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Occupational Therapy and the Evidence An amputation is the removal of a part of the body, a
limb, or part of a limb via surgery. Types of amputation
surgeries include the following:
Primary—after a trauma, before infection has decreased in recent decades but is still at about 3.5 per
begun 1,000 individuals with diabetes. Approximately 3.4%—
Secondary—after a trauma, after infection has 5,283 individuals—of battle-injured U.S. military service
begun
members from the Vietnam War sustained traumatic
Closed—in which flaps of tissue are retained
and used to create a cover over the end of the limb loss. For the Operation Iraqi Freedom/Operation
bone Enduring Freedom conflicts, approximately 2.6%, or
Open—in which the amputation is temporarily 1,000 service members, had endured traumatic limb
left open while infection is cleared and surgical loss as of January 2010.
closure is completed at a later time
Trans amputations (e.g., transhumeral)—an Typical Course, Symptoms, and Related Conditions
amputation made across the longitudinal axis of
a long bone In the case of trauma, amputations occur when
Disarticulation amputations (e.g., ankle a limb or portion of a limb is surgically irreparable
disarticulation)—an amputation made at a following the accident. In the case of disease, for
natural joint, not involving the cutting of bone example, diabetes or vascular disease, amputations may
Although individuals who were born
be necessary due to ischemia, ulcers, neuropathy, and
with missing or partially developed limbs may
experience the same or similar occupational so forth. Mortality rates are higher for clients with
barriers as those who have undergone surgical nontraumatic amputations than for those with
amputation, these clients are considered to traumatic amputations.
have congenital developmental conditions and
present with different needs—particularly Throughout recovery, clients with amputations
psychological needs—than those with acquired may experience various psychological reactions such as
amputations shock, grief, anger, denial, helplessness, and
depression. Many are diagnosed with posttraumatic
Cause and Etiology
stress disorder (PTSD) as well. Phantom sensations or
The most frequent causes of amputation are perceptions of pain, tingling, or other sensations in the
dysvascular disease, diabetes, and trauma (e.g., work- missing limb are frequently reported by clients
related accidents, motor vehicle accidents, war trauma). following amputation. Particularly in the case of LEA, a
Cancer and tumors are additional causes of amputation, decrease in physical activity may lead to a more
but limb removal is often used only as a last resort in sedentary lifestyle and result in health complications.
these cases. Additionally, clients may develop skin problems on their
residual limb if proper hygiene is not maintained,
Incidence and Prevalence especially if they use a prosthetic.
More than 1.6 million Americans are currently Interdisciplinary Interventions
living with limb loss, and this figure is estimated to
increase to more than 2.2 million by 2020 and 3.6 Orthopedics and Medicine
million by 2050 based on population projections. Males
An orthopedic surgeon is typically the physician
are significantly more affected than females. Lower
who performs amputation surgeries, although other
extremity amputations (LEA; including hemipelvectomy,
medical specialties may be involved, particularly in the
hip disarticulation, transfemoral, knee disarticulation,
case of traumatic limb loss. Following the procedure,
transtibial, ankle disarticulation, partial foot/toe
precautions to prevent infection are taken, that is,
amputation) are more common than upper extremity
administration of antibiotics and proper cleaning by a
amputations (UEA; including scapulothoracic,
nurse. Pain medication is frequently administered as
transhumeral, elbow disarticulation, transradial, wrist
well.
disarticulation, partial hand/finger amputation); the
leading cause of UEA is trauma. The rate of
nontraumatic LEA among people with diabetes has
Prosthetics Occupational Therapy Evaluations
A prosthetist and/or an interdisciplinary team The evaluation process focuses on what the
(including occupational therapist) discusses prosthetic client needs, wants, or is expected to do and analyzes
options with the client and, if the client desires a what factors may impact desired occupational
prosthesis, helps prepare the client to use a prosthesis. performance. The evaluation begins with occupation-
This includes preparing the residual limb for proper focused assessments followed by specific evaluation of
prosthesis fit, desensitizing the residual limb, educating the potential impact of amputation on occupational
the client regarding limb and prosthesis hygiene, performance.
helping the client develop independence in activities of
daily living (ADL) for times when they won’t have use of Occupation-Focused Assessments
the prosthesis, and providing psychological support ■ Unilateral Upper Extremity Amputation: Activities of
throughout the transition and learning period. There Daily Living Assessment
are several timelines for fitting and beginning to use a
prosthetic device, but it is generally accepted that the ■ Role Checklist (Oakley, Kielhofner, Barris, & Reichler,
sooner a prosthetic device can be used, the better the 1986)
functional and psychological outcomes of the client.
