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10/12/12 1:19 PM
#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Oct 10 18:00:00 PDT 2012 Wed Oct 10 19:15:00 PDT 2012 change time period
New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Analytics Learn more about #hpm at The Healthcare Hashtag Project
aliciabloom
welcome to #hpm tweetchat! let's get started tonight with some introductions. . .
Wed Oct 10 18:01:57 PDT 2012
ctsinclair
RT @aliciabloom: its #hpm tweetchat time! tonight, well discuss recent news coverage about family caregiving & the aging population #HPM
Wed Oct 10 18:02:01 PDT 2012
ctsinclair
kkehl731
RT @jfclearywisc: RT @ssmithaahpm: Researchers Wring Hands as U.S. Clamps Down on Death Record Access http://t.co/JXx3dqus #hpm
Wed Oct 10 18:03:06 PDT 2012
aliciabloom
@ctsinclair hi there! thanks for joining tonight. i need some future dates for you to host! #hpm
Wed Oct 10 18:03:09 PDT 2012
ctsinclair
Christian Sinclair, palliative doctor, Natl Hospice Medical director for Gentiva. Tweets are my own #HPM
Wed Oct 10 18:03:12 PDT 2012
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 1 of 10
10/12/12 1:19 PM
ctsinclair
@aliciabloom I always enjoy hosting so I'm game, just give me some dates by email and I can confirm. Tanks for organizing #HPM
Wed Oct 10 18:04:15 PDT 2012
ctsinclair
I appreciated being able to watch the debates last week. Thanks for the respite. #HPM
Wed Oct 10 18:04:34 PDT 2012
AnkurB_MD
What You need to Know about Your Serious Illness and #Palliative Care: @TJCommission asks U 2 Speak UP! #HPM #Cancer http://t.co/qjreaXtt
Wed Oct 10 18:04:57 PDT 2012
aliciabloom
MSW, LSW practicing in hospice & palliative care in Philadelphia. love fall weather. happy to be hosting tonight! #hpm
Wed Oct 10 18:05:11 PDT 2012
aliciabloom
@ctsinclair that's great. i'll e-mail you later this week! #hpm
Wed Oct 10 18:05:35 PDT 2012
aliciabloom
ctsinclair
@AnkurB_MD @rfberry @jfclearywisc @equijada @hollyby Might you join us for chat tonight? #HPM
Wed Oct 10 18:06:31 PDT 2012
ctsinclair
@aliciabloom Ha I thought the same thing. Odd how connected we are! #HPM
Wed Oct 10 18:06:53 PDT 2012
aliciabloom
jfclearywisc
jim cleary, @uwhealth #palliative care & @painpolicy (PPSG) joining #hpm chat for the next hour
Wed Oct 10 18:07:39 PDT 2012
AnkurB_MD
@aliciabloom @ctsinclair Raincheck tonight! Will be flying out in a lil bit - gotta a red eye overseas.. have fun #hpm pals!
Wed Oct 10 18:08:04 PDT 2012
aliciabloom
@jfclearywisc hi jim! thanks for joining. what time zone are you in these days? #hpm
Wed Oct 10 18:08:17 PDT 2012
aliciabloom
@AnkurB_MD safe travels! hope to see you here again soon. #hpm
Wed Oct 10 18:08:38 PDT 2012
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
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10/12/12 1:19 PM
ctsinclair
aliciabloom
jfclearywisc
@aliciabloom Sitting quitely in Madison WI, trying to get off Central European time. #hpm
Wed Oct 10 18:09:52 PDT 2012
ctsinclair
@jfclearywisc Hey Jim. If you any access to some good journal articles on chronic pain I'd love to see them. Writing a chapter #HPM
Wed Oct 10 18:09:55 PDT 2012
ctsinclair
ctsinclair
aliciabloom
as folks trickle in, i'll say that the inspiration for tweetchat tonight is from two pieces in the @nytimes this week.... #hpm
Wed Oct 10 18:10:55 PDT 2012
ctsinclair
Quiet night so far Tonight. Once we get started I'm sure it will liven up #HPM
Wed Oct 10 18:11:21 PDT 2012
aliciabloom
T1: "How in the World Will We Care for All the Elderly?" (http://t.co/GafAvJQZ) raises important points for consideration in #hpm
Wed Oct 10 18:12:43 PDT 2012
ctsinclair
T1 this topic has a international flavor to it as well. @jfclearywisc should be all over that #HPM
Wed Oct 10 18:14:01 PDT 2012
ctsinclair
RT @alociabloom T1: "How in the World Will We Care for All the Elderly?" (http://t.co/Etd0Iqk3 #HPM
Wed Oct 10 18:14:43 PDT 2012
aliciabloom
so true! #hpmglobal RT @ctsinclair: T1 this topic has a international flavor to it as well. @jfclearywisc should be all over that #hpm
Wed Oct 10 18:14:43 PDT 2012
ctsinclair
T1 I have always felt that caring for our elderly could really help in regards to labor issues and unemployment, if paid a fair wage #HPM
Wed Oct 10 18:15:25 PDT 2012
