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Advances in Nursing Science

Vol. 41, No. 3, pp. 230–242


Copyright c 2018 Wolters Kluwer Health, Inc. All rights reserved.

Caring in the Margins


A Scholarship of Accompaniment for
Advanced Transcultural Nursing
Practice
Downloaded from https://journals.lww.com/advancesinnursingscience by BhDMf5ePHKav1zEoum1tQfN4a+kJLhEZgbsIHo4XMi0hCywCX1AWnYQp/IlQrHD3tjcLwhL8g9bPq7kcjNWDbrHrw73/yPHdMH1Nfbk0LX4= on 09/06/2018

Ruth C. Enestvedt, PhD, RN; Kathleen M. Clark, DNP, RN;


Kaija Freborg, DNP, RN; Joyce P. Miller, DNP, RN;
Cheryl J. Leuning, PhD, RN; Deborah K. Schuhmacher, DNP, RN;
Kristin M. McHale, DNP, RN; Katherine A. Baumgartner, DNP, RN;
Susan L. Loushin, DNP, RN

Nurses must learn essential skills based in transcultural nursing to address issues of equity
and social justice. The development of a model for nursing practice for an urban nurse-
led drop-in center for individuals experiencing marginalization provides an opportunity for
student nurses to learn transcultural nursing skills that shifts care from acknowledging the
need of others to accompanying others on their health journey. The practice model provides
the opportunity for undergraduate and graduate nursing students at Augsburg University to
de-emphasize tasks and build relationships. Students learn to listen to others’ stories and ac-
knowledge their struggles in the margins. Four stages of nursing practice skills, acknowledging
others’ needs, attending to their struggles, affirming strengths, and ultimately accompanying
others, are taught and experienced. At the core of the nursing practice model is the concept
of “hospitality.” The nursing practice model serves as guide for student nurses to learn to
suspend disbeliefs, withhold judgment, and ultimately reduce stereotypes and stigma to offer
a safe space for individuals living in the margins seeking care. The future of nursing requires
essential knowledge, skills, and attitudes that shift care from need-based care to accompa-
niment to address health inequities and provide culturally appropriate care. Key words:
accompaniment, collective action, marginalization, nursing practice model, relationship,
transcultural nursing

D EVELOPING a model of nursing practice


for an urban nurse-led drop-in center
for people experiencing marginalization of-
fers a structure in which faculty, students, and
volunteers can begin to learn to decode struc-
tures of oppression that exclude individuals
from discovering means of health. Often care
providers unknowingly contribute to struc-
Author Affiliation: Augsburg University, Augsburg tural inequities and assaults on human dignity
University, Minneapolis, Minnesota. for those who struggle with social exclusion.
The authors have disclosed that they have no signif- Decoding the culture of biomedicine to
icant relationships with, or financial interest in, any provide inclusive health care that transcends
commercial companies pertaining to this article. oppressive structures requires essential
Supplemental digital content is available for this knowledge, skills, and attitudes based in tran-
article. Direct URL citation appears in the printed scultural nursing (TCN). As a theory-based
text and is provided in the HTML and PDF ver-
sions of this article on the journal’s Web site (www. human science, TCN is both a process and an
advancesinnursingscience.com). outcome.1 As a process, TCN requires inten-
Correspondence: Kathleen M. Clark, DNP, RN, Augs- tion and skill in creating human connections
burg University, 2211 Riverside Ave CB 118, Minneapo- across ideologies, geographic space, and
lis, MN 55454 (clarkk@augsburg.edu). time. As an outcome, TCN knowledge pro-
DOI: 10.1097/ANS.0000000000000201 vides a narrative of hope and restoration for
230

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Caring in the Margins 231

necessitates advanced nursing competence.


