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I can have a For the last few years, Birgit has had ALS and
meaningful as a result of the disease, lost the use of her
conversation limbs and voice.
On the door of Birgit Krumschmidt’s living getting MyTobii is that I can write emails “‘You’ve typed before’ he said the first time
room hangs a note encouraging those who and have meaningful conversations with my he saw me use MyTobii. He had expected
enter to first greet Birgit and then to stand husband, without any misunderstandings or it to take about two weeks for me to get
Tobii_UserStory_Birgit_080609_EUR
behind her MyTobii screen. The reason having to involve other people,” says Birgit. used to using my eyes to control the screen
for this is that Birgit is often in the middle and key board. But before he left that day,
of a private conversation via eye control In her everyday life, she personally I was already making headway. It was a
communication. maintains contact with her doctors, renews fantastic experience to once again be able
prescriptions, reads local newspapers to express my thoughts,” Birgit says.
The technological aid has given Birgit her online, writes emails to family and friends,
‘voice’ back and with it, new dignity as a and talks with her helpers via her MyTobii. News for many people
human being. Now she can once again “I have yet to meet any doctors or other
express her thoughts and wishes, manage “It is important to me that people respect hospital staff who know about the new
several tasks herself online and via email, me for the person I am. I have regained a technology of eye control. Ole and I agree
and not least, communicate in detail with small part of my life with MyTobii, and I have that something must be done about this
everyone, from doctors and helpers to gained access to several new possibilities because as an aid, MyTobii helps ease
family and friends. that I am trying to take advantage of. It is everyday life in a very tangible way, just like
impossible to describe how it feels to once a wheelchair does,” says Birgit.
”Previously, when I went to talk with the again be able to talk with my husband and
ALS team at the hospital, conversations did 20-year-old son – it has made a huge According to Birgit Krumschmidt, living
not always take place on my terms. I would improvement to my quality of life.” with ALS cultivates patience; but with her
be left with unanswered questions. This eyes and MyTobii she has regained a little of
caused many frustrations. Today, I have Quick on the keys her personal voice:
MyTobii with me and can present extensive Birgit is in close contact with Ole Brunbjerg
questions that I have prepared in advance,” from Fanø Soft who regularly helps her “Now I don’t have to be content with saying
says Birgit. adjust the set-up and optimise the device just yes and no.”
so that she has the support she needs and
Regaining a small part of life wants.
“What has surprised me the most about
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