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The Plymouth Laryngectomy Club (PLC)

– A Charitable Support Group for Plymouth Cancer Laryngectomees –

The Voice of PLC


October 2010
Address: 80, Warleigh Avenue, Plymouth, Devon PL1 2DH
Tel: (01752 ) 563800 Mobile: 07749819828 (text only) Email: saudigeoff@yahoo.co.uk Website: http://plymouthlc.webs.com

OUR VERY FIRST ISSUE


Written by Geoffrey N. READ
F RIENDS. I’m delighted to welcome some Friends to
our Club. ‘Friends’ are guests who are not
Laryngectomees but who support the Club and its aims in

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some way. Friends are every bit Club Members except
ELCOME to our very first issue of the PLC monthly that they have no right to vote at our meetings. We are
newsletter. The Voice of PLC. Now that the Club particularly thankful to Mr. W.M. BRIDGER and Mr. T.
has been formally set-up with a properly-elected MALIK for becoming Friends of our Club and also for
Committee, a formally-adopted Constitution and the allowing us to use their names (see the foot of this page).
acceptance of our Affiliation to the National Association of Any Club Member can nominate someone to become a
Laryngectomy Clubs, we thought it time to relax the Friend of our Club... indeed we hope they do so!
formalities a little, and begin to have fun! This brand new

M
monthly newsletter will complement our website and will EMBERS. The Club is open to anyone who has
carry any decisions and / or announcements made at our undergone a Laryngectomy and their partners. All
monthly Club Meetings. We intend to use this instead of known Laryngectomees in the wider-Plymouth area have
issuing formal Minutes of Meetings. now been contacted and invited to join our merry band.
There’s an application form on our website.
FOREWORD BY THE CHAIR Alternatively, please contact Geoff whose details are at
Written by Edward (Ted) BURNETT the top of this Newsletter.

W ELCOME to the Plymouth Laryngectomy Club!


I should like to welcome all our readers, whether
M EETINGS. Club Members meet on the first
Monday of each calendar month, usually at 11 a.m.
The venue will usually alternate between the Mustard
they’re Club Members, Friends or Supporters. Our Club
Tree at Derriford Hospital one month, and an outside
was formed at the
location the next. Please keep watching this newsletter
instigation of Emer
and our website for current details.
SCANLON (our former

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Speech & Language
EWSLETTER. Geoff READ is the Editor of this
Therapist) and Maggie
Newsletter and his contact details are shown at the
JARVIS (our Clinical
top of this page. Geoff will be relying on you all to provide
Specialist Nurse at ENT). It
him with articles, reports and newsworthy items to make
was those two who initially
this Newsletter interesting. So... do please start sending
brought us all together! The PLC was founded at it’s first
th him your contributions! Contributions can be submitted
meeting on Tuesday, 29 June 2010 and we adopted our
th at any time and we intend to publish each Newsletter as
current Constitution on Monday, 6 September 2010.
soon as possible after each monthly meeting.

C OMMITTEE. I was elected Club Chair at our first


meeting and I should like to thank Jean READ for
volunteering to be our Club Treasurer and Geoff READ as
C ALENDAR OF EVENTS. A copy of the Club’s
Calendar of Events for the next 12 months or so is
available on our website and Geoff (our Secretary) intends
our Secretary.
to give a forecast in each edition of our Newsletter.

The Plymouth Laryngectomy Club (PLC) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC)
In Association with Macmillan Cancer Support
Registered Charity Number: 273635

A Member of The Plymouth Third Sector Consortium (PTSC)

Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon,
Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.
CONGRATULATIONS!
Written by Geoffrey (Geoff) N. READ
N ATIONAL ASSOCIATION OF LARYNGECTOMEE
CLUBS (NALC). NALC sent a letter to us recently to
say that a General Committee Meeting would be held on
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Monday, 11 October 2010. I replied saying that our Club
ONGRATULATIONS! Very best wishes to Ted & Liz
had only just been set up and that this is the first
BURNETT on the occasion of their Anniversary on
st notification we’ve had. I therefore sent our apologies for
Thursday, 21 October 2010. Ted is the current Chair of
non-attendance and said we hoped to send delegates in
PLC but its Liz who does all the work behind the scenes!
the future.
Oh yes it is!