Statements of Significance The knowledge, skills, and attitudes required
What is known or assumed to be true for advanced practice transcultural nursing
about this topic: (APTCN) can be described as moving from ac-
Health care is shaped by altruistic care knowledging the need of others to accompa-
offered by providers, but health care also nying others on their unique health journeys.
holds deeply embedded stereotypes, so- Embodying accompaniment involves forming
cial norms rooted in othering, historical professional caring relationships in sociocul-
practices of institutionalizing racism, and tural situations where nurses are often out-
a technocrat system that does not always siders. These relationships move nurses away
provide equity of care for all people. from the center of the biomedical industrial
In particular, those who are socially system toward a shared culture of health with
marginalized from society are labeled persons living in the margins. Creating tran-
“noncompliant” or “health illiterate” scultural relationships aimed at negotiating
due to differences in cultural norms or medical culture and mediating health care
belief systems that are misunderstood encounters is central to the APTCN prac-
by care experts. As a result, deeper tice model. It was through nursing prac-
divides in communities further polarize tice at the Health Commons, the nurse-
care providers and those seeking health. managed health center located in an inner-city
Individuals of all socioeconomic statues, church, that this model of APTCN evolved.
cultures, and backgrounds need to be The model illustrates stages of nursing prac-
considered vital to health and healing tice from acknowledging needs in relation-
processes. ships to attending to the struggle, affirming
What this article adds: strengths, and ultimately accompanying oth-
This article provides health care ers. These stages require an APTCN practi-
providers with innovative skills and tioner to learn about membership in cultural
approaches to create connections in the collectives.
social margins of society in meaningful Cultural collectives provide a sense of iden-
and sustainable ways. A practice model tity, a guide to action, and a ground of mean-
grounded in advance practice tran- ing, all essential components for health. All
scultural nursing serves as an example persons, whether they realize it or not, are
of how nurses can practice building members of cultural collectives. APTCN prac-
collective agency, applying social justice titioners must learn to decode the structures
praxis, and upholding human dignity and dynamics at work in mainstream collec-
in health care. This model is the result tives that exclude persons of other collec-
of cumulative care experiences over tives from membership, thus jeopardizing the
the last 21/2 decades at a health-focused, health potential of entire populations. Grow-
nurse-led drop-in center where faculty ing awareness of nurses’ own marginalized
and students engage in the community status within the health care system is neces-
to offer relationship as a means to sary for accompaniment of other marginalized
connect through barriers. The stages collectives. Familiar with the use of stealth
of this model allow nurses to move and cunning, a technique often utilized by
from acknowledgment of need to socially excluded individuals as a means of
accompaniment. survival to remain unnoticed from the so-
cial elites, nurses learn how to recognize and
negotiate in the margins when medical or-
communities broken by indifference and fear. ders and institutional policies impede person-
Achieving TCN outcomes extends beyond alizing care.2 It is in the cultural collective
a nurse generalist’s scope of practice and that nurses learn about the mind-set of the

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232 ADVANCES IN NURSING SCIENCE/JULY–SEPTEMBER 2018

collective and gain access to benefits of mem- as committed nurse volunteers, students, or
bership in diverse and often marginalized col- faculty from other college departments and
lectives. They can then combine these skills people who have been regular visitors to
with more direct, collective action to address the Health Commons. Students of the nurs-
issues of equity and social justice. ing program at Augsburg University come to
the Health Commons during their baccalaure-
ate completion program, in addition to stu-
THE HEALTH COMMONS dents in the master of arts in nursing and
doctor of nursing practice (DNP) program.
In response to the injustice of the socially The Health Commons is a 25-year, ongoing
excluded, the Augsburg University Depart- collaboration with the social action efforts of
ment of Nursing faculty organized a space, the inner-city church called Central Lutheran
called the Health Commons, where nursing Church. This church provides resources and
students can learn TCN skills in practice. The support for individuals experiencing home-
Health Commons is a drop-in center that sup- lessness and poverty in Minneapolis through
port health and healing. Actions and decisions their Restoration Center.
are informed by radical hospitality and needs The faculty expertise required for nurses
of all who visit. The innovative vision of the who practice and teach in this setting is
Health Commons opened up opportunities unique. Faculty traditionally have practiced
for practice outside of the expectations for TCN in a variety of settings with an empha-
a “clinic” or a “nursing center.” Furthermore, sis on engagement as scholarship. Not only is
“The Commons” (a phrase often used by the cultural knowledge relevant and policy aware-
community to identify the Health Commons) ness important but also faculty must be able
reflects the broad diversity of people partici- to facilitate discussions on sensitive topics as
pating in a spirit of mutuality and TCN. it relates to health. In addition, faculty must
Social exclusion and life in the margins be able to model and provide examples of
are familiar to many people who come the skills required for APTCN, which is an
to the Health Commons. Exclusion has innovative role for faculty, as the vital compo-
many sources. People may be immigrants— nent for teaching in this setting is how to care
documented or undocumented; they may be through accompaniment with those who are
stigmatized by medical diagnosis and behav- marginalized.
ioral challenges—mental illness or substance
abuse; they may have criminal records; they
may be experiencing homelessness; they may SETTING
not be educated enough or white enough or
attractive enough to be included in the main- The setting for the Health Commons is in-
stream US society. tentionally open and non–clinic-like. The at-
Social marginalization can threaten health mosphere is more social than medical and
by increasing social isolation, alienation, and culturally closer to a living room than a hos-
generalized distrust of others. The Health pital waiting room. Located in an inner-city
Commons aims to be a free and safe gather- church, the Health Commons literally and
ing space, welcoming everyone without judg- figuratively occupies an interstitial space be-
ment. No proof of eligibility, identity, or need tween cultures of care and help seeking.
is required. No one has to sign in, give a name, Equipment and procedures that are reminis-
or identify a problem or concern to be uncon- cent of a clinic atmosphere have been ac-
ditionally welcomed. tively removed from the space. Curtains and
The Health Commons is organized and walls that could mystify activities are absent.
staffed by the faculty and students of Augs- Potential status symbols such as laboratory
burg University Nursing Department as well coats, scrubs, and stethoscopes around the

