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a good
assessment
of capacity?
GUIDANCE
May 2019
AUTHORS
D R G E M M A G R AY
A N N A B E L P O AT E - J O Y N E R
DR SUSAN FERRY
DR SHAI BETTERIDGE
DR STEPHANIE HILL
DR GARY MACPHERSON
DR THERESA JOYCE
DR SONJA SOETERIK
D R A L I C E C A M P B E L L R E AY
DR GABY PARKER
DR NICK TODD
DR JANICE MACKENZIE
DR DON BRECHIN
SUNARIKA SAHOTA
Policy Administrator
3. Pre-assessment preparations 12
5. Equality considerations 22
References 37
Mood 39
Learning or intellectual disability/cognitive impairment 39
Lack of knowledge of the necessary procedure 39
Cognitive decline due to a neuro-generative disease such as dementia 40
Case example: Severe brain injury and capacity to consent to a package of care 41
Case example: Learning disability and capacity to make a medical decision 44
Case example: Capacity to litigate 46
Case example: Capacity to use social media 48
3
What makes a good assessment of capacity?
4
What makes a good assessment of capacity?
1. Introduction
INTRODUCTION
IN T RODUC T ION 1. Introduction
1.1 This document sets out to inform and 1.4 This document is the culmination of a
support psychologists to make informed, consensus which has developed since
sound clinical judgements and decisions the implementation of the MCA 2005
across a range of sometimes very in England and Wales, itself drawing on
different situations where a client’s Scottish experiences, including clinical
capacity to make their own decisions practice and experience, research
is being questioned. Often, MCA studies and case law.
assessments will be straightforward but
1.5 The document’s structure follows the
there are examples across both health
chronological flow of a considered
and social care situations where the
approach to assessment. It starts with
questions and issues are complex.
an overview of the current legal context,
1.2 This document updates previous followed by necessary preparatory
guidance published in April 2006: steps and aspects of completing a
Assessment of Capacity in Adults: Interim best practice assessment (including
Guidance for Psychologists. At that time, consideration of the use of psychometric
the Mental Capacity Act 2005 (covering inventories) before drawing together
England and Wales) had recently received the threads of information collected
royal assent, being implemented from and forming defensible, balanced, well
2007 assisted by the Code of Practice evidenced opinions, conclusions and
published the same year. (Deprivation of recommendations.
Liberty Standards were also included via
1.6 MCA assessments are individual and,
the Mental Health Act 2007.) The Adults
whilst common themes can be identified
with Incapacity (Scotland) Act received
as helpful guidance, each case must be
royal assent in May 2000. In Northern
determined on its individual facts. Case
Ireland, recent legislation has resulted
examples are illustrative only and further
in the Mental Capacity Act (Northern
examples will be available on the Society
Ireland) 2016 which recognises the
website. Following the principles set out in
interface between mental capacity and
this document will provide psychologists
mental health assessments as well as
with both direction and guidance as to how
incorporating criminal justice provisions.
to complete good practice assessments
In England & Wales on 1 December, the
as well as enabling confidence in
Court of Protection (2017) rules and
decision-making which is appropriate,
accompanying Practice Directions came
proportionate, fair and balanced.
into force.
1.7 Existing guidelines which psychologists
1.3 Individual jurisdictions may require
should be aware of in terms of general
tailored, local guidance in terms of the
good practice and professional
development of case law. This document
responsibilities include, but are not
sets out broad principles covering best
limited to:
practice that are applicable across all
jurisdictions. It relates to individuals a. BPS Practice Guidelines.
aged 16 years and over. Throughout this b. HCPC: Standards of Proficiency for
document, where case law or legislation Practitioner Psychologists.
is quoted ‘P’ refers to the individual c. HCPC: Standards of Conduct,
being assessed. Performance and Ethics.
6
What makes a good assessment of capacity?
IN T RODUC T ION
1.8 All HCPC registered psychologists 1.9 The Mental Capacity Advisory Group
can complete MCA assessments. recognises particular complexity around
Psychologists should be mindful decisions relating to sexual relations
of their individual experience and and intimacy which is addressed in a
knowledge, ensuring they act within separate document (Capacity to Consent
their competencies as well as within to Sexual Relations, 2019).
codes of conduct at all times. Although
1.10 The field of mental capacity remains
MCA assessments require additional
complex and subject to further review.
considerations and, often, knowledge,
The Mental Capacity Amendment
psychologists have skills that are
Bill is going through parliament at
also relevant to MCA assessments.
the time of writing which will have
Psychologists are aware of the need
an effect on legislation and practice
for good data collection, transparent
in relation to Deprivation of Liberty
decision-making, acknowledging
Safeguards (DoLS).
any limits of expertise related to the
assessment process, and providing a
balanced analysis.
7
What makes a good assessment of capacity?
2. The legal context
THE LEGAL CONTEXT
2. The legal context
T HE L EG A L CONT E X T
2.1 A person’s ability to make decisions e. Before the act is done, or the
for themselves is particularly pertinent decision is made, regard must
when these decisions affect their rights be had to whether the purpose
over where to live, whether and with for which it is needed can be as
whom to engage in sexual relations, effectively achieved in a way that is
consent to or refusal of medical less restrictive of the person’s rights
treatment and testamentary decisions. and freedom of action.
Acknowledging the flaws of human
2.4 These principles aim to protect
beings, the right to make unwise and
individuals’ rights and help them
even life threatening decisions has also
to have as much input as possible
been upheld and protected in law.
into decisions that will affect them.
2.2 There is also a history of these important The Court of Protection (2017)
life decisions being made on behalf of rules strengthen this principle of
others, mainly within what was seen as assisting P to be more involved in
paternalistic interventions (epitomised processes about him/her as much as
within the field of those with intellectual they are able. All reasonable efforts
impairments and/or individuals suffering must be made to help individuals
from serious mental illness) or where make decisions including ensuring
this was necessary (as for those suffering they have all necessary information
acute or chronic physical conditions provided in an appropriate format, with
affecting consciousness). appropriate advice and support, and
have had time to process this; help with
2.3 The legal framework in England and
communicating their decision may also
Wales is clearly set out within the MCA
be required. Location, timing and the
2005 and summarised within the Code
process of the assessment are therefore
of Practice 2017. The five statutory
all relevant. In emergency situations,
principles are now well established
immediate decisions may need to be
across all jurisdictions:
made but always under the rubric of the
a. A person must be assumed to have individual’s best interests.
capacity unless it is established
that they lack capacity. 2.5 A person lacks capacity in relation
to a matter if, at the material time,
b. A person is not to be treated as
they are unable to make a decision for
unable to make a decision unless all
themselves in relation to the matter
practicable steps to help them to do
because of an impairment of, or
so have been taken without success.