WELCOME!
Written by Geoffrey (Geoff) N. READ
O CTOBER 2010 CLUB MEETING. Our Fourth
Meeting was held as a Luncheon at the Peter Tavy
Inn on the Okehampton road, just outside Tavistock.
http://www.petertavyinn.com/ Although only six

S PEECH & LANGUAGE THERAPIST. We welcome


Julia POCKET who’s joined us from Cornwall to replace
Emer SCANLON who’s moved to Exeter. We’re hoping
members attended, it was a thoroughly enjoyable time in
a beautiful Devon setting! Liz won the Raffle Prize of a tin
of Roses Chocolates.
Julia will put in an appearance at our November Meeting to
give everyone an opportunity to meet her. Welcome to
Plymouth Julia! P LYMOUTH THIRD SECTOR CONSORTIUM. Our
Club’s Membership of this Consortium was approved
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on Monday, 6 September 2010 and our Letterhead and
Website have since been updated by Kanda (our
THE TREASURER’S REPORT webmaster). For further information please visit:
Written by Jean M. READ http://www.plymouthtsc.org.uk/

M ONTHLY REPORT. I aim to keep all Members


updated on the financial aspects of our Club but I P RESS RELEASE. I issued a Press Release to the
Devon & Cornwall media in September to advertise
the fact that our Club is now up and running and asked for
don’t think it would be prudent to include specific figures
in this newsletter nor on our website. I will of course all Laryngectomees in the area to contact us!
present all the necessary figures at our monthly Club
Meetings and Club Members are at liberty to contact me
at any time should they have a query, or should they wish
to inspect the books.

THE SECRETARY’S REPORT


Written by Geoffrey (Geoff) N. READ

F LYER. We’re in the process of producing a Flyer /


Poster with our Club’s Contact details. It will be
S TRAP-LINE. Our Members agreed that our Club’s
strap-line should be:

strategically posted onto Notice Boards and copies will be PLC… A Charitable Support Group for Plymouth Cancer
passed to Maggie and Julia so they can point out the Club Laryngectomees.
and its benefits to prospective new Members. When it’s
finalised a copy will also be posted on our website. This will be used on our Letterhead, Website and anything
else we publish. This strap-line can be changed at any time

M EMBERS & FRIENDS. Our current Membership


Status is shown in the table below. As you see, we
have 15 not on email which means we’re incurring
so do please send any suggestions to me.

A STRAP-LINE? A good strap line makes you think,


postage charges. The sooner individuals obtain access to promises something, provides a guarantee of performance
the internet the sooner our Club can save a few pennies! or confirms your identity. The strap line is the pithy
statement that reinforces your position and states a claim
POSTAL EMAIL TOTAL
Confirmed Members: 4 11 15
for your differentiation. At different stages of a business
Confirmed Friends: 9 6 15 life and under different leadership your strap line reveals
TOTALS: 13 17 30 the inner focus of the organisation or product by focusing
either on the emotional, ideas, and concepts or the

M EMBERSHIP LIST. We’ve separated the details of


all individuals who’ve not acknowledged our
invitation to join the Club, from the main Membership List.
rational, performance claims and statements of fact. The
choice of strap line is not a matter of right or wrong, it is a
question of positioning. However, it is a matter of good and
We’ll not be sending them any further correspondence due bad. Whichever option you choose, above all avoid the
to the cost of postage. The invitation to join us however, wishy-washy, undifferentiated platitude that adds nothing
stands! to the reader’s experience.

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FORECAST OF EVENTS LARYNGECTOMY RELATED BITS
Written by Geoffrey N. READ Written by Geoffrey N. READ

O CTOBER 2010
B LOM-SINGER BRUSHES. Some of you may have
noticed that these brushes have been out-of-stock
for a while. When I
NOW! Send you Menu Booking Form and a non-returnable deposit of asked Countrywide
£5 per person to Geoff (the Secretary) if you wish to attend our
Christmas Dinner.
Supplies Ltd. if this
line had been
Monday, 18th: Geoff (the Secretary) will send out an Agenda for the discontinued, they
November 2010 Meeting. If you haven’t received a copy before the replied:
November Meeting then do please get in touch with Geoff!
The Blom-Singer brushes have not been discontinued but have been
Monday, 25th: This is the last day for submitting your names to Geoff redesigned and the new versions are not yet on prescription. We’ve
(the Secretary) if you wish to partake in Lunch at the Jack Rabbit been waiting around six months for them to come on prescription and
immediately after the November Meeting. have been told they will be from November this year.