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
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10/12/12 1:19 PM
aliciabloom
T1: share initial thoughts & impressions of the data presented, and discuss the impact #hpm can have on the needs highlighted
Wed Oct 10 18:15:50 PDT 2012
ctsinclair
T1 sadly our professional caregivers in the US are understaffed and underpaid and disrespected leading to lots of turnover #HPM
Wed Oct 10 18:16:06 PDT 2012
ctsinclair
T1 and anecdotally if not statistically we are moving towards less of a extended network of family caregivers #HPM
Wed Oct 10 18:16:45 PDT 2012
aliciabloom
T1: this really struck me- "worldwide, more than 46 percent of people aged 60 years and over have disabilities" #hpm
Wed Oct 10 18:17:27 PDT 2012
ctsinclair
"People live longer, w/ more chronic illness, in poorer health, requiring more attention from family members and costly medical care." #HPM
Wed Oct 10 18:18:09 PDT 2012
aliciabloom
@ctsinclair T1 i agree with that. it seems families are struggling more & more to meet caregiving needs. major financial implications. #hpm
Wed Oct 10 18:18:24 PDT 2012
ctsinclair
@aliciabloom Is that including minor disabilities like needing glasses occasionally? I have seen that listed as disability Before #HPM
Wed Oct 10 18:19:03 PDT 2012
jfclearywisc
@ctsinclair So really interesting issue. THe number of wage earners/aged person is a public health metric. Japan already very very low. #HPM
Wed Oct 10 18:19:14 PDT 2012
ctsinclair
@aliciabloom More likely to find both adults I workforce and not in domestic caregiving roles #HPM
Wed Oct 10 18:19:49 PDT 2012
aliciabloom
@ctsinclair is "costly medical care" always necessary & appropriate? i think that's a key we need to consider on many levels #hpm
Wed Oct 10 18:19:50 PDT 2012
ctsinclair
ctsinclair
@aliciabloom Tat was a slightly loaded if not mostly true assessment in our current execution of health care #HPM
Wed Oct 10 18:20:44 PDT 2012
that's the challenge RT @ctsinclair: @aliciabloom More likely to find both adults I workforce
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 4 of 10
10/12/12 1:19 PM
aliciabloom
jfclearywisc
@aliciabloom Reason for focus on #NCDs (non communicable diseases) CVS, Cancer, Diabetes, lung, then arthrits, mental health .....#hpm
Wed Oct 10 18:21:01 PDT 2012
ctsinclair
@aliciabloom It is almost like a given assumption because it is a cliche the reader is likely to expect #HPM
Wed Oct 10 18:21:21 PDT 2012
aliciabloom
ctsinclair
@aliciabloom Although the human labor of caring for someone with declining function can rival very expensive surgeries #HPM
Wed Oct 10 18:21:52 PDT 2012
anetto
I read that RA causes annual spending of $1015 vs $624 for healthy in Ontario (Community Health Survey linked to insurer) #hpm
Wed Oct 10 18:22:18 PDT 2012
ctsinclair
@jfclearywisc I really have to get over not liking that term NCD since I see it more often #HPM
Wed Oct 10 18:22:20 PDT 2012
ctsinclair
@aliciabloom If only you could see my eyes roll when I read that. Like a ferris wheel. #HPM
Wed Oct 10 18:22:50 PDT 2012
jfclearywisc
@aliciabloom Caregiving becoming key topics in healthcare. e.g. Need for caregiver is one reason women use #Hospice less at #EOL. #hpm
Wed Oct 10 18:22:56 PDT 2012
lfettig
jfclearywisc
RT @anetto: I read that RA causes annual spending of $1015 vs $624 for healthy in Ontario (Community Health Survey linked to insurer) #hpm
Wed Oct 10 18:23:25 PDT 2012
aliciabloom
@ctsinclair it's very true that the actual cost of providing 24 hour care to someone is incredibly high #hpm
Wed Oct 10 18:23:25 PDT 2012
ctsinclair
@anetto pressing RA=rheumatoid arthritis. That seems not too bad of a difference honestly #HPM
Wed Oct 10 18:23:36 PDT 2012
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
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10/12/12 1:19 PM
ctsinclair
ctsinclair
aliciabloom
@ctsinclair uh-oh. . .i made your eyes roll like a ferris wheel? #hpm
Wed Oct 10 18:24:24 PDT 2012
ctsinclair
ctsinclair
anetto
@ctsinclair That is excluding drug costs which are not covered unless you are 65+ #hpm
Wed Oct 10 18:25:08 PDT 2012
aliciabloom
ctsinclair
aliciabloom
@jfclearywisc that's interesting. what makes a need for caregiver lead women to use hospice less? #hpm