disturbance in, the functioning of the
c. A person is not to be treated
mind or brain. A decision regarding
as unable to make a decision
capacity cannot be made simply on a
merely because they make an
person’s age, appearance, assumptions
unwise decision.
about their condition or any aspect of
d. An act done, or decision made, their behaviour (e.g. overt mannerisms
under the Act for or on behalf or avoiding eye contact).
of a person who lacks capacity
must be done, or made, in their 2.6 The MCA requires a two stage test in the
best interests. assessment of capacity:
9
What makes a good assessment of capacity?
i. The diagnostic arm determines decision to be made (referred to in
T HE L EG A L CONT E X T whether there is an impairment of the Act as ‘relevant information’)
mind or brain. i.e. the nature of the decision, the
ii. The functional arm determines reason why it is needed and the
whether the person has the capacity likely outcomes of determining one
to make a particular decision. way or another. A person does not
need to know everything, only the
2.7 It is important to be aware that the salient details (LBL v RYJ [2010]
diagnostic arm of the test does not EWHC 2664 (fam) Macur J at
equate to a necessity to make a formal [24 & 58]).
diagnosis of a particular disorder. Where
b. The individual is unable to retain
there may be ambiguity about whether
the relevant information for long
symptoms or criteria fall within the remit
enough even with the assistance
of the MCA, this will require additional
of visual or other aids as required.
discussion within the clinical team or,
Information need not be retained for
if within the court arena, a ruling by
long, only long enough to apply the
the court. It is important to ensure that
information to the decision.
decisions and their rationale are clearly
c. The individual is unable to use that
set out so the decision-making process
information as part of a decision-
is clear. The document, A Brief Guide
making process i.e. an ability to use
to Carrying out Capacity Assessments
and weigh relevant information in
(November 2017) published by Essex
order to come to a decision. This
Street Chambers is a useful guide.
has been described as an ability to
2.8 Capacity relates to a specific decision engage with the decision-making
(PC v City of York Council [2014] 2 process and know how various
WLR 1 at [35]) at a specific time (CC parts of the decision relate one to
v KK & STCC [2012] EWCOP 2136 another (PCT v P, AH and the Local
per Bajer J at [20]). Evidence of lack Authority [2009] COPLR Con Vol
of capacity in one area cannot be used 956 per Hedley J at [35]). Again,
to determine capacity in another area, it is only necessary to be able to
and neither does it relate to ability to weigh the salient information (CC
make decisions generally (Kings college v KK & STCC [2012] EWHC 2136
Hospitals Foundation Trust v C [2015] (COP) per Baker J at [69]). This
EWCOP 80 per MacDonald at [26]). must be differentiated from an
Assessors should be mindful of not over- individual weighing information and
generalising findings e.g. inability to still coming to what others consider
make complex financial decisions should to be an unwise decision; a person
not prevent a person maintaining choice should be able to make the same
over simple, daily purchases. mistakes as others (R v Cooper
[2009] 1 WLR 1786 at [13]). (See
2.9 A functional test approach is used
also paragraph 2.12, page 4.).
to assess capacity as required by
d. The individual is unable to
the Act, whereby an individual is
communicate their decision by
deemed incapable to make a specific
whatever means.
decision if any of the following criteria
are met (it is not necessary for all
conditions to be met):
a. The individual is unable to
understand information about the
10
What makes a good assessment of capacity?
2.10 It is important to consider that any to demonstrate either an ability to use
T HE L EG A L CONT E X T
identified limitation in capacity must be or to weigh information). The current
because of the identified impairment in position of the Official Solicitor is that
the mind or the brain, thus establishing it is conjunctive1 i.e. unable to use
a direct causal nexus between the and weigh the information, although a
diagnostic and functional arms of the number of eminent legal practitioners
capacity test. If a client does exhibit have also argued for a disjunctive use
deficits in any of the above areas but and, therefore, best practice would
this is attributable to another cause, indicate that the psychologist have this
this must be stated or, equally, if the distinction in mind when assessing this
causation is multiply determined, arm of the test and, if the client is found
this too needs stipulating so it is able in relation to one of the two aspects
clear on what basis decisions about only, to state this within their report so
capacity are made. the position is clear and third parties
can make informed decisions.
2.11 It is important to bear in mind that any
of the above limitations must be after 2.15 Psychologists are not expected to
sufficient attempts have been made be experts in the law, however, good
to assist the individual in meeting the practice indicates they should be
criteria if initial deficits are identified. familiar with case law relevant to the
For guidance on practical solutions area(s) being assessed. For example,
to assist with increasing capacity Banks v Goodfellow (1870) is still
see Appendix B. relevant for what reasonable information
an individual needs to know to be
2.12 If identified as present, loss of capacity
capacitous to make a will, whilst
should be stipulated whether it is partial
Masterman-Lister v Brutton & Co
or total, temporary or permanent or likely
and Jewell & Home Counties Dairies
to fluctuate over time.
[2003] relates to capacity to litigate.
2.13 Whereas there is a presumption of However, there is not relevant case law
capacity unless a concern is raised in all areas where capacity to make
(described as a ‘reasonable belief’), decisions requires testing and, in these
decisions regarding lack of capacity are situations, it is useful for reports to
on the balance of probabilities. Within set out what information has been
Court proceedings, the burden of proof considered relevant and necessary in
rests with the party raising P’s possible each particular area in order to ensure
incapacity. It is not for P to prove they open and transparent reporting.
are capable.
2.16 This document cannot identify all
2.14 There are some differences of legal relevant case law and psychologists
opinion in relation to the client’s must bear in mind their professional
ability to use and weigh information responsibility to have a sufficient
as part of a decision-making process knowledge of the relevant areas where
and whether this should be read they have agreed to undertake a MCA
as conjunctive (the client needs to assessment. Useful online resources
demonstrate both an ability to use and exist which psychologists may
to weigh) or disjunctive (they only need find useful such as
www.mentalhealthlaw.co.uk
1
Use or Weigh? Or Use and Weigh? A response by Alasdair Pitbaldo, the Official Solicitor to the courts, 39 Essex
Chambers, Mental Capacity Law Newsletter, February 2016, p12. See also: Kings College Hospital NHS Foundation
Trust v C and V [2015] EWCOP 80, as per MacDonald J, para. 35
11
What makes a good assessment of capacity?
PR E-A SSESSMENT PR EPA R ATIONS
3. Pre-assessment preparations
3. Pre-assessment preparations
13
What makes a good assessment of capacity?
