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General Principles
of Good Chronic
Care
INTEGRATED
MANAGEMENT OF
ADOLESCENT AND ADULT
ILLNESS
INTERIM GUIDELINES FOR
FIRSTLEVEL FACILITY HEALTH WORKERS
August 2004
GENERAL PRINCIPLES OF GOOD CHRONIC CARE
This is one of 4 IMAI modules relevant for HIV care:
This module, General Principles of Good Chronic Care, was prepared by the IMAI team with
special input from the Health Care for Chronic Conditions team, which is located within the
Chronic Diseases and Health Promotion Department and the Noncommunicable Diseases
and Mental Health Cluster.
Please send your suggestions how to improve this module to: cch@who.int.
P2 P3
General Principles of Good Chronic Care
Chronic care based at the primary-care facility
near the patient’s home
3.
Focus on your patient’s concerns and
priorities.
2
treatment without Develop Assess, Advise, Agree, Assist and
referral if:
n
Treatment Plan Arrange. Advise
• TB treatment with la
tP 4. Support patient self-management.
positive sputums, or en
tm
rea
3
• Leprosy if characteristic T
5. Organize proactive follow-up.
skin lesions Follow-up Agree
• ARV therapy in patients Modify 6. Involve “expert patients,” peer
without complications diagnoses or educators and support staff in your
(see Chronic HIV care Treatment Plan health facility.
module)
Treat according to
Treatment Plan
Refer back for
scheduled follow-up for
exacerbations/poor control
of Treatment Plan
as needed
Manage severe
7. Link the patient to community-based
resources and support. 4
Assist
5
exacerbations 8. Use written information—registers,
Good communication
Treat acute 10. Assure continuity of care.
exacerbations
P4 P5
Coordinated Approach to Chronic Care Steps to Guide the Chronic Care Consultation
Use the 5 A’s at every patient consultation
Community partners: Clinicians at district clinic/hospital
Support patient goals Perform in-depth assessment, diagnose INITIAL CONSULTATION
and action plans. Elicit patient’s goals for care
Provide care and Collaboratively agree upon Treatment Plan ASSESS
support to patient and
Revise Treatment Plan as needed Assess patient’s goals for this consultation.
family.
Assess patient’s clinical status, classify/identify relevant treatments and/or advise
Provide resources Health workers at the first-level facility: and counsel.
to support patient (This could be a district clinic/peripheral health centre.)
Assess risk factors.
self-management, Elicit patient’s concerns.
including peer support Assess patient’s knowledge, beliefs, concerns, and daily behaviours related to
Assess patient’s clinical condition. his/her chronic condition and its treatment.
groups.
Assess readiness to adopt indicated treatments.
Function as treatment
buddies. Exchange information about health risks.
ADVISE
Link with health Refer to clinician for further diagnostic work Assess
Use neutral and non-judgmental
care team and and Treatment Plan, if indicated.
language. "What would you like to
follow-up Arrange for agreed follow-up.
Correct any inaccurate knowledge address today?"
periodically. Reinforce patient’s self-management efforts. (as assessed above) and
rs
cards.
alt
understanding of his/her
Involve peer educators/"expert "Tell me about a typical day
h-C
yP
are
Link with community partners and you are doing to manage it."
mu
Te
am
ot
me iva Treatment Plan:
for
Co
P6 P7
AGREE
Negotiate selection from the Agree
FOLLOW-UP VISIT
different options.
Agree upon goals that reflect "Among the options we’ve discussed, ASSESS
what would you like to do?" Assess
patient’s priorities. Assess patient’s goals for this consultation.
Ensure that the negotiated goals are: Followed by: "Okay. So as I Assess patient’s clinical status. "To ensure we have the
• Clear. understand it, we’ve agreed that same understanding,
Assess risk factors.
• Measurable. you will ___. Is this correct?" could you tell me about
Compare assessment findings with those from the Treatment Plan in
• Realistic. previous examination and discuss with patient.
• Under the patient’s direct control. your own words?"
Assist Assess patient’s understanding of the
• Limited in number. Treatment Plan.
"What problems might arise when To assess adherence:
Assess patient’s adherence to the Treatment
ASSIST you follow this plan? How do you Plan (by asking, counting pills, checking "Many people have trouble
Provide a written or pictorial think you could handle that?" pharmacy records). If adherence problem, taking their medications
summary of the plan. explore the reasons and obstacles to regularly. What trouble
"What questions do you have about
Provide treatments. adherence (including depression). are you having?"
the plan or how to follow it?"
