1he number o Connecticut inants who died between 2001 and 2013 where unsae sleep conditions were present was almost three times the number o inants who died rom child abuse.
Lach year inants die unnecessarily in Connecticut. 1his Public lealth Alert outlines the tragedy o inant atalities associated with unsae sleep conditions and makes recommendations or preention.
Inant latality Risk lactors
Sleeping in adult beds with adults and other children Sleeping in beds with comorters, blankets and duets Sleeping on couches or chairs when caregiers sleep holding them Sleeping in cribs with stued animals, blankets, toys and other items Oerdressing,oerheating baby Propping bottles
Research also conirms additional risk actors associated with sudden inant death. Mental health challenges, including depression Substance use, including alcohol or drugs Smoking Obesity Parental isolation
1hat is an unsafe sleep related infant fatality? Unsae sleep related causes o inant death are linked to how or where a baby sleeps. Deaths may be due to blockages o the nose,mouth, entrapment,chest compression ,when an inant gets trapped between two objects, such as a mattress and wall, and cannot breathe or oerlying,, or suocation rom a low oxygen,high carbon dioxide enironment ,under a blanket,.
"CK C:>;7 LC ?7:97>8 ?7 (C77;D>?DE> L?; :BCA E789:; 8<;;=?7M DC7L?>?C78N Inants in Connecticut are more likely to die rom unsae sleeping conditions than rom child abuse, car accidents, choking, drowning, alls, or any other source o accidental injury.
1 \hen inants die unexpectedly, this is called Sudden Unexpected Inant Death ,SUID,.` SUID includes all unexpected deaths: Deaths without a clear cause, such as SIDS, and deaths rom a known cause, such as suocation or other sleep-related causes. Sleep-related deaths are not SIDS. SIDS is term or the sudden death o an inant under 1 year o age that cannot be explained, een ater a complete death scene inestigation, autopsy, and reiew o the inant's health history.
GHII 97L GHIG '7:97> &9>9<?>O PO >Q; -EAP;B8 In 2011 and 2012 there were 43 inants who died where the causes o death were SUID, SIDS, or undetermined.` 2
1here were 24 inant cases in 2011 and 19 inant cases in 2012. 30 were boys and 13 were girls. %: >Q;8; [J E7;@=;D>;LF E7;@=<9?7;L ?7:97> L;9>Q8, JI ?7:97>8 Q9L B?8S :9D>CB8 988CD?9>;L K?>Q >Q;?B 8<;;= ;7T?BC7A;7>U \C8> DCAAC7 E789:; 8<;;= ;7T?BC7A;7>8 ?7 (! :9>9<?>O D98;8 Co-sleeping in an adult bed with parents or siblings Car seat In a crib with blanket, pillows, or placed on their stomachs Put to sleep with a bottle in an adult bed
'7:97> &9>9<?>?;8 ?7 (C77;D>?DE> CT;B !?A; 1he Oice o the Child Adocate also conducted an ealuation 211 inant atalities between 2002 and 2010 that were classiied as due to SIDS, SUID, Undetermined or Accidental Asphyxia.
11 inant deaths were classiied as SIDS, a inding that may not accurately account or unsae sleep conditions present at the time o death.
inant deaths were classiied as undetermined,` a inding oten associated with unsae sleep` conditions.
1 inant deaths were classiied as due to asphyxia.` 3
\e cannot say deinitiely how many o the 211 inants outlined aboe died rom unsae sleep conditions, but an OCA reiew o at least 140 o these deaths had indings associated with unsae sleep enironments including inants sleeping in bed with adults, in bed with other children, and in bed with adult pillows, toys, comorters, stued animals and other items.
Are unsafe sleep fatalities trending up or down in C1 over the years? 1his is as diicult question to answer. Oerall the percentage o inant deaths classiied as SIDS has shown a downward trend, but this has not translated into an oerall decline in inant deaths. low we categorize indings regarding inant death has changed oer time, and ewer inants are now determined to hae died rom SIDS. More inants are now categorized as haing died rom SUID--Sudden
2 See Note 3 inra. 3 Oer the last ten years, states are decreasing SIDS indings and increasing undetermined` and asphyxia` indings as atality reiews and scene` inestigations become more thorough. "#$%& %
Unexplained Inant Death-- an umbrella term coering multiple inant death causes, including SIDS and suocation.