COMPLETING AN ASSESSMENT
4. Completing an assessment
of capacity
OF CAPACIT Y
4. Completing an assessment of capacity
15
What makes a good assessment of capacity?
be completed relatively quickly and in a parties within the overall assessment of
COMPL E T ING A N A SSES SMENT OF CA PACIT Y single session. capacity to provide broader information
and examples of either where capacity
4.6 Psychologists must ensure that
is evident or where it is not. Relevant
sufficient time is allocated to complex
information to be obtained from third
assessments, particularly where
parties will vary considerably dependent
clients may be difficult to engage and/
on the nature of the relationships and
or where there are multiple issues
the overall context but the following are
to discuss. Sufficient time must be
generic guidelines:
allowed to explore the areas thoroughly
• General feedback of the client’s
with the client, allowing them time
usual presentation and overall
and opportunity to demonstrate their
situation relating to their living
capacity (where they are able to do so),
environment, daily living skills and
within the context of an appropriate
level of independent functioning and
relationship being made (where this
any support needs.
does not already exist) and where
contrary information obtained can be • Information supporting or negating
clarified and tested out with the client. the diagnostic part of the test i.e. an
It is best practice to complete an impairment in the functioning of the
assessment over two sessions to give mind or the brain.
the client time to process and consider • Examples related to each of the
information discussed; this time also functional arms of the test in terms
gives the assessor time to reflect and of the client’s ability to recall
determine where to focus attention to information and use and weigh it
clarify matters relating to capacity at the when considering their options.
next session. Multiple sessions may not • Advice regarding any additional
always be possible or feasible but should factors that may influence capacity
be aimed for. such as mood.
4.7 Robust decision-making, particularly 4.9 Case law (WBC v Z [2016] EWCOP 4)
in complex areas, requires robust data has highlighted the limitations of capacity
collection with information gathered reports based on collations of discussions
from multiple sources where possible. with clients; the judgement set out why
What information is required will vary verbatim quotes are more beneficial in
depending upon the matter under providing third parties (in this case the
consideration but it is important to seek, Court of Protection) with a more nuanced,
where possible, additional evidence to detailed and individual picture of exactly
support or negate the client’s direct why a client has or lacks capacity.
communications through third parties Therefore, as good practice within all
familiar with the client or other written capacity assessments, psychologists
documentation. It is unwise to rely should consider making clear records
totally on direct accounts from the of their assessment including, but not
client; where this is unavoidable due limited to, the following:
to external constraints, this limitation
• When interviews were conducted:
should be described and any potential
date, venue, start and finish times.
impact on the outcome explained in
• Who was present at each interview.
the report.
• Impressions of how the client
4.8 In most MCA assessments, it will be presented e.g. level of alertness,
beneficial to include relevant third attention, mood etc.
16
What makes a good assessment of capacity?
• Efforts made to improve the client’s a decision is approached, or may cause
AWARENESS OF CONTEXT
Legal contexts
4.15 Looking first at the former, there is by and for whom and by when. Legal
some clarity when completing MCA representation of all parties offers a
assessments within a legal context, level of confidence in the maintenance
as well as some challenges. The of boundaries, protection of the clients’
legal structure of court proceedings (and psychologists’) rights and clarity on
provides the psychologist with a clear parties’ responsibilities (including the
framework of what exactly is requested, assessing psychologist’s). Instruction
17
What makes a good assessment of capacity?
by a legal representative may also set 4.16 Challenges of conducting MCA
COMPL E T ING A N A SSES SMENT OF CA PACIT Y out relevant case law, which assists the assessments within legal proceedings
psychologist in identifying the necessary often relate to restricted timeframes.
information which the client should Psychologists should be aware how
know in order to be deemed capacitous this may impact on the quality of the
and which, therefore, helps determine assessment and raise any concerns at
the parameters, as well as the content, an early stage, clearly setting out how
of the assessment. If instructions are not this may impact on what can reasonably
clear or necessary case law is omitted, be achieved. Restricted timeframes are
these should be clarified with the not a reasonable excuse for a poorly
instructing solicitor at any early stage. informed assessment and any limitations
Legal proceedings may also bring access should be clearly set out within
to useful medical records or other the report.
important documents.
Clinical contexts
W O R K I N G I N D E P E N D E N T LY V E R S U S B E I N G PA R T O F A T E A M
4.19 There are benefits and challenges to confers greater knowledge of the client
completing MCA assessments within and their general abilities as well as
teams, including jointly with other the client likely feeling comfortable
professionals. Considerations here and at ease with the psychologist.
include the nature of any pre-existing However, any therapeutic alliance may
relationship between the psychologist also bias the assessor’s view of the
and client being assessed as noted client’s competencies and/or influence
above. A pre-existing relationship them in a particular direction in order
18
What makes a good assessment of capacity?
to protect the working relationship. be considered to have the final say,
4.22 Psychometric inventories can be a useful test (see page 10, para 2.7). Areas to
part of a psychologist’s professional be assessed might include: general
repertoire and many will consider them intellectual ability, memory and ability
when conducting MCA assessments. to learn, attention and concentration,
It is important to state there is no verbal comprehension and expression,
psychometric inventory designed to reasoning, information processing and
measure capacity within the meaning executive functioning. Consideration
of the Act and it therefore follows that should also be given to the use of
an individual’s capacity cannot be appropriate tests of effort when using
determined based on test results alone. psychometric assessment. A profile of an
individual’s strengths and weaknesses
4.23 However, psychometric inventories can
can be useful in determining their
provide useful, informative data which
functioning in relation to some arms
assists the practitioner to come to an
of the test such as memory and
opinion regarding one or more elements
ability to recall information generally
of an individual’s ability to meet the
(providing a context for a more focused
individual requirements of the functional
19
What makes a good assessment of capacity?
assessment of recall of specific, relevant to intellectual or working memory
COMPL E T ING A N A SSES SMENT OF CA PACIT Y information) or an assessment of deficits as well as broader issues relating
executive functioning for an individual’s to mood which may impact on how an
ability to use and weigh relevant individual presents and responds to
information as part of a decision- questions, and which may also impact
making process. Executive functioning on current capacity issues. If specific
is difficult to formally assess. However, cognitive difficulties are identified,
tests can indicate ability to plan, such as slowed speed of information
organise, follow instructions, adhere processing, capacity can be enhanced by
to and switch between rules as well as compensating for such difficulties when
initiate and inhibit responses. assessing an individual’s capacity to
make the specific decision in question.
4.24 Psychometric inventories may also be
used as part of the assessment regarding 4.26 The BPS’ Psychological Testing Centre
the first arm of the capacity test i.e. can answer any queries relating
the existence of an impairment in the to individual tests. Psychologists
functioning of the mind or brain and to are reminded of the importance of
what extent. The clearest example here maintaining up-to-date information
is a current assessment of intellectual on tests and their development and
functioning as part of determining the to use the most recent version of
presence (or otherwise) of a globalised inventories. The Psychological Testing
learning disability. Centre offers useful information on core
qualities of approved tests such as their
4.25 Finally, data from psychometric
reliability and validity, as well as using
inventories may help guide the
tests with appropriate standardisation
psychologist in how best to interview the
samples and, therefore, their overall
client if specific deficits or limitations
clinical utility and relevance in any
are identified early on and how to
one given case.
enhance their capacity. This may relate
20
What makes a good assessment of capacity?
information available or else state this proposed interventions to work with the
21
What makes a good assessment of capacity?