■ Occupational Performance History Interview II (OPHI-
Physical Therapy II)
Physical therapists work with clients to maintain ■ Assessment of Motor and Process Skills (AMPS)
or increase strength and range of motion (ROM) of the
■ Activity Measure for Post-Acute Care (AM-PAC)
residual limb and of the trunk. Exercises are designed to
reduce swelling as well as prepare the limb for wearing ■ Performance Assessment of Self-Care Skills (PASS)
and using a prosthetic device. Pain control modalities,
such as heat and cold therapies, may be used. For LEA, ■ Canadian Occupational Therapy Measure
physical therapy will work with the client on gait
■ Short Form-36 (SF-36)
training with ambulation devices, for example, crutches,
and to prepare for walking with a prosthesis. ■ Activity Card Sort (ACS)
Considering the implications of amputation, ■ Disabilities of the Arm, Shoulder, and Hand (DASH)
psychologists or counselors are often employed to Outcome Measure
assist clients with identifying and working through their
emotions in a healthy and functional manner. ■ ROM
■ ALS affects approximately 5 out of every 100,000 Muscle atrophy distal to proximal
people in the world Muscle weakness
Twitching (fasciculation) and cramping of the
■ About 5,600 people in the United States are muscles
diagnosed with ALS every year. Sialorrhea (excess drooling)
Weight loss
■ In the United States, about 30,000 people currently
Loss of endurance, dexterity, and ADL function
have ALS.
Fatigue
■ Most people develop ALS between the ages of 40 and Stumbling and falling due to lower extremity
70 years. weakness
■ ALS affects people of all races. There is not one specific assessment to
diagnose ALS. Magnetic resonance imaging (MRI),
■ 90% to 95% of cases occur at random with no known electromyography, blood tests, nerve conduction
cause, whereas 5% to 10% are of genetic origin velocity tests, and neurological examinations are
conducted to rule out other diagnoses.
Cause and Typical Course
No known effective pharmacological treatment
The cause for ALS remains unknown. The onset is available for ALS but riluzole (Rilutek), a U.S. Food and
is varied, asymmetrical, and usually begins in the lower Drug Administration (FDA)–approved antiglutamate
extremities. ALS is characterized in three categories: agent, which may extend survival for several months.
upper motor, lower motor, and bulbar involvement. The
major overarching sign of ALS is muscle weakness. As Other medications can help manage some of
the disease progresses, ambulation, severe weakness, the symptoms of ALS such as fasciculation, spasticity,
and speech and swallowing issues may arise, eventually anxiety, insomnia, and excessive saliva. Because ALS is
leading to a complete decline in activities of daily living progressive with a wide variety of symptoms, a
(ADL). Because the disease only affects the motor multidisciplinary team of support including respiratory
pathways, higher cortical processes of memory, insight, therapists, speech pathologists, physical therapists,
awareness, eye movement, bladder function, cognition, occupational therapists, psychologists, and social
personality, and skin sensation remain intact. The workers is needed to sustain the individual’s quality of
median amount of life postdiagnosis ranges from 23 to life and support the family.
52 months; however, many individuals may live 5 years
or more after being diagnosed. Death usually results Precautions
from respiratory atrophy unless the individual is put on
Pneumonia and pulmonary emboli
a ventilator.
Ventilator precautions (if applicable)
Symptoms Inability to cough/clear mucus from airway and
other swallowing issues that present choking
Motor Neuron Damage hazards
Pressure sores due to decreased mobility
Damage to the lower motor neurons (spinal
Posture and balance instability may lead to fall
cord) may result in flaccid paralysis, decreased
risks
muscle tone and muscle weakness, and
Difficulty maintaining weight
decreased reflexes.
