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Educate nephrology
community about
new Pre-ESRD classes
and current pilot
programs in the
greater Houston area
CKD EDUCATION
Knowledge is Powerfor us and our
patients. To educate patients is the
highest form of care we can give. It
empowers our patients to make changes
big and small to improve their health and
quality of life. It empowers them with
control and information to feel more
relaxed in an anxiety producing situation
of CKD transition to ESRD.
Incidence by Race
2008
Influenze vaccine
Blood Pressure control
Referral for an AV fistula
Laboratory values Ca, PO4, PTH, Lipid profile
Why Educate?
WhyEducate? And When? The earlier the better.Start
education by stage 2 or 3 to have the biggest impact.
One reason is we must. The new cfc regulations are
requiring pt education on kidney disease, treatment
options, accesses. I dont think this man had his Save my
vessels class information or he would not allow anyone to
stick him up and down both arms.
Another reason: It is smart use of patients time and energy.
Pts who use this information stay healthier longer and start
dialysis in a better place both physically and mentally. If
they come to us healthier they start healthier in ESRD
with better Outcomes, more choices and better quality of
life.
They make better choices: more open to dialysis options
when starting dialysis not an emergency. When pt education
is done ahead of starting dialysis Home dialysis is chosen
more often.
What is community-based
education?
Patient education program that
includes:
Multidisciplinary coaching program
Stage-specific education
Easy education referral process
Follow-up with patients and physicians
Sessions are free for patients and guests
Location
Multidisciplinary Coaching
Multidisciplinary
coaching program
Inform patients about their
kidney health
Improve quality of life
Preserve renal function
Help patients identify the
best treatment choice for
their lifestyle
Tools to organize and track
their health care
Health Diary
Multidisciplinary education
Tools Provided
An initial postcard and quarterly e-newsletters
Valuable tools from a well-regarded website,
http://davita.com
Health Diary
Resource for the patients
Patient information
Healthcare phone numbers
History and Physical
Medication list
Lab work
Diabetes and Hypertension
Glossary
What stage am I?
This is the question most patients ask. We review kidney function and the
stages of kidney disease. We review how this calculation works and that is
based on both kidneys. We discuss that the stages are generally progressive
but that patients can impact or slow the progression of kidney disease with
diet, medications and healthy behaviors. Patients need to be informed and
ask lots of questions of their health care team and physicians.
Learning how well the kidney is functioning is important not only in screening and diagnosing chronic kidney disease (CKD), but in following
its progress.
Although there are various ways to do this, the simplest is the MDRD GFR (glomerular filtration rate) which can be calculated using a
patients age, race, gender and a laboratory test, known as the serum creatinine. The muscles are in a constant state of being broken down
and being repaired.
The creatinine is a byproduct of this breakdown and is generally stable in the blood from day to day.
While the serum creatinine is an indication of kidney function, its variation with muscle mass makes using the other factors mentioned
above necessary.
This equation was derived from a large study published in 1994 that looked at how the modification of dietary protein would affect renal
disease hence Modification of Diet in Renal Disease (MDRD).
This study required a very accurate measurement of kidney function. The investigators noticed the mathematical relationships between the
accurately measured GFR, age, race, creatinine and gender, and derived the MDRD study equations still in use today.
It is also referred to as the eGFR. This GFR is used to determine what stage of kidney disease one has, stages 1 and 2 being very mild,
with GFRs above 60 ml/min.
When the GFR is greater than 60, other markers of kidney function such as an abnormal urine or abnormal ultrasound are necessary for
making the diagnosis. When the GFR is less than 60 for greater than three months, it indicates the presence of CKD.
Once the GFR is calculated, and repeated in 3 months we also need to look at other markers of Kidney disease. While this is
necessary if the GFR is > 60, we also recommend testing for markers strongly in everyone since it helps us reverse the reversible
and get a better diagnosis. Markers include the renal ultrasound and the urinalysis.
Although the calculation involves some complicated math tricks, it was programmed for the Internet shortly after it was discovered, and is
on the Web at www.mdrd.com.
The National Kidney Foundation uses the same application. It has also been programmed for handheld calculators.
Many laboratories routinely report the MDRD GFR along with the serum creatinine value. As more and more laboratories standardize their
serum creatinine measurements to the National Institute of Standards, the equation will change slightly, but that change is also programmed
and available at www.mdrd.com.
When using the program, simply key in your serum creatinine, age, race and gender and your GFR value will appear. The site will also
calculate your kidney disease stage. It is important that you personally keep track of your serum creatinine and GFR values.