EQUA LIT Y CONSIDER ATIONS
5. Equality
considerations
5.1 Issues of equality and diversity are enshrined in law and, therefore,
also in organisations’ policies and procedures to ensure best
practice and consideration of individuals’ rights and needs.
Psychologists should be aware of these issues within the broader
context of treating each client as an individual, on their specific
circumstances, and with their relevant history and presenting
difficulties. Ensuring fairness and equality of opportunity means
providing different interventions for each individual’s needs, whilst
including these considerations within the overall formulation
and analysis.
Appendix A – Mental Capacity
A PPENDI X A
Assessment Checklist
A. Before starting the assessment
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
A1. Does the • Establish what disorder of mind or brain the MCA Section 2 (p.2).
person have person is suffering from and whether this could MCACoP (p.41).
a disorder of reasonably be affecting the person’s decision-
mind or brain? making at the material time the decision is
required to be made (e.g. learning disability,
acquired brain injury, neurodegenerative disorder,
and/or mental health disorder).
• Is the disorder of mind or brain temporary or
permanent? If temporary consider whether the
decision in question can be delayed until the
person regains mental capacity.
BPS (2019). What
• NOTE: You do not need to diagnose a specific
makes a good
disorder in order to apply the MCA; however, it
assessment of
should be clear that the person is experiencing
capacity? (Section 2).
some difficulties with functioning of their mind
or brain (e.g. problems with memory, decision-
making, or communication).
• Also, consider whether the MCA is the most
appropriate legislation to be using or is another
act more relevant?
For instance:
a) Mental Health Act (1983, amended 2007): Mental Health Act
• Should be used instead of the MCA if amendment (2007)
‘appropriate medical treatment’ is available Part 1, Chapter 1,
for the disorder of mind, and treatment would section 4 and 7.
‘alleviate, or prevent a worsening of the
disorder or one or more of its symptoms or
manifestations’. Mental Health
• ‘Medical treatment’ includes ‘psychological Act 1983, Part II,
intervention and specialist mental health Section 2(b).
habilitation, rehabilitation and care’.
• A person can be detained for treatment ‘in the
interests of his own safety or with a view to the
protection of other persons’.
23
What makes a good assessment of capacity?
A PPENDI X A REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
A2. What is • Define the question in clear terms (e.g. ‘Does X MCACoP Chapter
the specific have the mental capacity to decide where to live 4.32 (p.51).
decision that on discharge from hospital?’).
BMA/Law Society.
is being • If there are multiple aspects to the assessment,
assessed? break them down into individual questions. For
instance, X may need to understand his financial
circumstances to be able to make a decision BPS (2019)
about where to live, therefore there may be two What makes a
capacity questions: good assessment
1. Capacity to manage financial affairs. of Capacity?
2. Capacity to make a decision about residency. (Sections 3 & 4).
A3. Has the The assessment should be made against clear Relevant professional
expected level criteria for the expected level of knowledge/ practice and NICE
of knowledge decision making required to demonstrate the guidelines (see
required to required capacity. reference list)
understand the Decide what information is relevant to the decision Case law for the
information and interview relevant parties so you have this specific decision and/
relevant to the information in advance of the assessment. For or empirical literature
decision been instance, in order to assess capacity to manage regarding professional
stipulated in financial affairs you would need to have specific practice guidelines.
advance? information about the person’s assets (i.e. total For example:
annual income, property, etc.) and outgoings (i.e. • Consent to
total cost of bills and the payment schedule). treatment, Roth et
al. (1977); Searight
& Hubbard (1998).
• Advanced
directives,
Molloy et al.
• Health Proxy,
Mezey et al. (2000)
24
What makes a good assessment of capacity?
A PPENDI X A
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
A4. Is it Remember the MCA stipulates that the person is MCACoP Chapter 4.34
clear why assumed to have capacity unless there is reason – 4.36 (p.52).
capacity was to doubt this. Ensure you have clear evidence
BPS (2019) What
questioned for for doubting the person’s capacity. If not, seek
makes a good
this specific clarification from referrer before proceeding.
assessment of
decision?
capacity? (Section 2)
A5. Are the Set the scene for the assessment and identify any Relevant
circumstances limitations to the assessment, or the assessment professional guidance.
and rationale context (e.g. setting, time constraints, information
BPS (2019)
for the available) that may directly or indirectly influence
What makes a
assessment the opinion reached.
good assessment
clear?
of capacity?
(Sections 3 & 4).
A6. Is it The MCA stipulates that the ‘decision holder’ is MCACoP Chapter
clear who the ultimately responsible for making the decision about 4.40 (p.54).
actual decision someone’s mental capacity but they can consult a
holder is? professional for advice on the matter.
Establish who is responsible for making the decision BPS (2019) What
(e.g. If the specific question relates to a person’s makes a good
capacity to consent to treatment: ‘… ultimately, it assessment of
is up to the professional responsible for the person’s capacity? (Section 4).
treatment to make sure that capacity has been
assessed’. So in this context it might be the medical
consultant but they may defer to the psychologist
for their opinion or advice.
25
What makes a good assessment of capacity?
A PPENDI X A
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
A8. Do any Check that the instructions you have received do MCA Part 1, Section
exclusions not ask you for an opinion about a person’s best 27–29 (pp.16–17)
apply to the interests (BI) in relation to an excluded area of BI and 62 (p.35) and
best interests best decision-making, for example: MCACoP Chapter 1.8-
decision • Intimate personal relationships. 1.11 (pp.16–17).
process? • Voting.
• Adoption or matters affecting the person’s child.
There are a
• Care or treatment authorised under the
number of
Mental Health Act.
decisions
that cannot
be taken
on behalf
of someone
who lacks
capacity,
including
marriage,
sexual
relations,
and parenting.
A9. What Assessments of capacity only apply at the material Relevant professional
is the time that the assessment is being conducted; guidelines (see
best time and therefore it is essential to select a time and length reference list).
location to of session that gives the examinee the best chance
BPS (2019)
carry out the of success. It might be necessary to schedule the
What makes a
assessment? assessment over multiple sessions to establish if
good assessment
there is any variability in responses over time and in
of capacity?
different situations. The importance of these factors
(Sections 3 & 4).
must be documented and explained in the report.
A10. Is there For example, if the person is deaf, blind, aphasic, BPS (2019)
any aspect of drowsy, or uncooperative; noisy public environment; What makes a
the context limited time to carry out assessment; or presence good assessment
that may of family members/staff who could influence the of capacity?
affect the examinee’s answers. (Sections 3 & 4).
reliability or
validity of the
assessment?
26
What makes a good assessment of capacity?
