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DEVELOPING CARING COMMUNITY THROUGH EDUCATION EXTENSION APPROACH APPROACH

RUMAH TERBUKA AIDILFITRI By MUHAMMAD HAFIDZ ABDUL RAMAN GS31595

24 SEPTEMBER 2011 @ 1000-1200 Cancer Resources & Education Cancer (CaRE) Fakulti Perubatan dan Sains Kesihatan (FPSK), UPM.

VISIT & REPORT

Dato Vice Chancellor, Prof. Dr. Mohd Salleh Jaafar

DVC(R&I) and others VVIP = Utusan etc. 35 Kan Work members = cancer patients, survivors, carers and volunteer. 32 others = UPM staff, students and partners. CaRE Hari Raya Open House & Peer Support Group. Eating while sharing experience and education information.

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educate, support & empower Background Two breast cancer survivors, one from Malaysia and the other from USA, initiate the idea of adapting and translating selected educational materials into Bahasa Melayu as one of the ways in providing the much needed information on breast cancer treatment and care in Malaysia. Their effort evolved into a major educational activity; Cancer Resource, Education & Support (CaEd). Leadership for this program is being provided cooperatively by the Universiti Putra Malaysia (UPM) and Cornell University. CaEd was formally launched in Malaysia in September 2003. Now CaEd is known as CaRE. Aspiration To be the frontier leader for cancer education in Malaysia. Goals To develop & provide evidence based cancer information, education & support to Malaysians affected by cancer To develop human and institutional capacity to sustain the above effort

CaRE: CaRE : THE ROLE (in Malay)

Satu pusat penyediaan maklumat, pendidikan dan sokongan kanser, CaRE memberikan kesedaran awal melalui pelbagai program dan sokongan

yang disediakan sepanjang tahun kerana sistem pangkalan datanya memberikan maklumat kepada komuniti tentang perkhidmatan kanser setempat seperti 1. bahan pendidikan kanser, 2. bilik sumber rujukan kanser, 3. program rakan sebaya oleh Kanwork, 4. Program pendidikan kanser, 5. program kaunseling yang dilaksanakan oleh professional kaunselor, 6. maklumat kanser secara online, 7. direktori sumber kanser dan perkhidmatan 8. KanHelp line oleh jururawat terlatih. diaplikasikan.

CaRE adalah pusat dimana Cancer Information, Education & Support (CiES)

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CaRE: CaRE : Analysis of Role

Cancer Research base initiative - cancer education,

food dietary, treatment education, body care education and other health aspect. Emphasizing on MORE to women. Aspiration to become resource center in Cancer Education and Research (CaEd). Open to cancer patients, survivors, their family and individual/organization with interest to help the needy.

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Supporters
The Boeing Company, ExxonMobil Malaysia Corporation, Kamaruzzaman & Associate (E- Media), Persatuan Penterjemah Malaysia (PPM), Spansion (KL) Sdn. Bhd, Universiti Cornell, Majlis Kanser Nasional (MAKNA), BAKTI, PERODUA, and OMNI Group of Companies

Cancer Resource & Education:

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CaRE Activities
Tarikh Program 22 Jan Kesedaran Tentang Obesiti 29 Jan Volunteer Development 24-25 Feb World Cancer Day, UPM 12 Mac Mesyuarat Agong & Maulidur Rasul 9 April Kanser dan Genetik 23 April Program Looks Good Feel Better 7 Mei Paliative Care 21 Mei Urutan Guasa 11 Jun Rawatan Kanser 25 Jun Isu Perundangan dan Wasiat 9 Julai Kanser dan Motivasi Diri 13 Ogos Tazkirah Ramadhan 10 Sep Menyambut Perayaan & Kumpulan Sokongan 8 Okt Terapi Spiritual (Solat Hajat) & Kumpulan Sokongan 12 Nov Kumpulan Sokongan 10 Dis Lawatan Sambil Belajar

CaRE, CaEd, IPSAS, Cornell University, & UPM Penawar Di Tangan Kita (Healing in our hands)

Vission To ensure that individual and their families, who are living with, through and beyond cancer will not journey it alone, and that their healing needs will be met. Mission To empower individuals and their families battling with cancer with information that helps them make decisions and to provide them with emotional and spiritual support.

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KanWork: KanWork : OBJECTIVES

To perform as a resource center and education for cancer patients, their

families, society and any related bodies and their families

To facilitate support system for breast cancer patients and their families To build leadership amongst group support system for cancer patients To initiate relationship and cooperation with individuals, groups and

institutions which have the same function in educating cancer patients, their families and societies To stimulate support effort for prevention, early detection, and breast cancer treatment To provide programs and services about breast cancer to community To stimulate educational activities to those who provide health care and volunteers who work for cancer patients, their families and cancer survivors.

KanWork: KanWork : SCOPE

Provide psychological, emotional and spiritual support to cancer

patients and families.

Provide information and education on better disease management and

coping strategies for cancer patients and survivors and their families, activities and health fitness programs.

Promote cancer awareness and prevention among the public. Develop leadership for support group system. Promote recreational Promote publication of educational material in local languages to

reach wider segment of the population. management.