All Patients
Measurement of blood pressure
Serum creatinine to estimate GFR
Protein to creatinine or albumin to
creatinine ratio in first AM or random
untimed spot urine specimen
Examination of the urine sediment or
dipstick for red blood cells and white
blood cells
Stage-Specific Education
Taking Control of Kidney Disease
Living with Stage 3 and Early Stage 4 CKD
Focus on preserving renal function
Treatment of CKD
Blood Pressure
Target
(mm Hg)
Preferred Agents
for CKD, with or
without
Hypertension
Other Agents
to Reduce CVD Risk
and Reach Blood
Pressure Target
ACE inhibitor
or ARB
Diuretic preferred,
then BB or CCB
<130/80
None preferred
Diuretic preferred,
then ACE inhibitor,
ARB, BB or CCB
CCB, diuretic, BB,
ACE inhibitor, ARB
Traditional cv
risk factors
Non
traditional
risk factors
Inflammation
Diet
Class reinforces
bone and
heart healthy diet.
Stage 3
Preparation
Anemia
Acidosis
Blood pressure - ACES & ARBS
Inflammation
Diet
Modality Choice
Access Preparation
Anemia in CKD
Anemia management with EPO since 1990s Keep Hct < 42
N Eng J Med 339:584-90, 1998
Keep hgb 10 - 12
CHOIR
CREATE
EPO
RBC
RBC PRECURSOR
Acidosis
Increased protein catabolism of amino
acids
Inhibition of protein synthesis can cause a
low albumin
Accelerates renal osteodystrophy
Modulates vitamin D and parathyroid
hormone levels
Evokes insulin resistance
Albumin Synthesis
Chronic acidosis impairs albumin
synthesis and causes negative
nitrogen balance
JCI 95:35-45, 1995
Albumin - major marker for
nutrition
Low serum albumin - risk factor
for poor dialysis outcome
It is advisable not to restrict
dietary protein once the serum
albumin level starts to fall
Metabolic Acidosis
REGENERATES
BUFFER
SECRETES
ACIDS
Benefits of anemia
correction
Vascular Calcification
Kidney damage causes decreased
phosphorus excretion. This stimulates
phosphotonins to increase phosphorus
excretion.
Phosphotonins and kidney damage decrease
the activation of vitamin D
This weakens muscles, decreasing bone
strength.
This decreases the calcium depositing in
bone, and along with phosphorus leads to
changes in blood vessel cells
Calcium deposits in blood vessels
Inflammation and Hyperlipidemia (metabolic
syndrome) make this worse
High fructose corn syrup makes metabolic
syndrome works
DIET IS IMPORTANT!!!
Vitamin D level
Parathyroid hormone level
Ergocalciferol over the counter
Vitamin D is probably for everyone
regargless of stage
At later stages you might need an
active form of vitamin D
Exercise and diet management
The doctor may want to check for
vascular calcification
Recommendations
Inflammation - Dental hygiene, fiber in early
stages, exercise, keep trim. If we develop a
stomach illness like helicobacter, get it
treated. Keep toenails trim.
Atherosclerosis - Check the serum
cholesterol, LDL, VLDL, HDL - use diet,
exercise, medications (statins, usually) to
keep these numbers in the proper range
Stage-Specific Education
Making
Healthy
Choicesfor Stages 4 and 5 CKD
Preparing
for dialysis
Symptoms of Uremia
Controlled dialysis start
CKD and dialysis diet
Control of co-morbidities DM/HTN
Medications Call your Nephrologist
Access No to catheters, Yes to fistulas Vein Map
All treatment choices
Insurance issues
What kidneys do
What causes kidney disease Symptoms of Uremia Nausea and vomiting, Taste changes, Swelling, SOB, Itching, Lack of concentration
and memory issues.
Preparing for dialysis Preventing the Crash and Burn admission to dialysis. No one knows the exact moment but working with your
doctor will help to get the time right for you. We can delay but not forever without it damaging your health due to malnutrition or heart or
stroke.
Managing your health through diet. Review diet changes at the end of stage4, especially related to low protein, potassium, phosphorus,
salt and fluid. What the stage 5 diet is for the different treatment modalities. Most of the pts enjoy knowing their diet will get more protein
on ESRD than in stage 4.
Control of DM and HTN Protect your heart and vasculature as well as your kidney function never stops. Dialysis patients do not die from
dialysis. They die from infection and Cardiac/Vascular disease due to DM and HTN. BP and BS Heart healthy behaviors. Diet, Exercise,
Stop smoking. We all know it .
Common medicines for people with kidney disease Phosphorus binders, Vitamin D, Renal Vitamins, Bicarbonate, EPO. Stay off magnesium,
aluminum products. Call doctor for any new meds prescribed or OTC or from other doctors. Stay away from IV dye contrast.
