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Life has always been a constant challenge often times it is only a little bump in
the road but sometimes a serious challenge presents itself. I suffer from a
currently incurable and deadly genetic condition called Duchenne Muscular
Dystrophy. It causes irreversible muscle degeneration affecting my whole body
that will eventually lead to heart failure. Many do not realise at first glance that I
am effectively paralysed albeit with limited usage of my hands which I use
mainly to control my wheelchair and use a computer. Reading from papers and
books is difficult as I need someone to turn the pages. All my reading materials
are therefore leaved through on a computer.
After studying for four and a half years in KDU while at the same time
overcoming many difficulties, I finally graduated with a LLB. To me all the
obstacles I weathered were worth it as I have gained so much knowledge and
acquired a much firmer philosophical perspective on the many facets of life. The
completion of my degree also has finally led me to my next journey as I have
finally gained a direction after having no idea where to move on next as late as
the end of 2009.
In early 2008 I was within an inch of life, nearly suffocating to death. Everything
began with something as mundane as a simple sore throat that began on a
Friday. On Sunday it worsened into no more than a bad cold. That morning I went
to a clinic in order to be nebulised to loosen the phlegm in my respiratory tract. It
is difficult for me to cough properly as my breathing muscles are weakened. That
evening I felt that something was terribly amiss as I found breathing increasingly
labourious. When I was sure that I needed to go to a hospital or I would drown in
my own phlegm ,I was quickly rushed to the University Malaya Medical Centre in
my van. On the way to the hospital I passed out but not before frightening
everyone by declaring I was about to meet my demise.
By the time I arrived at the hospital my lips have turned blackish blue due to the
lack of oxygen. At first glance the doctors thought I had a heart attack.
Something else then started giving trouble too as the doctors found it impossible
to intubate me in the normal fashion. They rushed me to the operating theatre in
order to shove the breathing tube down my throat. All that time I was
unconscious and felt nothing but I know it was extremely traumatic emotional on
my entire family. After I was stabilised they placed in the Cardiac Care Unit since
the first specialist who treated me was a cardiologist even though this episode
had nothing to do with my heart.
Eight days were spent attached to ventilator as I could not breathe on my own.
The doctors however could not remove the tubes without an issue. If they were
to simply pull them out while doing nothing else my breathing would still be
weak and I would have been reintubated. What they therefore did was conduct a
tracheotomy surgery. The procedure was quite simple; a hole was made in my
throat and through my trachea. A long plastic tube was then inserted into the
cavity. When the scars healed a different tube was placed inside that allowed me
to speak. I spent a month in the hospital where I could not speak for the most
part. Not being able to speak was really hell for me.
ot wanting to disappoint all the hopes that everyone including myself to at the
very least completing my degree. That was the reason I soldiered on with the
hope that the course would get more interesting. My dislike actually almost cost
me dearly, scraping though Trust by hitting the passing mark but at least my
other subjects were fine.
In the end I managed obtain a Second Lower mark for my study of the law.
Maybe I could have done better but another bridge has been crossed and can
now start walking towards a new bridge. At my graduation as I received my scroll
I kept thinking on my journey so far where I traversed numerous crossings while
facing countless hurdles. Recently an application was made for me to pursue my
Masters in Law in the University of Malaya. If everything goes according to plan I
will be writing a research paper on abolishing the death penalty. It is almost
certain that writing such an important issue will help in upholding our moral
integrity.