Shoulder subluxation
Damage to the upper motor neurons (in the
brain) and to the corticospinal tract may lead to Joint contractures
spasticity and hyperreflexia. Occupational Therapy Evaluations
Damage to the bulbar region includes
symptoms of dysarthria and dysphagia
Occupational therapy (OT) evaluations focus on Augmentative communication devices
individual daily functioning, the physical environment, Continued participation in shifted life roles and
social network, and quality of life for the client and their meaningful occupations
family or caregivers.
Adaptation
Comprehensive Evaluations
Environmental modification to promote
ALS Functional Rating Scale: assesses the function
changes in physical functioning in persons with Adaptive utensils or equipments (wheelchairs,
ALS self-care devices, grab bars)
Canadian Occupational Performance Measure
(COPM): self-report of performance and Prevention
satisfaction with occupations
Muscle deconditioning
Activity Card Sort (ACS): helps clients describe
instrumental and social activities Contracture through active and passive range of
motion exercises
Health Status Questionnaire (SF-36): assesses
patient’s perceptions of health and physical Pressure sores with proper positioning
limitations Occupational Therapy and the Evidence
Multidimensional Fatigue Inventory: self-report
that measures fatigue Although the outcomes of ALS appear hopeless,
OT may offer the individual and his or her family the
Activities of Daily Living or Instrumental Activities of opportunity to seek meaningful occupations and
Daily Living or Leisure Evaluations participate in the mindfulness of living life to the fullest.
The philosophy of OT is consistent with a quality of life
Function Independence Measure (FIM):
construct that may be used with individuals that have
measures function and assistance level
ALS. In order to increase the well-being and quality of
Barthel Index: measures ADL performance
life for these individuals, occupational therapists may
Performance Assessment of Self-Care Skills
help them identify personal and meaningful
(PASS): evaluates functional status
occupations.Occupational therapists provide a holistic
Upper Extremity Function or Strength or Balance approach of care for individuals with ALS with therapy
Evaluations that encompasses occupational performance,
education, adaptation, coping strategies, leisure, social
Purdue Pegboard: measures hand and finger participation, and palliative care. The medical model is
dexterity not sufficient to fulfill the needs of individuals with ALS.
Manual muscle testing: assesses a client’s OT is devoted to provide meaning to the client and
muscle strength family’s unique needs in this new stage of life.
Range of motion testing: measures range of According to some individuals with ALS, factors such as
movement for a joint psychological well-being, social supports, and
Berg Balance Scale: measures balance through spirituality are more important than physical function in
performance in functional tasks terms of quality of life. Therefore, occupational
therapists help increase opportunities for those with
Occupational Therapy Interventions ALS to participate in personally meaningful occupations.
Energy conservation in client-preferred Because of the rapid progression of ALS, caring for a
activities loved one is extremely difficult and can be
Compensatory strategies such as using gravity- overwhelming at times. Life roles of the individual and
eliminated devices his or her family often shift greatly. The individual with
Splints and orthotics to reduce pain, ALS may need to discontinue working, leading to
subluxation, and fatigue financial concerns and loss of identity. Decrease in ADL
Adaptive devices or instrumental activities of daily living (IADL) function is
Safety, positioning, safe transfers, and skin not only physically demanding for caregivers but also
integrity symbolizes a loss of independence for the individual
with ALS, which can also be psychologically draining.
Learning more about the disease is essential for
caregivers because the information can give all parties a
stronger sense of control. It is important for individuals
and family members to learn coping strategies with the
disease and to still find solace in meaningful
occupations. Caregiver support groups can be beneficial
in providing answers, information, and support from
others having similar experiences
Anxiety Disorders
Anxiety disorders are the most common of psychiatric
disorders and include a broad range of conditions,
including, but not limited to, generalized anxiety
disorder (GAD), obsessive-compulsive disorder (OCD),
and posttraumatic stress disorder (PTSD). Anxiety itself
is a normal response to stressful experiences, but when
it is prolonged, inappropriate, and/or overwhelming to
the point that it interferes with functioning, it becomes
a pathological disorder.