A PPENDI X A
B. Conducting the assessment
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
B2. Understand Question the examinee about their understanding of Relevant professional
the relevant the relevant information. practice guidelines
information in If not, provide them with the information relevant to (see reference list).
basic terms the decision. MCACoP Chapter 4
Has the (p.40) generally and
expected level Chapter 4.49 (p.58) &
of knowledge 4.52 (p.59).
required to BPS (2006)
understand the Assessment of
information capacity in adults:
relevant to the Interim guidance for
decision been psychologists.
presented to BPS (2019). What
the examinee makes a good
in advance? assessment of
capacity? (Sections
2.4, 2.7(a), and 4.26).
27
What makes a good assessment of capacity?
A PPENDI X A REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
B3. Does the Explain the MCA to the examinee in simple terms Relevant professional
examinee and state clearly and specifically the question to practice guidelines
understand be answered. (see reference list).
the purpose If there is more than one question, set out each
of the specific decision to be subjected to the test of
assessment? mental capacity.
B4. Does the Set out the evidence that answers this question MCACoP Chapter 4.34
examinee (e.g. referral information received, concerns raised, – 4.36 (p.52-53).
understand implications of being deemed not to have capacity
why capacity is for this decision versus having capacity).
being
questioned for
this specific
decision?
B6. Retain the Assess whether the person demonstrated that they MCACoP Chapter
information could retain the information relevant to the decision. 4.20 (p.47).
long enough to Notes: MCA (2005) Section 3(3) states that people
make a who can only retain information for a short while
decision? must not automatically be assumed to lack the
The person capacity to decide – it depends on what is necessary
must be able to for the decision in question.
hold the Items such as notebooks, photographs, posters,
information videos, and voice recorders can help people record
in mind long and retain information.
enough to use it
to make an
effective
decision
28
What makes a good assessment of capacity?
A PPENDI X A
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
B7. Weigh Ask questions that require the examinee to illustrate MCACoP Chapter
information in their rationale for weighing pros and cons. 4.21 (p.48) (Using or
the balance? Question the examinee about other people’s weighing information
perspectives (who might be affected by their as part of the decision-
Can the
decision-making) and their rationale for following or making process) and
examinee
dismissing these views. Chapter 4.22 (p.48).
identify, use
and weigh If the examinee cannot reach a decision this Use or Weigh? Or
risks and demonstrates they cannot weigh information in Use and Weigh? A
benefits for the the balance. If the examinee cannot apply their response by Alasdair
specific issue? knowledge of risks and benefits to their own Pitbaldo, the Official
situation regarding the specific issue being assessed, Solicitor to the courts,
then this would be evidence of being unable to use 39 Essex Chambers,
the information. That is, if the examinee can set out Mental Capacity Law
pros and cons in an abstract, hypothetical situation, Newsletter, February
but does not consider these to apply to their 2016, p.12.
situation (e.g. due to lack of insight into an aspect See also: Kings
of their cognitive, behavioural or psychological College Hospital NHS
needs) then this would be evidence of being unable Foundation Trust v C
to use the information relevant to the decision. and V [2015] EWCOP
80, as per MacDonald
J, para. 35.
Relevant professional
guidelines.
29
What makes a good assessment of capacity?
A PPENDI X A REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
B10. Have If practicable, repeat assessment over multiple sessions Relevant professional
you included and in different settings to test out consistency of practice (see
checks for response. This is especially important when the reference list).
consistency decision will need to be taken at multiple time points
of responses? (e.g. decisions about financial management).
B11. Was If so, describe and provide evidence of how this was BPS (2006)
there any addressed and/or taken into account. Assessment of
evidence of capacity in adults:
suggestibility/ Interim guidance for
social psychologists.
influence BPS (2019) What
in their makes a good
responses? assessment of
capacity? (Section
4.4 and 4.12).
Gudjonsson
suggestibility scales
(Polczyk et al., 2004)
30
What makes a good assessment of capacity?
A PPENDI X A
C. Enhancing capacity
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
C3. Is there Consider whether there is any evidence that the BPS (2006) Assessment
evidence that person has shown new learning that might change of capacity in adults:
the person the outcome with time. For instance, a person Interim guidance for
could make with severe disability who cannot communicate psychologists.
the decision his decision currently but is learning to use a BPS (2019)
if given more communication aid (e.g. eye gaze software) and it is What makes a
time? suspected may be able to communicate a decision good assessment
once the communication aid is established. of capacity?
(Section 2.10).
31
What makes a good assessment of capacity?
A PPENDI X A D. Report writing
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
D2. Have You must include sufficient explanation of capacity MCA Part 1, Section
you answered: assessment findings that demonstrate: 3(1) (a) (p.2).
a) The examinee is either able or unable to MCACoP
a) Whether
understand the information relevant to the Chapter 4 (p.40).
the person
decision in basic terms. Sullivan, 2004
could
understand Note that the Court of Protection prefer to have (2-stage model
the verbatim responses recorded in the report, rather defining what is
information than a summary of the discussion. Assessors relevant information).
relevant to should keep sufficiently detailed notes from their What quantifies basic
the decision? dialogue with the person to evidence direct quotes, terms has been defined
ideally taken during the assessment conversation to by Anselm Eldergill
ensure accuracy. Judge, Prof of Mental
Health Law, at Court
of Protection, Royal
Courts of Justice,
London, 2014.
BPS (2019) What
makes a good
assessment of
capacity? (Section 4.9)
32
What makes a good assessment of capacity?
A PPENDI X A
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
D4. c) Whether c) Is able/unable to use and weigh information in MCA Part 1, Section
the person the balance, as part of the process of making 3(1) (c) (p.2).
could weigh the decision. Provide evidence of the person’s MCACoP
information rationale for any reasoning that s/he draws on Chapter 4 (p.40).
in regard to to weigh information in the balance (e.g. a
foreseeable person making a decision to give a financial gift
consequences? to someone may weigh up what the recipient
has done for the person in the past against
the impact of the loss of the money on the
person’s quality of life. Provide evidence that
the person can apply this reasoning to their
own personal situation (i.e. not just abstractly
weigh up the risks and benefits, but rather
be able to see how these could relate to their
circumstances or needs).
33
What makes a good assessment of capacity?
A PPENDI X A REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
D11. Has If you are not the decision holder, ensure your Relevant
your opinion/ report is addressed to them as advice, rather than a professional guidelines.
judgement, fait accompli (e.g. in my opinion X lacks the mental
based on the capacity to or has the mental capacity to…).
assessment, BPS (2019) What
If you are concluding that a person lacks capacity for
been clearly makes a good
a specific decision, ensure you have clearly indicated
expressed? assessment of
which parts of the functional test have not been
capacity? (Section 2.9).
met (i.e. understanding, retaining, using/weighing
information or communicating a decision) and how
these are directly caused by the impairment of mind or
brain leading to this test being applied (i.e. document
the causal relationship between these two aspects).
