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THEBASICSOFPATIENTNAVIGATION
Lesson4:IdentifyingResources
LearningObjectives
x Createalistofpatientresources,whicharebothinternalandexternal
x Evaluateresourcesforappropriatenessforpatient
x Acquireresourcesforpatientasappropriate
x Indicatesituationsinwhichclinicalreferralisrequired
KeyTakeaways
x Assetmappinghelpsyouidentifyresourcesthatcanbehelpfultoyourpatients.These
mightincludeindividuals,suchasfriends,familiesorotherindividualsinapatients
supportnetwork.
x Aresourcedirectorycanhelpyouorganizeinformationaboutresourcesand
systematicallycapturethesameinformationabouteach.
x Itsimportanttomakesurearesourceisagoodfitforthepatient.
x Itsalsoimportanttoassessthecredibilityorresources.
x HealthontheNetFoundation,orHON,isaninternationalorganizationthatpromotes
andguidesuserstowebsitesthatprovidereliableandusefulinformation.Websiteswith
anHONlogoassurethepatientnavigatorthatthewebsiteiscredible,current,contains
pertinentinformationandstatesprivacyandfinancialdisclosures.
x Trytopreparebeforecontactingorganizations,andmakesureyoumaintain
professionalrelationshipswiththem.
x Becauseresourcesarelimitedandmanypatientsneedhelp,patientnavigatorsneedto
begoodstewardsofresources.Thismeansthatyoumustprioritizeresourcesforthe
neediestpatients.
x Alwaysrefertoaclinicianforemergencies,medicaladviceorconsultationand
counseling.
OncologyPatientNavigatorTraining:TheFundamentals
GeorgeWashingtonUniversity(GW)CancerInstitute2015
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T ICSOFP
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ATION
LESSON N4:IDENTIFYYINGRESOUURCES
AssetM
Mapping
Sample eResourceDDirectory
TipsforrMakingYouurResourceDirectory
EvaluattingResourcces
Callingorganizationns
TipsforrStewardinggResources
ResourcesforPatieentNavigato
ors
ResourcesforPatieents
AssetMa
apping
Manyoftheresource
espatientsn
needwillfallinthesegeeneralcontentareas:
Treaatment Psychosoccial
Physicallissues Practicali ssues Seervicereferrrals
options issues
Anassetisausefulo
orvaluableth
hing,personn,orquality.Assetmapp
pinghelpsyo
ouidentify
resourcesthatcanbehelpfultoyourpatientts.Assetscaanbe:
Aperson
A
Acommunity
A yorganizatio
onorinstituttion
Aphysicalstr
A ructureorplace
Aservice
A
Assetscaanbe:
Sttate,regionaalor
In
ndividual Network Loccalcommunity
national
OncologyPatientNaviggatorTrainingg:TheFundamentals
GeorgeW
WashingtonUn niversity(GWW)CancerInsttitute20155
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SampleResourceDirectory
Thissampleresourcedirectoryisalsoavailablefordownloadandmodification.
OrganizationProfile
Date
ContactInformation
OrganizationName ContactName ContactTitle
AddressCity,State,Zip
Email Phone1 Phone2
ResourceInformation
TypeofOrganization
AgencyBusinessCommunitybasedorganizationInformalneighborhood
organizationReligious/spiritualorganizationSchoolOther:
Servicesprovidedfor Typeofpatientsserved: Eligibilityrequirements:
patientstypically
servedbynavigator
withspecific
conditions?
YesNo
Applicationprocess Timeforapplicationtobe Limitationonservices:
Applied/Pending reviewedandapproved:
Needtoapply
Applied/Approved
ProgramName:
Fees Bilingual Comments
Feeforservice: Bilingualstaffavailableand
$_______________ someonewhoanswersthe
phonein_________________
NoFeeforservice language
Source:AdaptedfromDrisko.n.d.
OncologyPatientNavigatorTraining:TheFundamentals
GeorgeWashingtonUniversity(GW)CancerInstitute2015
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TipsforMakingYourResourceDirectory
Belowaresometipsformakingyourownresourcedirectory:
Identifypersonal,networkandcommunityassets
Interviewindividualsfromformalandinformalorganizations
LookforresourcesatLocal,StateandNationallevels
Includeresourcestomeetbasicneedsinadditiontodiseasespecificresources
Completetheresourcedirectoryform(s)
Compileinanotebookorenterindatabaseanduseexistingresourcedirectories
Source:PNTC.