N OVEMBER 2010 Let's hope this happens!

Monday, 1st: Club Meeting at the Mustard Tree (Room 11).


Followed by Lunch at the Jack Rabbit.
C LAN MAGAZINE. CLAN is the official quarterly
magazine of the National Association of Laryngectomy
Clubs (NALC). Club Members can contact NALC direct to
This will include a Talk about the Mustard Tree services by Ms. Pat
STAPLETON, who is the Mustard Tree Supervisor. ask for a copy. Simply email: info@laryngectomy.org.uk We
We’re also hoping that Julia will find the time to come along to say Hello! have however, asked NALC to send us a few spares of each
issue.
Monday, 22nd: Geoff (the Secretary) will send out an Agenda for the

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December 2010 Meeting. If you haven’t received a copy before the
December Meeting then do please get in touch with Geoff! ARYNGEAL TRANSPLANTS. One of our Club
Members recently asked if we could possibly find out
Wednesday, 24th: This is the last day for paying the full balance for those more information on this topic. I contacted the National
attending the Christmas Dinner. Cash is to be paid to Geoff (the
Secretary).
Association of Laryngectomee Clubs (NALC) who said:

Monday, 29th: This is the last day for sending you Menu Booking Form We do not hold information in this office but we’ve found lots of
and a non-returnable deposit of £5 per person to Geoff (the Secretary) if information by using a Google search engine.
you wish to attend our Christmas Dinner.
So there you go! If anyone is interested please use the

D ecember 2010. Google Search Engine… just tap in Laryngeal Transplants.

Monday, 6th: Club Christmas Dinner at:

The China House,


Sutton Wharf,
Plymouth, PL4 0DW.
Telephone: (01752) 661592

For those of you who don't know the China House, please take a look at
the website at: http://www.vintageinn.co.uk/thechinahouseplymouth/

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Their Festive Season Menu, with sleigh bells and whistles, costs £19.95 for
a Three-Course Menu. AFE JOURNEY CARD & LIBERTY WALLETS. The
Drinks of course will be extra. Cancer Laryngectomee Trust, www.cancerlt.org, has
We'll need to make a block booking as soon as possible.
informed us that a number of bus companies have
We’ve already sent out a copy of the Menu & Booking Form. Would you
please send Geoff (the Secretary) the completed form with your choice of introduced Safe Journey Cards to help disabled passengers
menu? to communicate any problems they might have to the
[If you prefer you can go on-line and download a Booking Form by just driver.
clicking on the website, then click on Christmas Bookings in the left-hand
The card, produced by First, has a number of pre-printed
column and then download the Festive Menu.]
Geoff will need to take a £5 non-returnable deposit from you as soon as messages such as Please be patient… I have difficulty
possible, with the full balance to be paid by not later than Wednesday, speaking to show when getting onto a bus.
24th November 2010. Apparently, in East Yorkshire, an orange Liberty Wallet can
Each person attending is requested to bring a wrapped gift on the
similarly be used to alert the driver that the passenger
evening, costing no more than £3.
might have problems.
Monday, 27th: Geoff (the Secretary) will send out an Agenda for the I’ve recently written to Plymouth Citybus to ask if they
January 2010 Meeting. If you haven’t received a copy before the have any such system in place. If not, I’ve respectfully
January Meeting then do please get in touch with Geoff!
suggested that they might like to investigate the matter.
The outcome is awaited!