34
What makes a good assessment of capacity?
A PPENDI X A
E. Recommendations
REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
35
What makes a good assessment of capacity?
A PPENDI X A REFERENCE/
FURTHER
QUESTION TASKS/ADVISORY NOTES GUIDANCE
E2. If the c) Referral for an independent advocate (if the Care Act, 2014.
person is examinee is a vulnerable adult and has no one
judged to have else to advocate for them independent of health
capacity but at and/or social services personnel).
risk of making
an unwise
decision,
are there
recommenda-
tions for
actions
to protect
the person?
Continued)
E3. Is there a Specify the time frame within reassessment Refer to relevant
recommend- is advised. professional practice
ation as to guidelines (e.g.
whether the regarding repeat
assessment neuropsychological
should assessments
be repeated? see Heilbronner
et al., 2010).
36
What makes a good assessment of capacity?
References
R EF ER ENCES
American Bar Association (ABA) & American Psychological Moye, J. (1999). Assessment of competency and decision
Association (APA)(2008). Assessment of older making capacity. In P.A. Lichtenberg (Ed.) Handbook
adults with diminished capacity: A handbook for of assessment in clinical gerontology. New York:
psychologists. Washington, DC: American Bar John Wiley.
Association & American Psychological Association. National Institute for Clinical Excellence (NICE) (in
British Psychological Society (2006). Assessment of development post consultation meeting 11/06/19).
capacity in adults: Interim guidance for psychologists. Supporting decision-making for people who lack
Professional Practice Board and Assessment of mental capacity. NICE Guidelines. [GID-QS10127].
Capacity Guidelines Group. Leicester: British National Institute for Clinical Excellence (NICE)
Psychological Society. collaborating Centre for Social Care (in development
BPS DCP FPID (2015). Guidance on the assessment and expected publication date 3/10/18). Decision
diagnosis of intellectual disabilities in adulthood. Making and Mental Capacity. NICE Guidelines.
Leicester: British Psychological Society. [GID-NG10009].
British Psychological Society (2019). Consent to Newby, H. & Ryan-Morgan, T. (2013). Assessment of
sexual relations. Professional Practice Board and Mental Capacity. In G. Newby, R. Coetzer, A. Daisley
Mental Capacity Advisory Group. Leicester: British & S. Weatherhead (Eds.) Practical neuropsychological
Psychological Society. rehabilitation in acquired brain injury: A guide
Empowerment Matters (2014). Making financial decisions: for working clinicians (pp.179–207). London:
Guidance for assessing, supporting and empowering Karnac Books Ltd.
specific decision making. Palmateer, L.M. & McCartney, J.R. (1985). Do nurses
www.empowermentmatters.co.uk know when patients have cognitive deficits? Journal of
George, M. & Gilbert, S. (2018). Mental Capacity Act Gerontological Nursing, 11, 6–16.
(2005) assessments: Why everyone needs to know Parker, M. & Cartwright, C. (In press). Mental capacity in
about the frontal lobe paradox. The Neuropsychologist, medical practice and advance care planning: Clinical,
Issue 5, April 2018, 59–66. ethical, and legal issues. In B. Collier, C. Coyne & K.
Grisso, T. (1986). Evaluating competencies. New Sullivan (Eds.) Mental capacity in Powers of Attorney
York: Plenum. and Advance Health Directives: A collection of essays
by lawyers, psychologists and medical practitioners.
Grisso, T. & Applebaum, P.S. (1998). Assessing
Annandale, NSW: The Federation Press.
competence to consent to treatment. New York: Oxford
University Press. Pepper-Smith, R., Harvey, W.R.C. & Silberfeld, M. (1996).
Competency and practical judgment. Theoretical
Heilbronner, R.L., Sweet, J.J., Attix, D.K., Krull, K.R.,
Medicine, 17, 135–150.
Henry, G.K. & Hart, R.P. (2010). Official position of
the American Academy of Clinical Neuropsychology on Polczyk, R., Wesolowska, B., Gabarczyk, A., Minakowska,
serial neuropsychological assessments: the utility and I., Supska, M. & Bomba, E. (2004). Age differences
challenges of repeat test administrations in clinical in interrogative suggestibility: A comparison between
and forensic contexts. The Clinical Neuropsychologist, young & older adults. Applied Cognitive Psychology,
24(8), 1267–1278. 18, 1097–1107.
Mezey, M., Teresi, J., Ramsey, G., Mitty, E. & Bobrowitz, Reid-Proctor, G.M., Galin, K. & Cummings, M.A. (2001).
T. (2000). Decision-making capacity to execute Evaluation of legal competency in patients with frontal
a health care proxy: Development and testing of lobe injury. Brain Injury, 15(5), 377–86.
guidelines. Journal of the American Geriatrics Society, Royal College of Physicians [RCP] (2013). Prolonged
48, 179–187. disorders of consciousness: National Clinical
Midwest Bioethics Centre Ethics Consortium Committee. Guidelines. London: RCP.
(1996). Guidelines for the determination of Roth, Y.L., Meisel, A. & Lidz, C.W. (1977). Tests of
decisional incapacity. Kansas City, MO: Midwest competency to consent to treatment. American Journal
Bioethics Center. of Psychiatry, 134, 279–284.
Miller, S.S. & Marin, D.B. (2000). Assessing capacity. Sachs, G.A., Stocking, C.B., Stern, R., Cox, D.M.,
Emergency Medicine Clinics of North America, Hougham, G. & Sachs, R.S. (1994). Ethical aspects
18(2), 233–242. of dementia research: Informed consent and proxy
Molloy, D.W., Silberfeld, M., Darzins, P. et al. (1996). consent. Clinical Research, 42(3), 403–412.
Measuring capacity to complete an advance directive.
Journal of the American Geriatrics Society, 44, 1–44.
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Schumand, B., Gouwenberg, B., Smitt, J.H. & Jonker, Smithline, H.A., Mader, T.J., Crenshaw, B.J. (1999).
R EF ER ENCES C. (1999). Assessment of mental competency in
community-dwelling elderly. Alzheimer Disease and
Do patients with acute medical conditions have the
capacity to give informed consent for emergency
Associated Disorders, 13(2), 80–97. medicine research? Academic Emergency Medicine,
Searight, H.R. & Hubbard, S.L. (1998). Evaluating patient 6(8), 776–780.
capacity for medical decision making: Individual Sprehe, D.J. & Kerr, A.L. (1996). Use of legal terms in
and interpersonal dimensions. Family, Systems, and will contests: Implications for psychiatrists. Bulletin
Health, 16, 41–53. of the American Academy of Psychiatry and Law,
Silberfeld, M. (1994). Evaluating decisions in mental 24(2), 255–265.
capacity assessments. International Journal for Sullivan, K. (2004). Measuring mental capacity: models,
Geriatric Psychiatry 9(5), 365–371. methods, and test. In B. Collier, C. Coyne & K.