OncologyPatientNavigatorTraining:TheFundamentals
GeorgeWashingtonUniversity(GW)CancerInstitute2015
Page 135
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Evaluatin
ngResource
es
Thereare
eseveralcritteriayoucanusetoasse
essresourcees:
Whospon nsorsthesitee?Canyoueaasilyidentifytthesitesponssor?
Whatisth
hemissionoffthesponsoringorganizattion?
Sponsorship
Whatbiassmaytheorgganizationbriingtotheinfo ormationpro ovidedontheir
site?
Howuptodateisthe site?
Currrency TheWebssiteshouldbeeconsistentlyyavailable,wwiththedateo
ofthelatest
revisionclearlypostedd.Thisusuallyyappearsatthebottomoffthepage.
Informationshouldbeefactual.Youshouldbeab bletoverifyth
hefactsfroma
nformationsoourcesuchassprofessionalliteratureorrother
primaryin
websites.
Information
Informationrepresenttedasanopin nionshouldb beclearlystattedandthe
sourceshouldbeidenttifiedasaquaalifiedprofesssionalororgaanization.
Informationshouldsu pport,notreeplace,thedo octorpatientrelationship.
Thewebssiteshouldcleearlystatewh
hethertheinfformationisiintendedfor
theconsuumerortheh ealthprofesssional.
Audiience
Thedesiggnofthesite shouldmakeselectionofoneareaoveertheother
cleartoth
heuser.
Thewebssiteshouldre specttheprivvacyandconfidentialityoffpersonaldata
Privacy
submitted
dtothesite.
FinancialDisclo
osure Thewebssiteshouldfu llydisclosefu
undingsourcees.
esthathavetheHONCo
Resource odelogohavvebeendeem
medreliableebytheHealthontheN
Net
Foundatiion,orHON..
OncologyPatientNaviggatorTrainingg:TheFundamentals
GeorgeW
WashingtonUn niversity(GWW)CancerInsttitute20155
Page 136
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Onceyouknowaresourceiscredible,youneedtoassesswhetheritisagoodfitforyour
patient.Youcanaskyourselfthefollowingquestions:
Doesyourpatientwant theresource?
Isyourpatienteligible toreceivetheresource?
Isyourpatientthetargetaudiencefortheresource?
Readinglevel,healthliteracy,culture,language,amountofinformation
desired
Canyourpatientfeasiblyaccesstheresource?
Sources:PNTC;HON.2015.
OncologyPatientNavigatorTraining:TheFundamentals
GeorgeWashingtonUniversity(GW)CancerInstitute2015
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CallingO
Organizations
Whatasssistancedoessthepatientnneed?
Knowwwhatyouare Whatisthepatientstimeframe?
asskingfor Whatinfformationwillthepatient needto
know?
Whatdoyouknowaboutthe
Knowwho oyouare organization?
calling Whatinfo ormationwilltheorganization
wanttoknowaboutth hepatientor
situation??
Beperssistent!
Onceyou
uhaveprepaaredtoconttacttheorgaanizationyouucanusethefollowingsteps:
Introduceyourself
Conciselystatetheneed
Makesureyo
ouaretalkinggtotherightperson
Elaborateondetailsifnee
eded
Askkeyquestions
Source:P
PNTC.
OncologyPatientNaviggatorTrainingg:TheFundamentals
GeorgeW
WashingtonUn niversity(GWW)CancerInsttitute20155
Page 138
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TipsforStewardingResources
Becauseresourcesarelimitedandmanypatientsneedhelp,patientnavigatorsneedtobegood
stewardsofresources.Thismeansthatyoumustprioritizeresourcesfortheneediestpatients.