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Caring in the Margins 233

neck are considered cultural markers of pro- PRESENTATION OF THE MODEL:


fessional privilege and may limit establishing SHAPING A RITUAL TO CROSS
relationships. CULTURAL BORDERS
Many discussions occur about the purpose
of keeping records on visitors who come An initial experience in nursing practice at
to the Health Commons. Foucault described the Health Commons raises awareness of risks
the threats inherent in the process of official inherent in crossing thresholds into unfamil-
record-keeping as both “a means of control iar territory. Van Gennep described this pro-
and a method of domination”3(p189) as text can cess of crossing cultural boundaries as a rit-
be reductionist of the human condition and in- ual to “unite oneself with a new world.”5(p20)
dividual agency. He further described records People entering the Health Commons come
as inscribing people in text3 that can over- from social margins, which carry a weight of
simplify the complex human condition and stereotype and prejudice, stigma, and discrim-
undermine personal agency. Agency, in its ination. They may be situated as addicts, ex-
various forms, implies that a people have the cons, transients, or recent immigrants, have
“ability to self-organize, co-create, and shape diagnosed or undiagnosed mental illness, and
the world around them.”4(p248) “Patient live on the streets or in shelters. These indi-
charts” certainly represent a process of pro- viduals share a common struggle with finan-
fessional control over how problems are cial scarcity and frail social resources. They
named and “assessed.” Sometimes, socially often experience exclusion. In this experi-
excluded people appreciate a repository for ence of otherness,6 or in the process of en-
their history when they have to carry their gagement “with those perceived as different
present life on their back while living on from self,”6(p16) professional providers can be
the streets. In this case, a “health passport” seen as threats; therefore, a ritual of welcome
is offered, which is a brief record they can is needed to initiate a trusting encounter for
carry with them. In addition, a record of both the nurse and marginalized individuals.
the number of socks provided each day by Risks are often felt by nursing students and
the Health Commons is tallied to obtain a faculty new to this social context. People of
glimpse of the number of individuals who mixed status and backgrounds are evident
have visited. (Only a single pair of socks in the outdoor spaces and indoor halls that
is offered per person, per day for finan- students must traverse to get to the Health
cial sustainability.) Overall, record keeping Commons. Many of the students have never
is responsive to visitor needs. Visitors ex- been in the inner city, and their expectations
press worry that written records can reinforce are shaped by menacing portrayals of its in-
stigma by labels that get attached to their habitants in popular media. As professionals,
lives and shape future interactions in harmful they also sense risks in entering this intention-
ways. ally nonclinic space. They mainly come from
Thus, any semblance of a structured health highly technical, medically specialized health
assessment process is eliminated as com- care settings with hierarchies and radical
pletely as possible. The Health Commons division of labor where efficiency in complet-
staff view structured assessments as estab- ing specified tasks is a priority. Therefore,
lishing power differentials between providers engaging in the Health Commons community
and patients in the health care system. Fou- at an inner-city church is unique. At the
cault described this process incisively as Health Commons, tasks are de-emphasized
“hierarchical surveillance and normalizing and students are urged to take time to listen,
judgment.”3(p192) The process is a barrier to to sit down, and to spend time with people.
mutuality and hospitality. Thus, the Health Introductions using first names are encour-
Commons aims to shift away from a profes- aged. Conversations in the moment that offer
sional expert model. meaning are considered more important than

