो म हाथ बटाया । lockdown के
समय म special ब ो के माता िपता के िलए ब त किठन प र म का समय था उ ोंने ब ो को covid19 के
बारे म बताया और मा के बारे म जानकारी दी। ब ो ने भी समय समय पर साबुन से हाथ धो कर अपने को
सु रि त रखा। इस सहयोग के िलए साथक कदम सं थान सभी अिभभावकों को ध वाद् दे ती है ओर आशा
करती है की इसी तरह ब ो को जाग क रखे । हम ू ल के मा म से ब ो को summer workshop करा
कर उ घर बैठे busy और active रखने का यास कर रही है (Source: Sarthak Kadam Special needs
for special children, Sector 10, Bhilai (CG).

4.3 West Zone:

4.4 South Zone: Parivaar Kerala:
4.5 East Zone: Ranchi:
4.5.1 Ramgarh-EZ: 06 माच को भुवने र NISER सं थान म रा ीय स ेलन का आयोजन NISER के मा म
से आ I िजसके मु अितिथ के प म म संजीव कुमार झा और से एडवोकेट के पदािधकारी सुिमत अ वाल के
साथ सुदी ा भी उप थत थी I काय म शु आत करने से पहले हम सभी को तीक िच एवं अंग व से स ािनत
िकया गया I काय म के दौरान जटे शन के मा म से सुिमत और म जो कुछ जानका रया रखी सबों ने ब त ही
भािवत ए और सबों ने NISER के िनदे शक को पु नः आ ह िकया एक और ब त बड़ी काय म का आयोजन
NISER म िकया जाए I िजसम दू रदराज से भी यहां प ं चकर अ ी-अ ी जानका रयों का लाभ उठा सक Iब त ही
अ ी काय म रहीI मने सबों को मटस एवं से एडवोकेट िश क की जानका रयां दी और NISER म मटस
िश ण दो िदवसीय करवाया जाए ऐसी आ ह मेरी ीकार िकया गयाI अंत म मने महारा के ब यों ार फूल के
मा म से अमीर बनाने की जानका रयां उसकी वीिडयो सबों ने दे खा और ऐसी काय करने वाले सं था को सराहनीय
काय करने को कहा I इसी तरह से सभी जगह काय हो ऐसी अपनी बात रख Iध वाद (Source: Mrs Mala Jha)

5.CBM-SARO Partnership Activities, Health Safety and Common Welfare

Related Issues:
5.1 CBM-SARO: Latest details shall be sent in next issue after having received from Mr. Burde.

5.2 Miracle of ONION: A Report any MTC Chapter: In 1919, flu killed 40 million people.
A doctor visited the many farmers who had the attack to see if he could help them combat the flu.
Many of the farmers & their family had contracted the flu and many died. However, the doctor
came upon one farmer whose family was healthy and nobody in the house contracted the flu.
The doctor asked the farmer what he was doing that was different from the others. The farmer's
wife replied that she put an unpeeled onion in a dish and placed them in all the rooms in their house.
The doctor thought that could have been the cure so he asked for one of those onions. As he placed
it under the microscope, he found the flu virus in the onion. The onions obviously absorbed all the
bacteria and thereby kept the family healthy.
Now, I sent this story to a friend in Oregon who regularly contributes material to me on health
issues. She replied with this most interesting experience about onions: She said ' Thanks for the
reminder. I don't know about the farmer's story but, I do know that I myself got pneumonia and
became very ill. From my previous knowledge about onions, I cut both ends off an onion put it into
an empty jar, and place the jar next to myself overnight. By the morning, I began to feel better while
the onion became black.'
Lots of times when we have stomach problems, we don't know what to blame. Maybe the onions
that we ate earlier are to blame. Onions ABSORB BACTERIA and that is the reason why they are
so good at preventing us from getting *colds & flu* And for that very reason we should NOT eat
an onion that has been sitting for a time after it has been cut open.
Left over onions are poisonous. When food poisoning is reported, the first thing the officials look
for is whether the 'victim’ ate *ONIONS* and where those onions came from. Most probably the
*ONIONS, * are the cause. Onions are huge magnets for bacteria, especially uncooked ones.
E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-03, Ser.107-10 (Pd:01st Mar-30 th Apr, 2020)

Never ever keep a portion of sliced onion over a period of time and thereafter use it to prepare
food. It's not even safe if you put it in a zip-lock bag and placed it in your refrigerator. It is still
poisonous. Also, do not give onions to dogs. Their stomachs cannot metabolize onions.
Please remember it is dangerous to cut an onion and try to save it to cook with the next day, it
becomes highly poisonous for even a single night - as it creates toxic bacteria which causes
adverse stomach infections because of excess bile secretions and even food poisoning.
Let as many people as possible know this.
(Source: Prof. Bholanath Dutta, Founder & President: MTC Global)

6.0 ESCAP, Inclusion International (II) and International Events:

Please note: Though input about conferences being given but no need to do booking
or registration immediately. In another one year, these conferenes would ne Internet
based (WEB-INAR) and no physical movement required.
6.1 Inclusion International (II): Message of Support from our President: We know from
history that in times of crisis, people with intellectual disabilities and their families are at very
high risk of being isolated, abandoned and forgotten. They and their families are at risk of being
denied equal access to healthcare and support when they need them most.
We have already heard many such stories during the current COVID-19 crisis: One thing I
know for sure, is that people with intellectual disabilities and their families have a wealth of skills
and knowledge to help them through this crisis. We know how to survive if we have to without
much help from our communities or our governments. Our biggest strength is always our
connections to each other and our ability to make do with what we’ve got.