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T EXTING IN EMERGENCY SITUATIONS. A texting
service for people with speech or hearing difficulties
to use in emergency situations is currently on an extended
H OSPITAL BOSSES MAKE PLEDGE ON PATIENT
CARE. This article was published on Saturday,
25th September 2010:
trial. To be able to make use of the service you must first
register your mobile phone by either going on-line to (Photo: CUTBACKS: The
www.emergencysms.org.uk or by texting the word Herald's front page on
st
register to 999 then following the instructions you Wednesday, 21 September
receive. It's quite painless... I just registered! If an 2010.)
emergency occurs
once you have By Diana Prince Health Reporter
registered, you can HOSPITAL bosses have pledged
then send a that safety and high quality
message to 999 patient care will remain their
stating what the "prime purpose" amid
problem is and you "immense" financial challenges.
will receive a reply Achieving multimillion-pound savings while maintaining
within two and improving services will require huge effort from every
minutes. member of staff, they said.
Plymouth Hospitals NHS Trust this week revealed it needs
to hike this year's savings target from £27.5million to up
to £40million: more than 10% of its budget.
Plans include asking staff to resign, putting senior
NEWS & GOSSIP managers at risk of redundancy, limiting agency staff and
Written by Geoffrey N. read
restricting external recruitment.

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Speaking at the hospital's annual general yesterday, Plymouth
27-SPACE DERRIFORD MULTI-STOREY CAR Hospitals chief executive Paul ROBERTS said: "Our commitment to
PARK WORK SET TO START THIS YEAR. This quality and to safety remains at the heart of what we do for patients.
th
article was published in The Herald on Friday, 24 "Most of the headlines and debate is about money but as a board we
September 2010: won't forget that our prime purpose is to provide safe and high quality
care for our patients.
WORK is expected to start this year on a 627-space multi- "We have to understand there's both a national and local context of
storey car park for Derriford Hospital. major financial challenge, however, and we will no doubt hear much
The car park is the first phase of development of a new more about that in the next year or so.
"What we need to get through is the real commitment and
shopping street and 'care square' in the northern part of
involvement of our staff. So we can continue with improvements in
the city.
safety and quality within the money available."
Plymouth City Council Planning Committee yesterday agreed changes to
the design they approved last year. Mr. ROBERTS said the Financial Internal Turnaround programme is a
The seven-storey building will now include offices instead of a children's "service by service" piece of work, taking a "hard look" at overheads,
nursery, as originally approved. back office and administrative functions.
Cathy FRANCIS, from agents King Sturge, told councillors on the "There's a lot of work to do and we've got to get a lot of detail into
committee the developers had already provided a new bus lane as part that plan," he said.
of the scheme. "It's a major change in the way we are going about this because of the
She was speaking on behalf of developers Plymouth Hospitals Trust and scale of the problem and because we are behind. That's why we've
Wharfside Regeneration (Devon) Ltd.
chosen to change gear."
Ms. FRANCIS said the car park and a new entrance to the west of the
hospital would allow visitors to find parking much more easily. Reflecting on the past year, he said achievements reflect the efforts of
"Funding is in place and they are looking to start work in the next few staff.
months," she said. Highlights included the hospital lowering mortality rates to well below
The existing car parks would eventually be redeveloped. Ms. FRANCIS expected levels, bringing down rates of C difficile to one of the lowest
said the hospital trust was looking for another site for a nursery. in the country and improving results of the annual patient survey —
The master plan for the North West Quadrant site next to Derriford particularly around satisfaction and perceptions of cleanliness.
Hospital includes 356 dwellings, along with a supermarket, shops, Professor John BULL, Plymouth Hospitals chairman, warned the public
restaurants, cafes, bars and a hotel.
sector and Derriford will be under "enormous economic pressures" for
The £150million development, which has been described as a 'new heart'
for Derriford, would also include offices, takeaways and public open several years to come.
space, and a second multi-storey car park. He said: "I hope we see what we have always seen in the NHS: an
The development would also include sizeable residential institutions such absolute commitment to safety and quality of patient care.
as care homes and other healthcare facilities. "The scale of the challenge is something that's going to be repeated for
Developers have said up to 1,500 jobs will be created on the 120,000sq the next three, four, five years in the public sector.
m North West Quadrant site when the scheme is completed. "It's a serious position and is going to require a huge amount of effort
The original intention was to complete by 2016, with the car park built by from everyone throughout the trust.
the end of this year. That schedule has now slipped.
"It's just so vital because the pressures of the next two or three years
In time, the developers say, they intend to add another four or five
storeys over the roof of the car park on the western and eastern sides. mean it's not going to get any easier. We will monitor it with
The extensions could be used as a nursing or care home, flats or offices. enormous care."