Silberfeld, M. & Checkland, D. (1999). Faulty judgment, Sullivan (Eds.) Mental capacity in Powers of Attorney
expert opinion, and decision-making capacity. and Advance Health Directives: A collection of essays
Theoretical Medicine & Bioethics, 20(4), 377–393. by lawyers, psychologists and medical practitioners.
Annandale, NSW: The Federation Press.
38
What makes a good assessment of capacity?
Appendix B – Increasing capacity
A PPENDI X B
Once a client’s capacity has been identified This is an important principle within the
as lacking, the cause of this needs to be MCA and due attention must be given to this
understood so as to ascertain whether, with before determining that an individual lacks
adjustments and input, a client could reach capacity. A number of practical strategies and
the requisite threshold for having capacity. approaches are set out for guidance.
MOOD
There are a range of techniques suitable, • Provide short written information if the
dependent upon the client’s level of client is literate.
ability including: • Use symbols or pictures to represent the
• Use simple, everyday words to explain the key areas where literacy is an issue.
necessary information and ensure the client • Consider a supportive third party who
understands, paraphrasing where necessary. can reinforce necessary learning where
• Offer information in shorter, more digestible appropriate.
and easier to follow chunks. • Consider advice or input from a speech and
• Offer multiple sessions to determine the language therapist.
client’s ability to learn and remember what
they have been told.
This may be apparent in a range of scenarios. concepts such as Child Arrangements Orders
For example, when considering a person’s or Interim Care Orders been explained to them
capacity to litigate, it will be important to in appropriate language? It is only after this
ensure they have been provided with the information has been appropriately described
necessary information in the first place or explained to them and then, if the individual
including the various roles of professionals, still cannot either understand the concerns or
the nature of the concerns expressed, possible recall the necessary information, that they are
options and outcomes and the various stages deemed to lack capacity.
of the legal process. For example, have
39
What makes a good assessment of capacity?
C O G N I T I V E D E C L I N E D U E T O A N E U R O - G E N E R AT I V E D I S E A S E
A PPENDI X B SUCH AS DEMENTIA
Where there is clear evidence of cognitive or pictorial reminders. In some cases, where
decline, whether or not sufficient to reach medication is considered appropriate, this
diagnostic threshold for dementia, for may also be tried as a means of improving the
example, a number of strategies for improving person’s overall cognitive functioning as well as
memory and therefore recall of the necessary issues impacting on their capacity.
information must be considered first including
providing written aide memoirs, verbal prompts
40
What makes a good assessment of capacity?
Appendix C – Case examples
A PPENDI X C
A number of case examples are presented to illustrate the structure and process
of conducting mental capacity assessments across a range of capacity issues and
in a number of fields. It is illustrative only; each case must be determined on its
individual facts although general guidelines can assist a psychologist to consider
the issues in their own case.
Current concerns
38-year-old male (AA) with recent history of severe brain injury secondary to a left hemispheric
stroke which affected his ability to understand language and to express his wishes verbally.
He also has physical limitations affecting mobility and self-care (right sided weakness and
non-functioning right arm)
Capacity Question: Does AA have the mental capacity to consent to a discharge package of care in
the community?
Preparatory Work:
Clarify what the options are in terms of community support so that these options can be presented
clearly to AA. Liaise with speech and language therapist about ways to enhance communication.
Speak with the treating team about potential areas of risk and how these might be managed so
that this information can form part of the discussion about the discharge package.
Yes – evidence from brain scans show extent of the damage caused by the stroke 4 months
previously and this is also supported by his difficulties in function with movement and language.
41
What makes a good assessment of capacity?
A PPENDI X C Stage 2 the four functional tests (continued)
Speech and Language Therapy assessment has highlighted that AA does not consistently
use verbal or gestures (thumbs up/down) yes/no responses accurately. He is not able to
provide verbal responses beyond a single word level. He will sometimes acknowledge with
facial expression that he is confused or uncertain when asked again if that is what he meant.
Repeated questioning however can frustrate him and result in his terminating the discussion.
Simple diagrams and images help structure the presentation of relevant information where
this can be presented in concrete images or single words e.g. home, hospital. More abstract
concepts are difficult to present, e.g. possible risks, see below.
Does AA demonstrate that he can evaluate the information relevant to the decision
AA clearly states he wants to return to his home.
AA shrugs or waves his hand dismissively when asked about any risks. On different occasions
single word and picture prompt cards about things that would be good about being home and
things that could be more problematic were used to try to help the discussion e.g. asking him
to pick out any card/image that might be difficult for him to manage at present or things that
he feels he can manage without any help.
In order to make the information more relevant to him, home visits to his previous
accommodation were set up to help him see the reality of his situation. During the visits
AA did not demonstrate an understanding of his current difficulties on his ability to care for
himself at home even when practical examples were used to explore his understanding e.g.
access to the bed and options for moving the bed to make it more accessible. AA did express
pleasure in being in his home and with his possessions. He did not show any evidence of
safety awareness within his own accommodation e.g. reaching up for items that were out of
reach without putting brakes on his wheelchair to enable him to stand safely.
Communication
AA’s ability to express his wishes was restricted by his communication difficulties.
With familiar topics and in context he could demonstrate pleasure and dislike and other
personal preferences. He could make choices in the moment between items or activities.
Where choices were more abstract or required him to incorporate information about his
limitations post-stroke he could not demonstrate that he had understood the information and
used it to weigh up his choice.
42
What makes a good assessment of capacity?
A PPENDI X C
Opinion
AA has an impairment of mind or brain affecting his ability to make the decision in question.
It is the opinion of the assessors based on repeated conversations with AA using words,
pictures, prompt cards and gestures and having observed and worked with him on a daily basis
over a four month period, that AA does not have mental capacity to make the decision about
discharge to the community. AA’s communication difficulties are such that he is not able to
demonstrate that he has understood and weighed up the information relevant to the decision.
He is consistent in what he is saying are his wishes.
Recommendation
AA is unable to demonstrate the mental capacity to make the decision to return to his own
flat with a care package. It is his clear wish to return to his flat and efforts to provide a safe
environment for him to do so should be considered in his best interests.
Reflections
The level and extent of communication impairment affected the assessment of understanding
and reflection of the relevant issues. It was difficult to ascertain whether the information
AA was using was based solely on his previous knowledge and understanding of his
accommodation and his wishes. Evidence from real life examples around his inability
to compensate safely for his stroke related difficulties or to take this into account were
considered relevant factors. On balance the view of the assessors was that it was not
possible to conclude that he could communicate that he was using and weighing the
relevant information and this was the basis for stating that he lacked the capacity to make
this decision.
43
What makes a good assessment of capacity?