Provide medication (prescribe or Acknowledge patient’s efforts and successes
dispense). "Could you explain back to me with self-management, even if they are limited.
Provide other medical treatments. in your own words what you
ADVISE
Provide skills and tools to assist with understand that the plan is?"
Repeat key information concerning the patient’s condition and its treatment.
self-management and adherence.
Reinforce what patient needs to know to self-manage:
Provide adherence equipment Arrange
(e.g., pill box by day of week). • Symptoms, when to change treatment or to seek care.
• Self-monitoring tools (e.g., "I would like to see you again (specify • Treatment (why it is important; why adherence is necessary).
calendar or other ways to remind date if possible) to assess how • Problem-solving skills.
and record Treatment Plan). you’re doing. It’s important that • How to monitor one’s own care.
Address obstacles. you come for this follow-up even if • How and where to seek support in the community.
Provide psychological support as you’re feeling well."
needed. AGREE
• Help patients to predict possible Negotiate changes in the plan as needed (for some conditions, a revised
barriers to implementing the plan and to identify strategies to overcome them. Treatment Plan might require a return visit to the district clinician).
• If patient is depressed, treat depression.
ASSIST
Link to available support:
Address problems or "slips" with the following Treatment Plan; teach patient how
• Friends, family. to solve problems and learn from them.
• Peer support groups. Discuss problems that occurred in adherence and develop strategies to
• Community services. overcome them in the future.
• For certain treatments, treatment supporter or guardian.
ARRANGE
ARRANGE Arrange follow-up to monitor treatment progress and to reinforce key messages.
Arrange follow-up to monitor treatment progress and to reinforce key messages. (These should be part of a programme of care over time.)
Schedule for group appointments or relevant support groups if available. Schedule for group appointments or relevant support groups, if available.
Record what happened during the visit. Record what happened during the visit.
P8 P9
TIPS USE WRITTEN INFORMATION
Tips for talking with the patient: Written information helps to:
Express understanding and acceptance. Remember the Treatment Plan.
Avoid arguments. Monitor and evaluate progress.
Respect the patient’s right to choose. Remember when it’s time for a follow-up appointment and facilitate
response to missed appointments.
Tips for involving "expert patients" on the clinical team:
Transfer pertinent information to others.
Choose patients who:
Arrange for supportive care from community resources.
• understand their disease well;
• are good communicators; Written information for patients:
• are respected by other patients; and Written or pictorial information helps patients remember the plan and
• have time to be involved on a regular basis. monitor their self-management.
Ensure they understand and will respect shared confidentiality. Provide patient with a written or pictorial summary of the plan to take
Ensure they do not exceed their expertise or areas of responsibility. home.
Provide patients with self-monitoring tool such as a calendar or chart.
Tips for group appointments:
Review patient self-monitoring tools at each follow-up visit.
Group appointments can help you make the most of scarce time.
Use group appointments to: Tips for keeping health facility records:
• educate patients about their conditions; Complete registers by the end of each day.
• develop peer support and expertise; Keep Treatment Plans/cards in a file box, divided by date of the planned
• promote self-management; follow-up visit.
• conduct clinical follow-up; and Ensure that registers and cards are kept in a secure and confidential
• address difficulties. location.
Use peer educators or "expert patient" to help organize group
appointments and to present educational material. GOOD COMMUNICATION
Tips for team meetings: Communicating with clinicians at the district hospital/clinic:
The purpose of team meetings is to communicate, to share efficiently These clinicians are part of your clinical team. If you are in a peripheral
patient information and Treatment Plans, and to share responsibility for all facility, methods need to be developed for good communication and at
aspects of care and outcomes. least yearly meetings.
Discuss only a subset of patients each week. Communicate with district hospital/clinic concerning all chronic
The team leader should prepare weekly patient list and agenda. patients, even when treatment is initiated at the first-level facility.
Develop among the team a consistent understanding of each patient’s Coordinate care with appropriate clinic/clinicians.
goals, the Treatment Plan and key messages to be delivered by the team Refer patients back to clinicians as appropriate.
members.
P10 P11