Access information and planning early with stage4 No to catheters yes to fistulas. Lots of info about best choice and get it now.
Fistulas may take months to mature. Be sure to get vein mapping done prior to surgery for improved success with fistulas. You dont take
a trip without a map you dont want surgery without a map either. CVC catheters have more infections, clotting, hospitalizations and
deaths. Be sure to remove CVC catheters as soon as possible. Getting a CVC catheter may be necessary for a short while for initial dialysis
but getting your fistula now will shorten that time and may save your life.
An in-depth look at all of treatment choices:
Transplant
Conservative treatment
Choosing the right treatment for your lifestyle, especially if you want to continue working or have active life.
Understanding Insurance state and federal insurances and when to apply for secondary insurance especially if want transplant due
to medication cost. We have saved patients money by assisting with insurance questions.
Modality Choice
PD - 7% of population
Preference values higher than for HD 74-69
Physicians in practice 11 years along more likely to refer
to PD
More likely recommended to men, people with residual
function, with weight less than 200 lb and the absence of
diabetes
Hong Kong
PD References Early
referral helps
1. Bass EB, Wills S, Fink NE, et al: How strong are patients' preferences
in choices between dialysis modalities and doses? Am J Kidney Dis
44:695-705, 2004
2. Winkelmayer WC, Glynn RJ, Levin R, et al: Late referral and modality
choice in end-stage renal disease. Kidney Int 60:1547-1554, 2001
3. Lin C-L, Chuang F-R, Wu C-F, et al: Early referral as an independent
predictor of clinical outcome in end-stage renal disease on hemodialysis
and continuous ambulatory peritoneal dialysis. Ren Fail 26:531-537, 2004
4. Thamer M, Hwang W, Fink NE, et al: US nephrologists'
recommendation of dialysis modality: results of a national survey. Am J
Kidney Dis 36:1155-1165, 2000
5. Wang AY-M, Wang M, Woo J, et al: Inflammation, residual kidney
function, and cardiac hypertrophy are interrelated and combine adversely
to enhance mortality and cardiovascular death risk of peritoneal dialysis
patients. J Am Soc Nephrol 15:2186-2194, 2004
Home Hemodialysis
Short - 2 hour per day X 6 days per
week
Long - Overnight X 6
Prospective patients
Visit during CKD
Logistics, location and type of
equipment
NxStage - 70 pounds
2008K@home (BabyK)
May need plumbing and electrical
Nocturnal Home
Hemodialysis
May be able to stop
binders
May need supplemental
phosphorus
Less hypertensives
Less epo
Less fluid restriction
Nocturnal in-center for
select patients
Access Preparation
Arteriovenous
fistula - 1966
Lasts many years
Veins arterialize
Arteries expand
Capillaries and
larger vessels
absorb shock
Graft transmits
shock and lasts only
around 18 months
Empower Team
Call patient
Schedule class
The CKD community-based process begins and ends with the office team
First, the office will need to identify patients who are Stage 3, 4 and 5 that need
CKD education.
Next, refer those patients for education by completing and faxing the referral
form (show form). The patients are notified, enrolled in a class and called to
remind them of class approximately 1 week prior. The day of class, patients will
complete an attendance form and evaluate the class. This data will be recorded
at the call center.
The recorded data allows the educators to provide the office with information
affecting patients and practice. We can extract the number of your patients
who have attended a class, which class they have attended, their stage of CKD,
access preparation for dialysis, type of access, modality choice just to name a
few of the components.
Ultimately, the goal is help patients to take control of their CKD and, if dialysis
is needed, that they begin dialysis healthier and prepared.
Communication is crucial
Nephrologist receives a letter from CKD
educator
Indicates what class patient attended
High lights no shows
Lists concerns and/or modality interests if
expressed
Follow-up
We will provide a follow up letter for every patient that is
educated, indicating which class the patient attended;
what material was covered; any concerns they
expressed and for late stage patients, their modality
interest.
We maintain telephonic contact with your patients
referred and educated to develop an understanding of
their education needs and to help support them through
additional classes and guidance to resources. As
previously mentioned, an initial postcard and quarterly
e-newsletter are delivered to introduce the valuable
tools that a well known website, DaVita.com offers GFR
calculator and tracker, over 500 CKD recipies, DaVita
Diet Helper, CKD videos and more.
All medical questions will be referred the physician.
Summary of Stages
They need to have laboratory studies Ca, PO4, PTH, lipid profile
Patients
Physician
Taxpayers
them
Patients stay employed and
insured
Decrease burden on Medicare
Success Stories
Success Stories
Patients need information and change can
happen
Pt went from stage 4 to stage 3 and thanked us for
the class.
The End