Prioritize
resources
across
patients
Donot
Update
resources Stewardship overuse
resources
Ensure
patientsget
mostrelevant
andhelpful
resources
OncologyPatientNavigatorTraining:TheFundamentals
GeorgeWashingtonUniversity(GW)CancerInstitute2015
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ResourcesforPatientNavigators
x HealthOntheNetFoundation(HON)
HONpromotesandguidesthedeploymentofusefulandreliableonlinehealthinformation,and
itsappropriateandefficientuse.
x 211.org
Thiswebsiteincludesasearchablelistof211directoryservicesacrossthecountry.
x TheCommunityToolboxsIdentifyingCommunityAssetsandResources
Thissectionofthesiteincludesinformationonassetmappingaswellasfreetoolsto
helpyoucreateanassetmap.
x AgencyforHealthcareResearchandQualitysChooseMoreUnderstandableand
ActionableMaterials
AHRQsPatientEducationMaterialsAssessmentTool(PEMAT)andUsersGuide
providesasystematicmethodtoevaluateandcomparetheunderstandabilityand
actionabilityofpatienteducationmaterials.Byselectinghealthmaterialsthatscore
betteronthePEMAT,youcanbemoreconfidentthatpeopleofvaryinglevelsofhealth
literacywillbeabletoprocessandexplainkeymessages,andidentifywhattheycando
basedontheinformationpresented.
ResourcesforPatients
x NationalCoalitionforCancerSurvivorshipsCancerSurvivalToolbox
TheCancerSurvivalToolboxisafree,selflearningaudioprogramthatpeopledevelop
skillstobettermeetandunderstandthechallengesoftheirillness.Itincludessections
oncommunicating,findingInformation,makingdecisions,solvingproblems,negotiating
andstandingupforyourrights.
x TheJointCommissionsPatient101:HowtoFindReliableHealthInformation
Thisguidehelpspeoplefindreliable,trustedsourcesofhealthcareinformationonthe
internet.
x MedicineNet.comsTips:SearchingforCredibleHealthInformationontheInternet
Thiswebpageprovidestipsforpatientsonfindingcrediblehealthinformationonline.
OncologyPatientNavigatorTraining:TheFundamentals
GeorgeWashingtonUniversity(GW)CancerInstitute2015
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Module4,Lesson4:IdentifyingResources
References:Presentation
CancerSurvivalToolbox.n.d.WeighingtheProsandCons[Audiofile].Retrievedfrom:
http://www.canceradvocacy.org/resources/cancersurvivaltoolbox/basicskills/making
decisions/.
CommunityToolbox.Chapter3.AssessingCommunityNeedsandResources:Section8.
IdentifyingCommunityAssetsandResources.n.d.Retrievedfrom:http://ctb.ku.edu/en/table
ofcontents/assessment/assessingcommunityneedsandresources/identifycommunity
assets/main.
DriskoJ.ResourceDirectorytemplate.CommunityVoicesProgram.DenverHealth.
http://www.denverhealth.org/medicalservices/primarycare/ourservices/community
servicesandresources/communityvoicespatientnavigatiors.
GWCancerInstitute.ExecutiveTrainingonNavigationandSurvivorship.2014.Availableat:
http://tinyurl.com/GWOnlineAcademy
HealthontheNetFoundation.2013.Retrievedfrom:https://www.healthonnet.org/.
PatientNavigatorTrainingCollaborative.n.d.Retrievedfrom:
http://patientnavigatortraining.org/.
References:BriefQuiz
CommunityToolbox.Chapter3.AssessingCommunityNeedsandResources:Section8.
IdentifyingCommunityAssetsandResources.n.d.Retrievedfrom:http://ctb.ku.edu/en/table
ofcontents/assessment/assessingcommunityneedsandresources/identifycommunity
assets/main.
DepartmentofHealthandHumanServices.QuickGuidetoHealthLiteracy.n.d.Retrievedfrom:
http://www.health.gov/communication/literacy/quickguide/healthinfo.htm.
GWCancerInstitute.ExecutiveTrainingonNavigationandSurvivorship.2014.Availableat:
http://tinyurl.com/GWOnlineAcademy
DriskoJ.ResourceDirectorytemplate.CommunityVoicesProgram.DenverHealth.
http://www.denverhealth.org/medicalservices/primarycare/ourservices/community
servicesandresources/communityvoicespatientnavigatiors.
PatientNavigatorTrainingCollaborative.n.d.Retrievedfrom:
http://patientnavigatortraining.org/.
PrattChapmanM,WillisA,MasselinkL.Corecompetenciesforoncologypatientnavigators.
JournalofOncologyNavigationandSurvivorship.April2015.
OncologyPatientNavigatorTraining:TheFundamentals
GeorgeWashingtonUniversity(GW)CancerInstitute2015
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