A PPENDI X C Case example:
Learning disability and capacity to make a medical decision
Current concerns
There is an established history of both learning disability and previous poor engagement with
obstetric services.
Capacity Question: Does BB have the mental capacity to consent to choose when to have her baby –
whether naturally when labour commences or medically induced?
Yes – BB has a well-documented history of mild learning disability which has been previously
assessed and which is available to the assessor.
44
What makes a good assessment of capacity?
A PPENDI X C
Stage 2 the four functional tests (continued)
BB recalled a previous home birth, which had almost resulted in her and the baby’s death due
to her haemorrhaging and lack of medical attention. She was aware that a home birth carried
more risks and that there was no medical or clinical need for an induced birth and wished to
proceed with the pregnancy until her baby was born naturally.
Does BB demonstrate that she can evaluate the information relevant to the decision?
BB was able to show sufficient awareness of her own (and her partner’s) position, those of her
obstetric team and the L.A.’s. She expressed anxiety at the outcome following the birth and
that this had led her to consider dropping out from services in order to avoid having her child
removed. She was aware her obstetric team wished her to continue attending all appointments
and to have her child in hospital due to previous concerns, but retained some mild anxiety and
paranoia over their other roles too.
Communication
BB had no problems verbally communicating her position.
Opinion
BB has a mild learning disability. However, she does have capacity within the meaning of the
Act in relation to the decision as to when and how her baby should be delivered.
Recommendation
BB has capacity to make this decision which remains between herself and her treating team.
Reflections
There was little hard evidence that BB did not have the necessary information to be
capacitous in this area. However, given her previous near-death experience and that of her
child’s, her difficult engagement with services and considerable concern over the wellbeing of
the child in her care once born, this was a situation in which BB’s capacity required formal
assessment within a legal framework.
45
What makes a good assessment of capacity?
A PPENDI X C Case example: Capacity to litigate
Legal issues
Significant child protection issues in relation to CC’s grandchildren. She had been joined to
family court proceedings where issues regarding her capacity to litigate had been raised.
CC is a 62-year-old Eastern European woman who emigrated to the UK three years prior to this
assessment. She had no known relevant history in terms of either learning disability or major
mental health problems. She spoke adequate English as her second language. Her social
situation was precarious with regards to both accommodation and limited finances.
Capacity Question: Does CC have capacity to litigate i.e. understand proceedings before the Court
and instruct a solicitor?
Preparatory work:
Read all the documents available and recap the information needed in order to be able
to litigate.
No, on the available information, there is nothing on which to base a diagnosis. However, there
are also significant gaps in the evidence due to CC only being resident in the UK for three
years, therefore there is no information on her schooling or work history or, indeed, medical
history. Therefore, to assist the Court, the functional arms of the test were still considered.
46
What makes a good assessment of capacity?
A PPENDI X C
Stage 2 the four functional tests (continued)
Does CC demonstrate that she can evaluate the information relevant to the decision?
This wasn’t clear on the information available. However, there was nothing to indicate a clear
deficit and, therefore, on the balance of probabilities and given her other level of functioning,
it was concluded that she would have the sufficient ability to weigh and consider information.
Communication
CC had no problems verbally communicating her position. Whilst English was a second
language, she had a sufficient grasp of this.
Opinion
There is no evidence of impairment in the mind or brain although the evidence also has
significant gaps. Whilst CC currently does not show any understanding of the core issues
required to litigate, this is based on extensive lack of knowledge rather than inability and it is
presumed that she will be able to litigate if given the right input and assistance.
Recommendation
CC requires a period of time and specific sessions to explain the Court process generally
and in relation to this specific case. This should be completed over a number of sessions,
supported by written notes. She should also have access to the Court documentation to assist
her to think more about the case.
Reflections
In this case, CC’s general anxiety, confusion over her general social and family situation, lack
of court paperwork and lack of knowledge or any prior experience of not only family court
proceedings but many English systems, had caused her to appear to professionals who did not
know her well as if she may have a learning problem sufficient to require an assessment of her
capacity to litigate.
47
What makes a good assessment of capacity?
A PPENDI X C Case example: Capacity to use social media
Current concerns
There is an established history of a moderate learning disability and previous risky online
behaviour but DD wishes to go online and use Facebook in particular but also other social
media platforms and online dating sites.
Capacity Question
Does DD have the mental capacity to choose to go online and, in particular, to use Facebook,
Skype, Facetime and online dating platforms?
Preparatory work:
Read all the documents available including numerous previous capacity assessments across
a wide range of issues. Spoke to staff who knew DD at the accommodation and read a report
from her treating psychologist re how best to interact with DD. I also sought guidance on
what the necessary issues were for capacity to access online social media platforms as well as
familiarising myself with online social media platforms. I also did basic research on general
online behaviour, which often places people at risk, and that DD should be able to make these
same mistakes. DD had already completed two previous assessments in relation to social
media which had concluded differently as well as subsequently completing a course of work
around this involving both practical work and discussions. I also produced a visual sheet to
picture the various potential online risks re identity theft, financial scams etc. I clarified the
nature of the instructions as some were too vague to meaningfully assess within the meaning
of the Act, finally agreeing on Facebook, Skype and online dating sites.
Yes – DD has a well-documented history of moderate learning disability which has been
previously assessed and which was available to the assessor.
48
What makes a good assessment of capacity?
A PPENDI X C
Stage 2 the four functional tests (continued)
She did not understand the lack of verification of people or the use of algorithms whereby
people she does not know may be suggested to her. Also, such knowledge must be continually
applied and DD does not show the ability to generalise her learning.
Does DD demonstrate that she can evaluate the information relevant to the decision?
No, as DD cannot understand many of the core concepts and information points, she cannot
use these to weigh up various options and to make a choice.
Communication
Opinion
DD has a moderate learning disability. She does not have capacity within the meaning of the
Act to choose whether or not to use social media platforms including Facebook.
Recommendation
DD’s mood and overall wellbeing are affected by her ability to communicate with family and
friends, including online and, until this had been removed DD had used this in relation to
family. As she lacks capacity but definitely wants to be able to access Facebook and gets
upset, a best interests decision should be made as soon as possible, weighing the potential
risks against the benefits of DD still using online social media platforms but doing so with the
support of staff.
Reflections
This was a difficult case. DD had placed herself at potential risk through online behaviour and
giving out personal information and, therefore, there had been a real risk of harm. She did
not and was unlikely to be able to reach the necessary, even low, threshold of awareness to
be considered capacitous in this area and, yet, not accessing Facebook in particular was also
having a detrimental impact on her overall social and emotional wellbeing. The conclusion
was that, whilst she does not have capacity, consideration should be given to making a best
interests decision to support her online activity.
49
What makes a good assessment of capacity?
50
What makes a good assessment of capacity?
51
What makes a good assessment of capacity?
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