DEPARTMENT OF GENETICS 

HAZARA UNIVERSITY, PAKISTAN 

 
Facts  and  Attitudes  towards  the  Consanguinity  and  Genetic  Screening 
about  its  ethical  impact  in  KP,  Pakistan:  A  Survey  of  Educational, 
Medical and Legal Communities. 
 
(QUESTIONNAIRE) 
 

Name: ____________________________________________________ Age: _____________ 

Sex: ___________________________ Domicile: ____________________________________ 

Ethnic Group: ______________________________ Marital Status: ___________________ 

Kids (Girls): _____________________________ (Boys): _____________________________  

1. Are you and your partner related by blood?

Yes No  

2. Are your parents related by blood?

Yes No 

3. What is your family concept or trend about marriage regulations?

Within the family Outside the family Both 

4. What do you think about the ratio of cousin marriages in your family?

100% 50% 25% 0% 

5. What do you think about the ratio of cousin marriages in your local 
area/district?

100% 75% 50% 25% 

6. Are  you  concerned  about  your  medical  records  being  made  available  for 
 research purposes?
Yes No 

7. Have you or anyone in your family had serious medical condition in infancy or 
childhood not listed yet?

Yes No Don’t know 

8. Do you know about the term consanguinity?

Yes No 

9. Do you believe your genes have influenced your health?

Yes No Don’t know

10. Do you have awareness about the hereditary diseases/genetic disorders? 

Aware Not Aware Less Aware

11. Have you, your partner or anyone in either family (blood relatives) had any birth 

defects or inherited disorders? What is his/her relation with you?

Yes No (If Yes then)

Dubieties ________________________ 
Heart Disorders: __________________
Mental Retarded: _________________
Arthritis: ________________________
Other: __________________________

12. Do you understand that even with a negative family history, you may still have a 
child with genetic/chromosomal disorder?

Yes No 

13. Do you have any knowledge about the Genetic diagnosis (gene screening)?
 Yes No 

14. Do  you  think  gene  screening  will  make  medical  cures  for  diseases  more 

possible?

Yes No Can’t say any thing

15. Do you think screening for genes is too intrusive and too invasive of your 
privacy?

Yes No Can’t say any thing 

16. Genetic screening should be implemented in Pakistan. 

Yes No Can’t say any thing 

17. There should be prenatal diagnosis tests labs in Pakistan, to know about the 
disorders present in the fetus. 

Yes No Can’t say any thing 

18. Have you or anyone in your family ever had any genetic screening completed?

Yes No 

19. If you or anyone in your family suffering from genetic diseases, will you prefer 
genetic screening for him?

Yes No 

20. Would you prefer genetic screening for you and your partner before the 
marriage?

Yes No 

21. Do you support prenatal screening for genetic diseases in your family?

Yes No Can’t say any thing

22. Do you think your children should be screened at birth for genetic diseases?

Yes No Can’t say any thing

23. Do you support the genetic testing of cousins before the marriage in Pakistan? 

Yes No 

24. Do  you  support  the  control  of  cousin  marriages  for  the  sake  of  healthy 

children’s?

Yes No Can’t say any thing

25. What do you know about the Islamic preaching’s about cousin marriages? 

​ More harm More good Same Don't know

26. Do you think Genetic counseling should be available in Pakistan?

Yes No 

27. How do you think will Genetics affect our daily lives in near future?

Positive Negative Not at all Don’t know

28. Do  you  think  there  is  too  much  focus  on  genetics  and  too  many  resources, 

when we could be spending more money on the worlds starving population?

  Yes No Can’t say any thing

29. What do you think is the most important Bio-ethical issue?

 
Organ donation Introduction of GMO’s Gene Therapy Euthanasia

Abortion Genetic Screening/counseling Cloning Stem Cells 

Any other (please write)

30. Do you think science and technology do more harm than good, more good than 
harm, or about the same of each?
 
More harm More good Same Don't know
 31. Do you think the existing government policies on bioethical dilemmas about 
genetic testing & counseling are appropriate?

Very much appropriate Appropriate 

Require adjustment Totally inappropriate

32. Should Pakistan freely allow Abortion? (Choose the answer if the answer is yes)

Baby is abnormal Mother is abnormal 

Rape occurs Parents don’t want a child

33. The Government should introduce Stem Cells Technology in Pakistan. 

Yes No Don’t know Can’t say any thing 

Thanks you for taking your time and contribution to the survey. For submitting the 
Questionnaire and for further information please contact… 

MOHAMMAD ZEESHAN 

M.Phil Final 
Department of Genetics 
Hazara university Mansehra