Promote related research for better disease treatment and Support efforts on cancer related issues. Link and collaborate with both local and foreign individuals, groups

and institutions of common interests.

Other related activities.

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RESOURCE FROM NEWSPAPERS

Sebagai satu program yang memberikan maklumat dan sokongan terhadap mereka yang terlibat dengan kanser dan menawarkan 6 major perkhidmatan iaitu : Kan Info, KanDidik, KanSupport, KanHelp Line = menerusi talian +603 89472706 bersedia menjawab pertanyaan tentang perkhidmatan yang disediakan oleh CaRE kepada masyarakat, dan Portal/Website yang boleh dilayari melalui http://www.cancereducation.org.my/ = Memuatkan maklumat terperinci tentang perkhidmatan yang disediakan boleh didapati menerusi laman web http://www.ipsas.upm.edu.my/caed/ atau maklumat pendidikan dan perkhidmatan kanser di http://www.cancereducation.org.my dan KanWork di http://www.ipsas.upm.edu.my/kanwork/.

OBSERVATION & DISCUSSION

To establish any extension education program, we need..
Location: strategic & easy accessible to the needy. Infrastructure: fully equip facilities with material & ext. edu. resources, with regards to suits their conditions. Target Group: Peoples, Clients, Patients, or Trainers. Educator Personnel: Multitask extensionist, teachers, experts in-house, motivator & demonstrators. Programmes: Event calender, Must Attractive, evidence focused, & outcome oriented. Proper Funding: Independent sponsors/Private CSR/ Government/ any HALAL sources from local or abroad. Promotional: Unconditional supporters, tv, videos, mass media, event series, active internet webpage, blogspot, skype, twitter, youtube & facebook. Muhammad Hafidz Abdul Raman

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OBSERVATION: THE CANCER PATIENTS

They experienced it. They positively minded. They developed self belonging. They high in spiritual thought and cherish GOD more often. They established group, peer support group & own community. They like sharing and caring between each other. They allow volunteer personnel to help them. There are no superiority & work position mentioned. They are friendly too. They have changed with time and their surrounding. They have gone through the process of change.

The CaRE act as

A middleman between patients, doctors and hospital. Facilitate change to the patient. Help patient to change & develop their courage to fight

cancer. Give information & provide easy excess to cancer educational materials. As tool for patient community to meet and share. Shorten gap by providing ethics language translation of cancer educational materials and make it available to all ethnics in Malaysia.

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THEORY DISCUSSION
Why They (Patient) Need To Move Forward
1. 2. 3. 4. 5. 6. 7. 8. 9. Professional change Social change Economical change Cultural change Ecological change Political change Psychological change Physical change Process of change Awareness, Interest, Evaluation, Trial, Adoption, Integration, Innovation. 10. Gaining Control 11. Moving forward
Muhammad Hafidz Abdul Raman

Awareness!!

Interested Evaluate Do Trial

Process of Change

Moving Forward

Integration Adaptation Innovation Breach the barriers

Gaining Controls

Muhammad Hafidz Abdul Raman

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Overview of Their Mental Routes?

Tertiary Education Work/Technical Experience Schooling History
Giving Back Survive & Moving Forward Gaining Control

Childhood

Mind

Mind Dev. Normal Flow

Challenges (Treatments/Health worsen) Seeing Their Potentials

EXTENSION IN CaRE
Medical Information Extension - known as the application of medical scientific research and new knowledge transfer for recipient to practices through cancer education materials. Extension - The dissemination of relevant information and advice to the needy (cancer patients). The field of extension now encompasses a wider range of communication and learning activities organized for cancer people by professionals from different medical and allied disciplines, including healthcare, food dietary and medical guide. Extension practitioners here is working with government agencies as management officials, lecturers, students and volunteer.
Muhammad Hafidz Abdul Raman

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Should You Be : Gen X or Gen Y

POSITIVITY

Theory X People are lazy, dislike work and need threat of job loss and financial incentives to work hard. They need direction and control and cannot take responsibility. Theory Y People need to work, actively seek responsibility, and are generally creative and resourceful. They will be self-directed to achieve objectives that meet both organizational and individual goals. Intellectual potential needs to be utilized.
Douglas McGregor, 1960

Muhammad Hafidz Abdul Raman

POSITIVITY

Theory X & Y Differences

Theory X Assumptions Theory Y Assumptions

Dislike work will avoid it Must be coerced,

controlled, directed, or threatened with punishment Prefer direction, avoid responsibility, little ambition, want security

Do not dislike work Self direction and self

control

Seek responsibility Imagination, creativity

widely distributed partially utilized

Intellectual potential, only

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Muhammad Hafidz Abdul Raman

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Medical Extensionist

Think Tanks
Creative Innovations
Down to Top System (Participatory Method)
Free Powerpoint Templates
Muhammad Hafidz Abdul Raman

Extensionist
Muhammad Hafidz Abdul Raman

Powerpoint Templates NETWORKING. Resources

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PICTURE
Rumah Terbuka Aidilfitri CaRE & KanWork

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CANCER INFORMATION ROOM

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PEER SUPPORT GROUP

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THANK YOU.

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