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234 ADVANCES IN NURSING SCIENCE/JULY–SEPTEMBER 2018

inscribing people’s problems and responses have in those margins requires the humility
in records. In short, expectations of practice of a practice model that is not about inter-
are very different at the Health Commons vention to fix people. It is not about solv-
compared with the culture of health care. ing their social problems. It does not apply
A ritual of simple tasks that offer famil- a therapeutic process to explore the sources
iar cultural practices could help ease profes- of their emotional turmoil. It is not about ex-
sionals’ encounter across this threshold. The perts naming the problem and prescribing a
initial ritual was shaped by the experiential solution. Such endeavors reside in the realms
knowledge shared by some individuals of the of health care culture and although transcul-
marginalized community. The Health Com- tural nurses need some familiarity with them,
mons staff do not perform a “community as- diagnosis and prescription are not the orga-
sessment” to determine “needs.” “Satisfaction nizing framework for TCN work.
surveys” are not completed. Rather, relation- This practice model is structured as
ships are built with people who come to the Gustavo Esteva admonished “humble act-
Health Commons, whose stories of expressed ions,”7(pp15,202) “in a local context,”7(pp32-33)
felt needs, as well as insider knowledge is “at a human scale.”7(pp23,34) Humility guides
shared in their own time and in their own practitioners to acknowledge their own ig-
way. norance to be open to wisdom from unex-
Experience at the Health Commons made it pected sources. Taking action can then be
clear to nurses that people negotiating scarce based in mutuality of purpose and process.
resources value new, clean socks, diapers, By grounding nursing practice in a partic-
menstrual pads, and small-sized toiletries that ular locale, complex circumstances can be
could be slipped into a backpack. These are taken into consideration when reflecting on
the items most often requested. From a per- issues of concern. Actions to address these
spective of health promotion, these items can concerns are cocreated on the basis of local
be considered basic in protecting people from context and made relevant for daily life and
getting sick. In addition, nursing students removed from the data-driven abstractions of
need to feel useful, helpful, and knowledge- research.8 Human scale is conceptualized by
able. Therefore, the first cultural encounter Esteva as “thinking . . . on the proportion . . .
happens as charitable giving and grateful re- that humans can really understand, know and
ceiving. A threshold-crossing ritual is estab- assume responsibility for the consequences of
lished with socks, diapers, and general hy- their actions and decisions upon others.”7(p23)
giene products. Practice in this model becomes focused in this
particular reality that is deeply complex rather
than widely generalized.
CONCEPTUAL CONTEXT FOR THE Concerned about social justice, and aimed
MODEL at collective action, the model takes Scott’s
“rules of thumb” as guidelines: “take small
The Health Commons practice model de- steps; favor reversibility; plan on surprises;
scribes how the learning process can move and plan on human inventiveness.”9(p345) So-
from practice in professional structures to cial justice is defined as “the equitable balance
autonomous practice that is based on com- between social benefits and burdens; move-
mon cause and accompaniment (see Figure, ment toward a socially just world.”10(p37S) It
Supplemental Digital Content 1, available relies on nurses being able to understand the
at: http://links.lww.com/ANS/A10, which constraints that inequities impose on human
illustrates the Health Commons practice dignity and structural barriers that impede
model). Acknowledging the difficulties of ne- health of the socially excluded.11 The model
gotiating social margins, essentially TCN, and can guide nurses to this insight as practice
the lack of experience most practitioners that enlivens the abstract ideas.

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Caring in the Margins 235

The Health Commons practice model con- can be accessed and activated to strengthen
ceptualizes a process of relationship build- participation in other communities. Gaining
ing that crosses cultural boundaries and access to resources from a broader member-
shifts both marginalized difference and pro- ship can reduce the alienation and isolation
fessional privilege9 to a meeting grounded of being socially marginalized. It can become
in common cause and accompaniment. Prac- collective agency, society’s ability to act in
tice at the Health Commons aims to coin- the world as a whole for the common good.14
cide with Wendell Berry’s idea that “health is In a parallel process, reducing social priv-
membership.”12(p144) As he eloquently stated, ilege in the role of professional expert and
“I believe that the community—in the fullest coming to a common ground of understand-
sense: a place and all its creatures—is the ing can enlarge the social/cultural resources
smallest unit of health and that to speak of of professionals. Abandoning identity as a pro-
the health of an isolated individual is a contra- fessional expert can open ways for transcul-
diction in terms.”12(p146) tural nurses to participate in collective agency
Connecting isolated and alienated people and join efforts to overcome barriers to inclu-
to a community not only brings them re- sion and social justice. This deconstructing
sources from that community but also makes process of the privileged status of staff is one
their strength and experience available to of the primary aims of the practice model.
others. Therefore, membership benefits the Building relationships across cultural differ-
entire community. This mutuality and reci- ence moves practitioners from a center in
procity is basic to the importance of nurtur- health care culture to a shared culture. In this
ing cultural diversity in society. In contrast, shift, difference that may have evoked a sense
innovation and action that come from people of threat can be redefined as opportunity.
living in the margins can be minimized by the
professional staff “providing service” to them.
Acknowledging the benefits nursing faculty THE HEALTH COMMONS MODEL
and students receive from marginalized indi-
viduals who come to the Health Commons be- Relationship building as a rite of
comes part of the consciousness-raising out- passage
comes. Utilizing these outcomes and forging Social role change in professional identity
collective agency and autonomy from infor- requires a transition embedded in rites of
mal community can result in change for a passage. Arnold van Gennep,5 an early 20th-
common cause. This aim is basic to the Health century anthropologist, compared rites of pas-
Commons and its practice model. sage presented in ethnographic literature and
Membership and belonging constitute described 3 phases that are common to this
basic elements of autonomy, which is here ritual process of social role change: first sep-
defined as self-contained sociality.13 Persons aration, when the initiate moves away from
are viewed as being constituted by relation- a social role and status; second liminality or
ships rather than as self-defined individuals. transition, when the initiate enters a space of
Everyone has been a member of some kind of ambiguous identity where one is to reflect on
society, even if years have been spent in insti- and question all that they have learned be-
tutional confinement and/or without family fore and where they have taught by other
contact. That social history and experience members of the society what will be ex-
continue in some form within a person. If pected of them in a new role, with a new
personal history is grounded in experiences identity; and third incorporation, when they
of mistreatment, antisocial behavior, or stig- reenter society with a new identity and role.
matized appearance, building trust in others Nursing students’ experience at the Health
can be particularly complex. In circumstances Commons reflects these phases to varying de-
of trust, however, aspects of this sociality grees. This conceptualization of movement

