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Thank you.
I thought it would be helpful to have a thread about the doctors who really know LPR and who have been the most useful to us.
Just list the name and city and state of any doctors that you would like to recommend to others in this community. Feel free to tell us why.
Philadelphia, Pennsylvania:
Dr. Sataloff - Have not been to him specifically, but have seen his partner who is just as good. I believe the practice was started by Sataloff, and
just yesterday had another doctor tell me that Satalof is known for being an ENT, but thinking like a gastroenterologist (or thinks he is a
gastroenterologist). Whatever he said, that's the kind of doctor an LPR patient needs. Huge reputation. 90% of practice is laryngeal patients.
Dr. Karen Lyons (Dr. Sataloff's partner). Used to practice surgery, but now does office visits only. Wonderful, compassionate, thorough, and
gives you lots of time. Terrific doctor in every way. Knows LPR inside and out.
Dr. David Katzka (UPENN Gastroenterologist): Considered to be very conservative (does not push surgery) and is very easy to talk to. Is a
gastro, but I believe he's in charge of the UPENN Swallowing Center. Only problem is getting in to see him - if you have an immediate problem,
he's not available. The wait is typically 2-5 months for an appointment unless you keep calling daily to inquire about cancellations.
New York City:
Dr. Anthony Jahn - ENT, I thought he is pretty good - well known for working with singers and he advocates alternative therapties like
accupuncture along with PPIs for LPR. I only saw him once, but if you have United Health Care, like me, and can't get in to see any of the other
top LPR docs, he may be one of your best choices.
New Haven, CT:
Eugenia Vining - Wonderful lady who I belive was also president of the Connecticut ENT Association. She was the first to diagnose my LPR and
recommended the right medicatiion right off the bat. There's a long wait for appointments with her.
In addition, I have the following names have come up repeatedly in my search for an LPR doctor:
1. Dr. Michael Goldrich, Edison/Highland Park, NJ. Recommended by Westminster Choir College in Princeton for students with voice problems.
The only doctor I've found in central Jersey who regularaly sees LPR patients, but doesn't accept my insurance.
2. Dr. Peak Woo, NYC, Also recommended by Westminster Choir College. Listed in Top Doctors. Ran the laryngeal neuropathy study I
discussed in another thread.
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Hey!
I'm currently taking pills for acid reflux...originally I went to the doctor about a reoccurring sore throat and, after having a look, he said that it was
from acid reflux. Just wondering, can acid reflux cause chest pains as well? I've been having this constant ache-like pain in my chest for a while
now...it's not burny or sharp though, like I would expect it would be if it were caused by acid reflux. It helps most when I take deep breathes. Has
anyone else experienced this kind of pain?
Thanks.
Hi All,
I am new to this board, and this seems to be an excellent place to get some advice. Right now, I am in need of one.
I was diagnosed with LPR 3 years back. I used medications (prevacid) for 6 months and after feeling better, I stopped ( after reading all the
negative side effects of PPIs).
I wanted to control reflux naturally, and started being very strict on my diet. Since then, in the past 2 years, my symptoms have been pretty much
the same..primarily Weak voice (though much better than 3 yrs back), on-and-off difficulty with taking deep breaths, little burping immediately
after meals (which is not too uncomfortable and I started to live with it). They have neither aggrevated nor subsided in the past 2 years.
I feel I am controlling it pretty well for the moment, but I lost a lot of my weight. I used to be 130 lbs 3 yrs back, but now I am 115 for a 24 yr old
and 5'7" guy. My friends tell that I look extremely thin.
So I decided to gain back some of my weight. I noticed that I have been taking only around 1300-1350 calories before, as my diet used to
constitute a lot of fruits which are low calories. I have now increased my calorie intake to 1700 calories per day.
I am very watchful of my diet still. I have completely avoided tea,coffee,soda,beer,alcohol,tomato,raw onion (though I do mix it with other
vegetables, stir-fry and then cook it before eating). I am a eggeterian. I limited high-fat and deep fried foods by almost 95%.