'> ?8 *?::?DE<> >C +<K9O8 97L (C7D<E8?T;<O *;>;BA?7; (9E8; C: '7:97> *;9>Q :CB 4;T;B9< +LL?>?C79< 0;98C783 1. Inconsistent oicial use o SIDS` to explain inant atality. SIDS should only be an oicial cause o death` when medical examination and scene inestigation reeal no other potential causes or risk actors, such as abuse, unsae sleep conditions or underlying medical issues. loweer, een today, SIDS may still be gien as the cause o death` een where there has been limited or no scene inestigation, and limited police inestigation. 2. Inconsistent inestigations related to the scene o unexpected and unexplained inant atalities result in lack o inormation that would be essential to understanding cause o death. Not eery case is handled in the same way. Inants may be moed, scenes disrupted, certain inormation not obtained, e.g., toxicology screens o parent. 3. Lack o uniorm training and protocols regarding examination and inestigation o unexpected, unexplained child atalities. Len dierent medical examiners approach cause o death` inestigations dierently.
DCI'S (B?>?D9< 0C<; ?7 '7:97> *;9>Q 2B;T;7>?C7 Based on our reiew o 2013 data, many amilies who suered a sudden inant death in Connecticut had been inoled with the Department o Children and lamilies. 1here is urther research to show that amilies under Child Protectie Serices` Superision are 3 times more likely to hae a Sudden Inant Death than those that are not. 4 1his is likely due to related risk actors or sudden inant death such as mental health challenges and substance abuse.
'A=CB>97> GHI[ 2C<?DO *;T;<C=A;7> :BCA *(& Connecticut Department o Children and lamilies recently issued a new agency policy emphasizing the role that case workers will play in educating amilies about sae sleep,` and ensuring such expectations are part o amilies` case plans. 1his is a critical deelopment gien that DCl interaces with thousands o parents o young children each year. Gien the importance o this new policy in reducing child deaths, DCl should incorporate this policy into training and rigorously enorce compliance through spot checks o the records o all children under 1 year o age. 5
0#(%\\#-*+!'%-4 &%0 )+1\+]#04 1. +77E9< (Q?<L &9>9<?>O 0;=CB> 97L ";9B?7MU Support eorts by the Oice o the Child Adocate and the Child latality Reiew Panel to report annually to the Connecticut General
4 Putnam-lornstein L. Schneiderman JU. Clees MA. Magruder J. Krous ll. A Prospectie Study o Sudden Inant Death ater Reported Maltreatment. ]ovrvat of Peaiatric.. 11;1):112, 2011 ]av. 5 Connecticut Department o Children and lamilies, Standards and Practice or Sae Sleep Lnironments: Assessing the Saety o an Inant`s Sleep Lnironment,` Practice Guide to be used in conjunction with DCl Policy 34-12-8 ,2014,. 0#(%\\#-*+!'%-4 !% 20#,#-! .-4+&# 4)##2 0#)+!#* '-&+-! *#+!"
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Assembly the number o sleep-related deaths o inants. Legislation may consider the alue o an annual hearing regarding atalities, causes, trends, and preention strategies. 2. 4E==CB> 2;L?9>B?D (CE78;<?7M 0;M9BL?7M 49:; 4<;;=U Lnsure reimbursement or primary care proiders or the time spent counseling amilies regarding a sae sleep enironment or inants. Analogous reorms were implemented in other states such as \ashington or oral primary care. i
3. '7DB;98; 4DB;;7?7M :CB \9>;B79< *;=B;88?C7U Gien the link in the national data between mental health challenges and unsae sleep` atalities, it is critical that Medicaid and commercial carriers support screening or maternal depression and increased access to in- home supports or high need mothers. Although Connecticut has not done consistent, in- depth inestigations into the parental proiles o parents who suer an inant loss as described in this paper, our recent data does conirm a number o the inants who died had parents with documented histories o substance abuse and inolement with the Department o Children and lamilies. 4. (C77;D> "CA; ,?8?>9>?C7 97L (<?7?D9< "CA;ZP98;L 4;BT?D;8 >C 2;L?9>B?D8U lome isitation is an eidence-based serice or increasing caregier capacity and improing child well-being. lome isiting programs proide essential support and education to new parents. lome Visitation Serices, including dyadic and clinical home-based serices, should be brought to scale as critical parts o our health care or maternal,child wellbeing. All pediatric primary care proiders should hae direct connection to and collaboratie relationship with home isitation programs or amilies. 5. Mandate safe sleep guidanD; PO Q;9<>Q D9B; =BCT?L;B8U Deise legislation, similar to New \ork and Maryland eorts regarding Shaken Baby Syndrome that mandates anticipatory guidance or proision o a sae inant sleep enironment is deliered by health care proiders to caregiers at newborn hospital discharge. ii