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236 ADVANCES IN NURSING SCIENCE/JULY–SEPTEMBER 2018

through a cultural rite was central to the community. Responding to expressed needs
early Health Commons model and describes a must include some recognition of the agency
consciousness-raising process basic to eman- involved in asking for help. Service providers
cipatory praxis.15 This practice exemplified can easily overlook the courage and risk in-
emancipatory praxis as it “embraces and nur- volved in asking for help; they can ignore
tures social justice goals and outcomes, where their own benefit from dependence on being
practice becomes praxis. It is nursing aimed needed. Awareness of both the risk and bene-
at forms of knowing and doing in order to fit supports developing a ground of mutuality
better humankind in all its variant and valued and reciprocity.
manifestations.”11(p2) As people come to the open door of the
The nature of the Health Commons space Health Commons, they are invited in. They
becomes the first element of separation, as are assured that there is no need to sign their
it is far from the familiar settings of health name, show any identification, or prove eligi-
care practice for students in this rite of pas- bility with an insurance card. Instead, they are
sage. Moving from certainty into ambiguity is offered free supplies, such as soap, shampoo,
an essential element in separation as it un- toothpaste, and socks. Nursing students often
settles expectations among participants. This begin their experience sitting by cabinets that
confusion sets the stage for the second rite contain these free items and helping visitors
of passage, the experience of liminality. Blur- get what they request. As visitors wait their
ring markers and procedures that are assumed turn, they can observe other activities at the
in a culture of health care is essential to a Health Commons; people having their blood
practice that can lead to common ground for pressure checked, a bandage changed, a foot
nurses and marginalized people. No fees, no soak, or hand massage; perhaps, getting some
identification, and no particular problems are cough drops or foot powder. In this observa-
needed to enter and participate at the cen- tion, the visitors can decide if they want to
ter except, that is, for the nurses. All nursing risk further interaction and/or if they want to
students at Augsburg University are licensed talk with a nurse.
professionals and in school for a bachelor’s of The process of acknowledging a need for
science in nursing, a master’s degree in nurs- nursing students can be uplifted through an
ing, or a doctoral degree in TCN. The prin- undergraduate student’s experience. Before
cipal aim of the ritual is to establish a non- coming to the Health Commons, students are
threatening encounter across boundaries of asked to name their bias of people who are
difference. It becomes the first stage in build- homeless. One student assumed homeless in-
ing relationships and easing transitions. Their dividuals were “pushy” and “lazy.” She was ap-
primary challenge is to enter an unfamiliar prehensive of being in a place without more
setting where their role is not structured by structured barriers or rules to follow. As the
the institutions of health care and medical or- Health Commons opened, visitors came in
ders. They are challenged to learn a practice asking for basic human items, raising health
of independent nursing based on praxis and care concerns, and building community with
collective agency. This third phase completes one another. During the postpracticum ex-
the ritual process of social role change as stu- perience, the student expressed her obser-
dents learn to deconstruct their own privilege vations of people being engaged, grateful,
leading to practice as accompaniment. and struggling to survive. This student rec-
ognized that the experience shifted her per-
Stage I: Acknowledge the need spective. She felt called to do more and to
Being responsive to expressed felt needs, volunteer in her local community following
rather than structuring needs by assessment this practicum. The faculty expertise in facil-
and planning procedures, is a complicated is- itating reflective dialogue following this ex-
sue for health care professionals working in a perience is vital to cultivating self-awareness