I eat 5 times daily. This is what I am eating more or less in a day now.
whole grain bread (4 slices), cereal, 1% fat milk,1 large banana, 6-7 crackers, 1 honey N oat bar, brown rice with some cooked vegetables (salt
and pepper added), 3 egg whites, goat protein powder mixed with water, soy meat balls, 1 full apple and may be 2 litres of water.
I want to know how many calories,a typical Gerd/LPR suferer takes on an average. Am I eating too much?
I dont want to be under-weight and dont want to use meds either. Is eating 1700 cal/day ok for a gerd/lpr patient? It would be great if people can
post how many calories they consume per day..
I am little concerned that this increase in my daily calorie intake (by about 350 cal) might increase the acid reflux. It is very difficult for me to judge
as I do not get any heartburn or any pain. I am just the same way as I have been 2 yrs back.
Can any one give me a proper advice on this? Any help would be greatly appreciated.
Thanks,
Shourin
can acid reflux cause shortness of breath even when you are not eating
I have taken Aciphex, 20 mg 1x/day for a good 8 years with no problems. When I think back the only side effects I had were
more than normal headaches (nothing I couldn't live with) and eczema (which I believe is due to the low acid...not necessarily a side effect).
Without going into a long story, for the past six months I've been on and off the pill. I want to get off it for good and I have an appt. with a
Naturopathic Doctor next month which I'm hoping will help me. Recently I've had a Barium Swallow (no stricture, no other findings), blood test
and biopsy for H Pylori (negative) and an EGD which showed "completely normal", as GI doc put it.
My problem is every time I try to go back to the Aciphex I seem to get gas pains and other abdominal pains. I need to do something at least for
the next two weeks as I'm going on vacation next week and don't want to suffer. When I don't take anything and use some natural alternatives I
have a lot of post nasal drainage and feel like someone is squeezing my throat along with the burning (which I must say is managable).
I'm not sure if I should stick it out for the next 6 days and hope the pains subside as I get back to my regimen or go without. Am I not giving my
body time to adjust to these pills as I'm constantly on & off them? Thoughts, anyone?
Okay, sorry this is long.I have been in and out of ER and doctors office with these problems for the last 2 yrs.I had heartburn
awful palps pain in arm etc.Was told I had acid reflux .I have left jobs and husband told be to stay home because I would have attacks so
bad.Went to a new dr.2 yrs ago just to be on safe side she recoomended me a cautherization to look at my heart and they said it looked perfectly
normal no blockages etc.She put me on nerve pill,depression pill,acid reflux pill .and a pill for palpatations which she said asnt the dangerous
kind. Well felt great went back to work ater 2 yrs of this mess had a person there who gave me a hard time and i quit.Came hate supper and
heartburn started along wth palps high anxiety feeng in middle of chest,left arm hurting anxiety happens so quick its like my breath taken away
for second.Especially when i eat it just sits i belch and feel sick esp bad taste and lava.I'm afraid with anxiety feeling in center of chest I'm having
a heart attack.Went to dr today she said if youve been feeling this way for a couple days but it goes away till you eat and you do normal stuff its
acid reflux.She said i know you had the cauthezation 2 yrs ago but with all those test your heart is healthy and your not having a heartattack.Can
somone tell me you've went through all this.Is dr right saying even if its been 2 yrs your test said your fine and you are.Thanks for lstening Anne
I was curious to find out how many of you that take a prescription or over-the-counter PPI (proton pump inhibitor) experience or
do the following things.
1) have daily heartburn symptoms
2) take nonprescription anti-acid medications to help relieve symptoms
3) have other health issues aside from GERD/acid reflux disease that are related to the use of a PPI
4) have side effects from using a PPI
5) have switched PPI's because the other one became ineffective
6) use an H2 blocker in conjunction with a PPI
7) have used a PPI for longer than the listed product treatment (4 to 8 weeks)
8) have anxiety or depression after or while on a PPI
Thanks for your replies.
~Don
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