6. #78EB; .7?:CBA )9K #7:CBD;A;7> 97L &?B8> 0;8=C7L;B 2BC>CDC<8 :CB 4ELL;7 .7;@=<9?7;L '7:97> *;9>Q '7T;8>?M9>?C78U Police and irst responders should respond to child deaths as they would to any crime scene. Many departments ollow the Centers or Disease Control Protocol or Sudden Unexplained Inant Death Inestigations ,SUIDI,. Lorts should be made to ensure that protocols are ollowed and police departments and irst responders hae adequate resources to implement SUIDI training. \ashington State created guidelines or irst responders that can sere as a model or Connecticut. . #78EB; .7?:CBA 2BC>CDC<8 :CB >Q; %::?D; C: >Q; \;L?D9< #@9A?7;B 0;M9BL?7M 4ELL;7 .7;@=<9?7;L '7:97> *;9>Q '7T;8>?M9>?C78U Some inestigators conduct thorough scene inestigations and collaborate with police in reenactments which hae led to greater understanding o the causes o Sudden Unexplained Inant Deaths. Medical examiners should adopt standard protocols or SUID inestigations and adopt standard language to identiy causes o inant death. Lxaminers within the Connecticut oice still aryingly classiy inant deaths as SIDS, SUID or Unexplained without clear distinction between terms. 1his makes tracking inant death causation and creating public health responses much more diicult. 8. +LLB;88 49<; C: .789:; '7:97> 6;LL?7M 97L 2C8?>?C7;B8U Regulate the sale and adertising o bedding or inant cribs or cradles, and inant co-sleepers so that any deices that are marketed meet Consumer Protection Saety Commission guidelines or saety. iii
Maryland, or example, banned baby bumpers and positioners, deices that may be promoted as preenting SIDS.
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0#(%\\#-*+!'%-4 &%0 *(&F '-Z"%\# 4#0,'(# 20%,'*#04F +-* ("')*(+0# 20%,'*#04 1. ^E9<?>O #7M9M;A;7> 97L +88;88A;7>U Case planning must include skilled engagement and inormation sharing regarding sae sleep practices, inant needs, resources or caregier support and risk actors or inant death. 2. %E>B;9DQ 97L #LED9>?C7U Organization o outreach programs and dries, and utilization o educational materials like brochures, lealets and DVDs. 1his should include tailoring o sae sleep messages to speciic communities and using trusted igures in the community to adocate these practices. Materials are aailable already rom: KKKUD>UMCT_L=Q_89:;>C8<;;= 97L Q>>=3__KKKU7?DQLU7?QUMCT_4'*4 97L IZRHHZ`H` (0'6 XGV[GYU 3. (C<<9PCB9>?C7 K?>Q 6;8> 2B9D>?D; (;7>;B8U Collaborations may be done with Sudden Inant and Child Death ,SICD, Resource Center, which proides outreach and education on the subject o sae sleep practices and is aailable to proide ree on-site training to local districts and other child welare agencies. 4. %7MC?7M AC7?>CB?7M 97L ;7M9M;A;7> B;M9BL?7M 89:; 8<;;=U Monitoring sleep conditions in home as well as institutional settings, such as hospital inpatient units, childcare proiders, day care centers, oster homes. 5. +LLB;88 P9BB?;B8 >C 89:; 8<;;=U Lxplore with parents any barriers or challenges to ensuring a sae sleep enironment they may be experiencing and assist in identiying and accessing needed resources. Document all actiities.
0#(%\\#-*+!'%-4 &%0 %6Z5/-4F 2#*'+!0'('+-4 +-* "%42'!+)4 1. #7M9M;A;7>F 988;88A;7>F 97L ;LED9>?C7U 1here should be a discussion on sae sleep practices, particularly with parents o inants who all in high risk categories: low birth weight, premature inants, those rom socioeconomically disadantaged backgrounds, or with parents who smoke, drink or are substance abusers. Screening or possible risk actors and exploration o actual parenting practices are necessary components o preention. 2. +LLB;88 DC7D;B78_A?8=;BD;=>?C78U Practitioners should aim to not only inorm caregiers about sleep sae practice guidelines, but also address any concerns about inant sleep that they may hae. Commonly held misconceptions include the stomach` or side` sleep position being more comortable or the inant and reducing chances o regurgitation and choking. 3. +LLB;88 E789:; P;LL?7M 97L =C8?>?C7;B8 L?B;D><OU Use o baby blankets, quilts or bedding sets adertised as `inant riendly, sae`, baby positioners and bumpers and deices marketed to reduce SIDS should be strongly discouraged. 4. \CL;<?7M 6;8> 2B9D>?D;8U Parents are more likely to ollow care practices when they see nursery sta consistently model this behaior in the hospital. Sae sleep practices can be modeled during postpartum care in hospitals as well as out-o-hospital birth settings, such as birthing centers. 5. (C<<9PCB9>?C7 K?>Q 6;8> 2B9D>?D; (;7>;B8U 1he use o sae sleep resources like Continuing Lducation Program on Sudden Inant Death Syndrome ,SIDS, Risk Reduction by NIClD should be used to proide inormation and tools needed to communicate and model SIDS risk reduction messages eectiely and quickly. 6. ,9<E; C: +7>?D?=9>CBO 5E?L97D;U lospitals should consider practice policies that encourage the deliery o anticipatory guidance or proiding a sae inant sleep enironment to caregiers "#$%& (
o inants wheneer they are encountered within the hospital ,e.g. well inant isits, sick isits, Lmergency Department isits, subspecialty care isits,. . #7DCEB9M; 6B;98>:;;L?7M3 Breasteeding, especially during the irst 6 months, has been shown to reduce the incidence o Sudden Inant Death by as much as hal, as long as sae sleep practices are ollowed ater. Paciier use is also encouraged and may hae a protectie eect ater the inant has been weaned o breasteeding.