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Caring in the Margins 237

and transformation for students. Without the selves to offer. Outside the medical structure
faculty guidance, miseducation could result of care, this challenge becomes important to
as stereotypes or bias could be reinforced if practice in stage II.
context and insights are missing from the dis-
cussion.
As the students offer simple supplies to vis- Stage II: Attend to the struggle
itors, they become aware of the magnitude The process of participation without inter-
of need represented both by the number of vention is central to this stage. Students need
people and the reality of waiting in line to get to practice having conversations, rather than
soap or shampoo, often items they use with- rely on interviews or assessments. They must
out much thought. They can begin to connect suspend disbelief and withhold judgment. All
to a common humanity, getting past the mark- in all, they must resist “doing” or “fixing” an
ers of exclusion, often noting how the visitors identified problem from the experts’ point of
do not look or act like they expected as they view.
reflect on identified biases. These biases con- In a cordial introduction, the nurse and the
tribute to structural violence as they prevent visitor exchange names and perhaps a hand-
others from recognizing the humanity in the shake. The interaction often opens with a sim-
other. ple request from a visitor for a blood pressure
Nursing students slowly become aware of check or some item to soothe an ailment. In-
structural violence demonstrated by a lack vited to sit down in one of the comfortable
of access to health care as well as basic chairs that are arranged in a semicircle, the
needs. In this instance, structural violence is nurse sits down beside the visitor. Nursing
based on the concept described by Dr Paul practice in this step responds to a direct re-
Farmer. His description represents “a host quest for help framed in a physical symptom
of offenses against human dignity; extreme and viewed as embodying a struggle to nego-
and relative poverty, social inequalities rang- tiate life. The physical ailment engages care-
ing from racism to gender inequality, and giving while the sincerity and competence of
the more spectacular forms of violence that the caregiver can be observed. The nurse can
are uncontestedly human rights abuses.”16(p8) use this opportunity to open a conversation
In stage I of the Health Commons practice about a visitor’s complex circumstances. The
model, students begin to explore social injus- visitor can take this opportunity to gauge a
tice in response to their observations. Their nurse’s level of concern and competence. At
actions are primarily charitable giving. There- this stage, questions from the nurse are to be
fore, the role they assume is that of compas- avoided.
sionate caregiver. In the Health Commons set- Given how health care providers are so-
ting, this begins to shift their view of nursing cialized in a mode of questions, this process
practice. can be challenging. Questions can imply
judgment about compliance with medica-
Cultural shift in the rite of passage tions, missed appointments, and/or doctor’s
As students participate in this stage of prac- orders or advice not followed. Questions
tice, they move out of a paradigm of medical- can be a means of controlling the dialogue.
driven health care that focuses on pathology Requests such as “I’d be interested to hear
and diagnosis. Through honoring the human more about your blood pressure concern”
story, the student can begin to associate with or comments such as “Keeping track of your
a culture of nursing that is holistic and heal- blood pressure makes sense” are encouraged
ing, not service-based and commodified. Hav- as they can often elicit larger descriptions
ing negotiated the risk of encounter through of the circumstances visitors face or the
charitable giving, students must also face the attempts they make to manage their chronic
challenge of having something within them- conditions. Listening then becomes a vital

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238 ADVANCES IN NURSING SCIENCE/JULY–SEPTEMBER 2018

tool for practice and a challenge when com- culture to nursing mediating medical and
munication styles and language are connected marginalized culture. This shift takes the form
to different contexts of experience. of advocacy for access to care. Here, a nurse’s
During a postpracticum experience, an un- need to be helpful, to solve a problem, and
dergraduate student discussed the difficulty in to make something better can interfere with
avoiding questions during his recent interac- the process of understanding “the otherness
tions at the Health Commons. He said that a of the Other, the Outsider.”7(p15) Esteva de-
young woman came in asking about adult in- scribed this process as complicated, yet essen-
continence pads. He thought to himself, why tial, to grasp the resourcefulness of navigat-
would such a young person need something ing in the margins. As this conversation deep-
like this? Exercising constraint in posing ques- ens, the practice moves into the third stage of
tions, the student found the requested items connection.
and provided them to the young woman.
During student reflections facilitated by the
nursing faculty, this request was unpacked. Stage III: Affirm strength
The young woman had shared previously Socialized in a paradigm of finding and nam-
with faculty members, whom she had estab- ing people’s problems, a step toward relation-
lished trust with, that the adult incontinence ship, can be very challenging for students.
pads were means of safety. While this young Complicated further by working with people
woman often slept outside to avoid the chaos who are defined and excluded from society by
of staying in emergency shelters, she found “their problems,” naming a strength can seem
that if she urinated in her incontinence pad to fruitless. Yet, this step is crucial for finding
produce a notable smell, she was able to ward our common humanity, mutual benefit, and
of sexual predators. The student expressed common ground in the struggle for a just and
feeling a sense of disbelief. He said that his ex- equitable world. It is essential for praxis.15
perience at the Health Commons was a great Trained to intervene and solve problems, this
exercise in awareness and uplifted the impor- step perplexes nurses by its emphasis on non-
tance of authentically listening. action, on being present, and on “listening a
While nurses must respond to requests for person toward a solution.” Two assumptions
help, a pitfall of this stage is to assume a “ther- underpin this step: (1) there is always more to
apeutic” role. Too often, these actions are it; and (2) your own ignorance of the circum-
founded on premature conclusions based on stances is absolute. Interacting from a stance
inadequate knowledge of a visitor’s cultural where you can neither know the complica-
“idiom of distress,”17 or suffering that forms tions in others’ predicament nor the resources
itself in a medical alignment, and the predica- they can rely on, your best option is to name
ment they face. Listening closely to visitor nar- the strength that you can see in their story. A
ratives, nurses can gain knowledge about spe- statement such as “You must have incredible
cific ways social injustice is experienced. The inner strength to manage these difficulties”
urge to act as problem solver when visitors can elicit more self-expression and a visible
are seeking help can actually become useful as sense of self-confidence. For nurses, this af-
advocacy. In stage II, students begin to name firmation builds a sense of common ground,
structural violence as they listen to visitor sto- of broader understanding, and a connection
ries of their struggles. Thus, actions are meant to a vitality from which they can also draw
to intervene to fix something in the process strength.
of marginalization in the healthcare system. Take, for example, a graduate nursing
They may implement a role as advocate. student’s recent encounter with “Jesse.”
Jesse is a regular at the Health Commons.
Cultural shift in the rite of passage He often finds himself drifting in and out of
In this stage, the practice paradigm shifts homelessness as he struggles with addiction.
from nursing defined by the health care Over the last year, his blood pressure had