Most of the time, we focus on thriving. We have big goals, big ideas, big plans. These are
important but for now, we will focus on surviving. I know it is painful to practice social distancing
after so many years of being distanced by the community, but this time is different. This time,
everybody is doing it. This time, in order to be included, we must be secluded.
Be gentle with yourselves. Try to find the moments in your day to show each other how much love
is in your heart, even if you don’t have words. Who in your network is lonely? How can you connect
with them to tell them they matter to you? If you use social media, it is a good tool to let others
know how you are doing or to share your methods of coping. Be honest about your feelings. You
can say, “I am lonely. I am sad. I am afraid.” We will not give in to anger. Instead, let us say “I
am strong. I am OK.” Or we can ask, “Who needs encouragement? Who needs help?”
If I had to choose one community to depend on to show courage in the face of adversity, it would
be ours. That is how we work,
With love, Sue Swenson, President, Inclusion International.

Inclusion International's network is working to respond:

We are calling on Governments, healthcare providers, emergency workers, friends and neighbours
to remember those who are the most vulnerable in our communities.
Our global network is mobilising to create resources and provide support in their countries and
communities to help make information available in accessible formats, ensuring that people have
access to the support they need.
Inclusion International is collecting and sharing the resources that our members have developed.
To share resources or find what you need to help reach people with intellectual disabilities please
go to our website: inclusion-international.org/coronavirus.
6.2 Concern by II for the PwDs: We know from history that in times of crisis, people with
intellectual disabilities and their families are at very high risk of being isolated, abandoned and
forgotten. People with intellectual disabilities and their families are at risk of being denied equal
access to health care and supports when they need them most. See details at Appendix- “F”.
E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-03, Ser.107-10 (Pd:01st Mar-30 th Apr, 2020)

7. Summary or Important Major Dates/Actions in Hand:

Dates Main Event Zone-Place or Remarks
Appointment
5-6 th Sep, 27 th NPM SZ-Kerala Maj. Dates may
2020 Sudhakar Pillai change
14-18 t h Inclusion International's General Sharjah, United
Nov, 2020 Assembly & World Down Arab Emirates
Syndrome Congress
13 t h Dec, International conference VIPSAR, *Application for award can be
2020 Three awards instituted two Indore sent by 30 th Nov, 2020 to Col.
for academics and one for Gautam (Only NZ, EZ, NEZ
social works*. eligible)

8. Miscellaneous Aspects including Food for Thought with Value addition:

8.1 Circulation of E- Newsletter for Awareness: It is appealed to all readers of this
“e-Newsletter in the form of a bulletin” to share the relevant cases, success stories,
news, events by/for/of the PwIDDs. So that we share with the beneficiaries or well-
wishers across the Globe. This would help us to report in this fortnightly bulletin.
Deadline for inputs, for the next ‘Issue Serial 111 is 28 th May, 2020.
8.2 Gratitude from the Editor: With special and humble thanks to all, those who are
passing information.

9. To conclude:
9.1 Wishing you all the best in your personal, social and profession life (As three
spokes of life cycle to maintain a perfect balance).
9.2 Wishing a healthy & happy life and may God protect you from COVID-19.
Sd/=
(Col. (Veteran) Dr. V K Gautam)
Editor
As on 30 t h Apr and dispatched/ released on 16 th May, 2020
Live long PARIVAAR!
“let’s join hands for intimate camaraderie amongst us”!
Appendices A, B & C
Appendix- “A” Archives: Oldest EC of
PARIVAAR-NFPO

110F Archives-oldest EC of NFPO-Parivaar.zip

Appendix- “A” Appendix- “B”

What to do in Lockdown, Aftermath and Kit Union Govt.’s Advisory
Available
108F-appec-B- govt advisory.zip
110F-1-appex-A COVID-19.zip

Appendix “B”: Guidelines Collaboratory Appendix- “B”

by CDMRP + NIEPID SOP to fight COVID-19 in Hindi

110F appex-B-covid_19 guidelines by CDMRP.zip 110F-appex-B-SOP Covid _19_for_Home_hindi.zip

E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-03, Ser.107-10 (Pd:01st Mar-30 th Apr, 2020)

Appendix- “C” Appendix- “C” Pictures of NISER

List of counsellors of NIEPID workshop Bhubaneshwar 0603.2020

110F-Appex -C-Psy counselling NIEPID.zip 107-picture gallery of NISER 6th mar.zip

Appendix- “C” Appendix- “C”

Advisory by MSJE for Senior citizens How handles PwIDDs during Corona
to fight Corona w/o rona by Dr. Ravi from NIEPID

109F-appex-C advisory 4 SC above 60 to fight Corona .zip 108F-3 Appendix-C-Dr. Ravi prasad-NIMH.zip

Appencdices D, E, F

Appendix- “D” Appendix- “F” Concern of II for PwDs

LCIF Grant for PPE Kit to SNEH
108F-II-appex-F- 4th Apr.zip
110F-appex-D- SNEH-LCIF Grant 7.5L.zip

Pictures Gallery
E-Newsletter, Parivaar-NCPO, New Delhi, Vol.-VI, Issue-03, Ser.107-10 (Pd:01st Mar-30 th Apr, 2020)