4+&# 4)##2 5.'*#)'-#4 &%0 2+0#-!4 69DS !C 4<;;= 2C8?>?C7 Studies hae consistently demonstrated that the practice o placing inants on their back to sleep is linked with signiicantly decreased rates o inant deaths, as opposed to those placed to sleep on their stomachs or sides. 1he inant should be placed on his,her back during eery nap time, in eery setting- at home, in childcare, or during traelling. Placing inants who usually sleep on their backs to sleep on the stomach is a high risk actor or sudden inant death. Inants who are able to roll themseles on their stomach, usually ater 5 months o age, need not be repositioned during sleep.
49:; 4<;;= #7T?BC7A;7> 1he saest place or an inant to sleep is a hard surace such as a crib or bassinet that complies with the Consumer Product Saety Commission recommendations. Places like couches, soas, car seats and adult beds are unsae sleep enironments or inants, and may increase chances o suocation and entrapment. 1he sleeping surace should be coered with only a irm mattress and itted sheets. Other extraneous items like sot bedding, pillows, blankets or comorters increase the risk o strangulation, suocation and oerheating and should not be placed in the crib. Inant positioners and bumpers are also sleep hazards and should also not be used. 1he inant should ideally be put to sleep in itted sleepwear at a comortable temperature.
0CCAZ8Q9B?7M PE> 7C> P;LZ 8Q9B?7M Room- sharing, or placing an inant`s cradle or bassinet in the same room as the care gier has shown to be linked with lower rates o Sudden Inant Death, especially during the irst 6 months o the inant`s lie. Sharing a sleeping surace has, on the other hand, been consistently demonstrated to increase the risk o suocation and entrapment. 1he risk signiicantly increases when the caregier has consumed alcohol, is sedated, or excessiely tired.
6B;98>:;;L?7M Breasteed your baby or as long as possible, preerably or the irst year o lie. Ater breasteeding your baby, =E> OCEB P9PO LCK7 C7 Q?8_Q;B P9DS ?7 9 DB?P CB P988?7;> K?>Q 9 :?>>;L 8Q;;>F K?>QCE> >CO8F P<97S;>8 CB =?<<CK8. Keep the baby`s crib or bassinet right next to your bed, so you can see and hear your baby and be able to respond to his,her needs.
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4ACS?7M 97L .89M; C: +<DCQC<F *BEM8 CB !CP9DDC 2BCLED>8 Maternal smoking and exposure to tobacco smoke is a ery important risk actor that has been shown to play a role in almost a third o sudden inant deaths, with risk increasing exponentially with increasing leels and requency o exposure.
0;A;AP;B >C >9<S >C C>Q;B D9B;M?T;B8 9PCE> 89:; 8<;;= =B?CB?>?;8aa Communicate with anyone who will be taking care o the child: babysitters, grandparents, siblings, child care proiders, boyriends, and other caregiers.
i http:,,www.innoations.ahrq.go,content.aspxid~393 ii http:,,www.ncsl.org,research,human-serices,shaken-baby-syndrome-preention-legislation.aspx., see also https:,,www.medstarhealth.org,Pages,Serices,Pediatrics,MedStar-lranklin,Pediatric-Community-Serices-and-Lents-at-MedStar-lranklin- Square.aspx4Sleep ,outlining lranklin Square lospital in Baltimore Maryland`s aidait program or both sae sleep and Shaken Baby Syndrome,. iii http:,,www.cpsc.go,en,Newsroom,News-Releases,2014,New-Inant-Bedside-Sleeper-Standard-Approed,