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Caring in the Margins 239

risen to concerning levels. Although he had mutuality emerges, the process moves into
a prescription for lisinopril, he was unable to the final stage.
afford the $5 co-pay. Students who meet Jesse
ask what implications hypertension has on
his life. As the student identifies the strength Stage IV: Accompany
he demonstrates in monitoring his overall This step is not advocacy, although it may
blood pressure and tries to understand what emerge from a problem that needs a solution.
resources could help him obtain the medica- In its ideal form, this step engages the mētis9
tion he desires, complexity compounds the of the nurse and the visitor. “Mētis” is a term
situation. For example, Jesse does not reveal Scott9 used to call informal knowledge that
to health care providers that he does not have comes from experience or practical knowl-
insurance. He knows that if he were to apply edge. It reinforces and builds on the agency
for insurance, there is only one pharmacy in of each. Accompaniment is a process that is
town that would fill his prescription from this derived from the teaching of Dr Paul Farmer
prospective insurance. He knows this phar- and Fr. Gustavo Gutiérrez as it means “walk-
macy does not take gift cards or checks from ing with—not behind or in front—but beside
local churches or nonprofits, it only accepts a real person on his or her own particular jour-
cash and he does not have the $5 co-pay. ney in his or her own particular time, at his
Because of the nature of people’s use of cash or her own particular pace.”19(p6) When the
gifts on the streets, most churches or nonprof- practical, experiential knowledge of both is
its forbid the practice of providing cash dona- brought to bear on what is often a structural
tions. So, instead, Jesse does not inform others problem of inequity or injustice inherent in a
of his lack of insurance because he has learned marginalized position in society, mutual ben-
that sharing his struggles rarely leads to an out- efit can result.
come he desires. Hence, the graduate student Perhaps, this step is best illustrated in 2 sto-
learns to hear his story and witness his strug- ries of APTCN. A graduate student formed a
gles, they are able to identify his strengths relationship with a woman at the Health Com-
and the self-preservation demonstrated in his mons who was struggling with a life on the
story. street and many complications of addiction,
In stage III, students begin to see creative prostitution, and depression. One day the
maneuvers that people have used to negoti- woman unexpectedly asked the student to ac-
ate margins to solve some of their problems. company her to a child custody hearing at the
They recognize behaviors that often frustrate courthouse. The woman wanted desperately
professionals, as noncompliance may in fact to retain some relationship with her children.
be acts of resistance to professional con- The student knew nothing about child cus-
trol and assertions of agency on the part of tody law, nor court proceedings, but agreed
outsiders.18 Hence, the actions in this stage is to go with her. It was an act of solidarity and
naming strength. The practice role becomes had potential to shift dynamics in a setting
supporter of agency. that would take notice when a middle-class,
white professional sat with a poor woman of
Cultural shift in the rite of passage color seeking to be heard. Seeing firsthand
As nurses listen in witness to narratives how structures of inequity function and how
that reveal resourcefulness, resilience, and much strength and cunning were needed to
self-reliance, they can be inspired by the cre- get a semblance of justice from the system,
ativity in social margins18 and they can be- the student’s knowledge about the system and
gin to acknowledge their own positions as her respect for the woman increased greatly.
marginalized in the health care system.3 Their Although no miracle happened in the court-
paradigm shifts from nursing as mediating to room, accompaniment was a small step in a
nursing as sharing marginal positions. As this local context at a human scale. The