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Joe TEAPE, director of finance, added the hospital faces an "extremely
challenging financial picture" but still expects to make a £1 million
surplus.
T HE FUTURE OF THE NHS. The Government has
set out its proposals for the future of the National
Health Service which means radical changes in how your
The latest figures show the trust has slipped almost £7 million behind
NHS will be run. There’s been many related papers
on its savings target.
published but we’re attaching the following PDF
The savings plan aims to cover rising costs, including agreed NHS pay
rises and more expensive medical supplies, as well as achieving the
documents to this Newsletter for your information:
surplus.
It comes amid massive structural change in the NHS due to  A leaflet for patients and the public which simplifies the
White paper;
Government policy and plans to make efficiency savings across the
health service.
 An easy read version of the White Paper; and

I T'S A VERY SIMPLE OPERATION. A man was wheeling himself


frantically down the hall of the hospital in his wheelchair, just before his
operation.
 The summary document relating to the proposed changes
to Local Involvement Networks (LINks) which will evolve
into Healthwatch.
A nurse stopped him and asked, "What's the matter?"
He said, "I heard the nurse say, 'It's a very simple operation, don't worry,
I'm sure it will be all right.'" ACKNOWLEDGMENT
"She was just trying to comfort you, what's so frightening about that?" Written by Geoffrey N. READ
"She wasn't talking to me. She was talking to the doctor!"

I S IT ALL TAKING ITS TOLL ON CATHERINE ZETA


JONES? The strain shows on Michael DOUGLAS' ever-
supportive wife. By Simon Cable. This article was published
O ur grateful thanks to The Devonport Regeneration
Community (DRC) Partnership for their assistance in
reproducing copies of this Newsletter.
in The Daily Mail on Wednesday, 22nd September 2010:

She is supporting her husband through a gruelling fight


against throat cancer, while keeping life as normal as
possible for their two young children, one of whom has
special educational needs.
So it would be no surprise if the strain of the last few
months was beginning to take its toll on Catherine Zeta
JONES.
Rushing into her New York apartment yesterday, after running yet another
errand, her mouth was set in a tight grimace, her figure unmistakably
slender.
But while Catherine is obviously undergoing a difficult time, she is doing her
best to keep herself together for her
family.
Last night she put on a brave face to
support her husband as he walked
down the red carpet the new York
opening of the sequel to Wall Street, THIS SPACE
one of his biggest films.
The Oscar-winning actor and producer, COULD HAVE BEEN USED
who will turn 66 this week on the same
day his wife turns 41, recently revealed TO PLACE
how the treatment has left him with
sores in his mouth which make it YOUR NOTICE!
extremely difficult to eat and swallow.
Although Douglas braved Monday
night’s premiere of Wall Street: Money Why not contact the Editor?
never Sleeps, in which he reprises his
role of hard-nosed financial trader
Gordon Gekko after 23 years, he has had to axe plans to travel to the UK
for the film’s British premiere next week.
Earlier this month, Douglas appeared on David Letterman’s U.S. chatshow,
where he revealed that the cancer had spread beyond its original tumour
and was now worse than first feared.
He admitted that his illness was now stage four – which can often prove
fatal – claiming that a lifetime of drinking and smoking had been the most
likely cause..
However, he said he still had an 80% chance of beating the disease.
DOUGLAS also revealed he and his wife had asked their children, son Dylan,
ten, and daughter Carys, seven, to see him undergoing radiotherapy,
saying: ‘They actually thought it was cool, like a video game or Star Wars.
'They were very impressed when the doctors let them press the buttons.’

Read more:
http://www.dailymail.co.uk/tvshowbiz/article-1314143/Strain-shows-
Michael-Douglas-wife-Catherine-Zeta-Jones.html

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The Plymouth Laryngectomy Club

(PLC)

– A Charitable Support Group for Plymouth Cancer Laryngectomees –

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