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240 ADVANCES IN NURSING SCIENCE/JULY–SEPTEMBER 2018

relationship of trust deepened, and a step fortable negotiating procedures of health care
toward further reality-based shared problem- organizations and could make connections in
solving began. the process that he would not know. The staff
Another experience occurred with one of of the hospital would not know much about
the longtime visitors to the Health Commons, “Bob’s” circumstances, nor the street life he
“Bob,” a middle-aged man who struggled with had to negotiate in following through on his
memory loss that resulted from a head injury doctor’s advice. Set up for general support to
several years ago, made great efforts to par- people with mental health struggles, the staff
ticipate, often working as a volunteer. After would not be aware of “Bob’s” memory loss
being hospitalized for a seizure, his doctor and motivation to participate.
wanted more follow-up support, so he was This example illustrates how interpretation
enrolled in a support group at the hospital. and mediation works in APTCN. It was also
He attended one time but did not return and a step in collective problem-solving as the
was worried that his doctor would be upset. nurse became aware of a potential ally in a
He expressed his concerns to a nurse at the nurse working in the hospital setting. This in-
Health Commons who offered to go with him troduction helped establish a connection be-
to the group, adding that she would benefit tween marginalized people in the community
from knowing about how it worked. It was and an advocate within the health care system
agreed that she would accompany him on a that was often utilized by people coming to
date that he chose. “Bob” was very familiar the Health Commons.
with the hospital and took the lead in finding Shared experience of challenge can lead to
the unit where the group meeting was held. creative action that requires and builds on the
In the process, he pointed out different areas agency of both the nurse and the marginalized
of the hospital, which was very informative individual. It engages the mētis of both—the
for the nurse. Although the unit staff were practical knowledge that is often not articu-
very friendly and welcoming, “Bob’s” anxiety lated. In stage IV, a nurse begins to clarify the
about what would be expected of him was knowledge that one has gained through their
apparent. He did not trust his memory about own professional and personal experience.9
how he was referred to this service. After his As Camus stated, “You cannot acquire expe-
presence was justified by the system’s proce- rience by making experiments. You cannot
dures, the nurse helped him fill out forms that create experience. You must undergo it. . . . It
were also needed to justify his eligibility for is all practice: when we emerge from experi-
this service. When he was finally invited to the ence we are not wise but we are skillful. But at
group activity, the nurse stayed until he felt what?”20(p5) Thus, practice actions are shared
comfortable for her to leave. From that initial risk in solidarity facing injustice. The role is
meeting, “Bob” did not miss another session to honor mētis.
and expressed appreciation for the activities
he found there. Cultural shift in the rite of passage
On the surface, this may represent a sim- As human connections expand and cultural
ple example and common knowledge. It was knowledge deepens, mutuality of the rela-
a small step, but in a larger context demon- tionship can be acknowledged. This step re-
strated how efforts for follow-up care through quires common sense and common ground.
referral within the same care system can be It reflects action based on solidarity and mu-
intimidating and confusing and a waste of ef- tual problem-solving. Building on the mētis
fort. The nurse could be helpful on many lev- of both nurse and the visitor, this shift cre-
els, certainly as a support to an independent ates a paradigm of synthesized care, as both
person struggling to maintain his agency in a the marginalized and health care cultures be-
hospital setting he knew well. She was com- come one as shackles constraining the origins

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Caring in the Margins 241

of knowledge are dismantled and the voice of The movement is from the center outward. In
the marginalized is viewed as the expert. the first circle around the hospitality center,
the stages of relationship revolve. In the
A foundation in hospitality second circle, principles of action reside. As
the circles move out from the center, connec-
When faculty members and students of
tions with the dominant society are sustained
the DNP in Transcultural Nursing Leadership
as ultimate efforts at social and cultural
program at Augsburg University collaborated
changes.
during coursework, the Health Commons
model of nursing practice took new form.
DNP students openly critiqued the model fol- CONCLUSION
lowing practicum experiences at the Health
Commons. The stages to acknowledge the This article described how nursing skills
need, attend to the struggle, affirm strength, that focus on means of inclusion allow the ad-
and accompany suggested a linear process vanced practice transcultural nurse to address
that had a beginning and end, but after critical issues of equity and social justice through
reflection it was determined that relationships methods of direct, collective action. The
and practice are best depicted as a circle, thus Health Commons practice model serves as a
suggesting that the center of practice model guide for nurses to reduce stereotype, stigma,
should be the practice of “hospitality” and and discrimination that surface in US health
that people should not just tolerate difference care settings. The process of decoding allows
but welcome and promote diversity.7 Rather faculty, students, and volunteers to engage
than working from the outer rim of the circle with people who are marginalized and learn
to an inner base of “common ground,” the from the wisdom of those who survive living
model starts from a core of “hospitality” life without a permanent place to call home.
that is aptly symbolized by the Celtic knot. Students are able to begin to understand the
As an ancient art form, the Celtic knot complexity of health and the social constructs
incorporates the design elements of spirals that limit it, which can produce a call to ac-
and interlacements portraying the beauty and tion. The future of nursing depends on innova-
complexity of human interconnectedness.21 tive methods of caring that address health in-
Concentric circles represent the practice and equities through approaches that move from
imply the space that is safe, free, and sacred. need-based to accompaniment.

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Copyright © 2018 Wolters Kluwer Health, Inc. Unauthorized reproduction of this article is prohibited.

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