Wed Oct 10 18:26:34 PDT 2012
ctsinclair
aliciabloom
equijada
jfclearywisc
@ctsinclair WOmen outlive men. SO if living at home alone, many hospices may decline to provide service. #HPM
Wed Oct 10 18:29:56 PDT 2012
aliciabloom
hey @equijada! better late than never. we're just wrapping up T1 and we'll start T2 in a moment. #hpm
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http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
10/12/12 1:19 PM
aliciabloom
@jfclearywisc @ctsinclair that's unfortunate. we don't decline service to someone because they live alone & assist with long-term plans #hpm
Wed Oct 10 18:31:08 PDT 2012
ctsinclair
aliciabloom
T2: Caregiver, Plus MD or RN touches on the reality of family caregiving, which has many implications for #hpm (http://t.co/G5mi6sPl)
Wed Oct 10 18:32:22 PDT 2012
ctsinclair
RT @aliciabloom: "thats unfortunate. we dont decline service to someone bc they live alone & assist with long-term plans" same here #HPM
Wed Oct 10 18:32:47 PDT 2012
aliciabloom
@ctsinclair that's good to hear. if the patient is better off because we're there providing service, then we should support them #hpm
Wed Oct 10 18:34:17 PDT 2012
aliciabloom
T2: give the @nytimes piece a quick read, then share initial reactions & discuss how you see this impact your patients/families #hpm
Wed Oct 10 18:36:34 PDT 2012
ctsinclair
T2 I'm impressed by the learning capacity of many of our family caregivers when it comes to advanced treatments in the home #HPM
Wed Oct 10 18:38:03 PDT 2012
jfclearywisc
@aliciabloom T2: really surprised me when I came to US: reliance on family caregivers for in-home hospice #hpm
Wed Oct 10 18:38:18 PDT 2012
aliciabloom
RT @ctsinclair: T2 impressed by the learning capacity of many of our family caregivers when it comes to advanced treatments in the home #hpm
Wed Oct 10 18:38:39 PDT 2012
aliciabloom
@jfclearywisc what does it look like across the globe? more in-home support provided through the hospice? #hpm
Wed Oct 10 18:39:05 PDT 2012
aliciabloom
T2: many of my patents' families talk about all the "on the job training" they've received-- "i'm practically a nurse now." #hpm
Wed Oct 10 18:39:41 PDT 2012
jfclearywisc
@ctsinclair Agree they learn to do many tasks. But we don't factor cost of this "informal health care providing" in US healthcare $$$ #HPM
Wed Oct 10 18:39:52 PDT 2012
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
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10/12/12 1:19 PM
aliciabloom
T2: family caregiving needs are only going to increase as our aging population grows over the next several decades #hpm
Wed Oct 10 18:41:04 PDT 2012
aliciabloom
Significant emotional toll on family caregivers: Its hard to do something thats personally invasive and painful, she said #hpm
Wed Oct 10 18:43:38 PDT 2012
equijada
t2: Really starting to appreciate the stress of family caregiving. I underestimated it in the past.. #hpm
Wed Oct 10 18:45:44 PDT 2012
ctsinclair
ctsinclair
@equijada Agree with you there. I always respected it and thought I gave family caregiving it's due, but still underestimated #HPM
Wed Oct 10 18:47:16 PDT 2012
aliciabloom
On the other hand, data shows many family caregivers felt they were making an important contribution & felt closer to the patient #hpm
Wed Oct 10 18:47:19 PDT 2012
ctsinclair
RT @aliciabloom: Significant emotional toll on family caregivers: Its hard to do something thats personally invasive and painful, #HPM
Wed Oct 10 18:47:29 PDT 2012
ctsinclair
aliciabloom
it's almost as if the cost of family caregiving isn't considered a cost, but rather an expectation. #hpm
Wed Oct 10 18:48:03 PDT 2012
ctsinclair
@aliciabloom Family caregiving like anything in life has benefits and burdens #HPM
Wed Oct 10 18:48:24 PDT 2012
ctsinclair
@aliciabloom Often patients see only emir burden to family caregiver, not the reward in caring #HPM
Wed Oct 10 18:48:48 PDT 2012
aliciabloom
RT @ctsinclair: Family caregiving like anything in life has benefits and burdens #hpm
Wed Oct 10 18:49:06 PDT 2012
ctsinclair
RT @aliciabloom: "...the cost of family caregiving isnt considered a cost, but rather an
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
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10/12/12 1:19 PM
aliciabloom
@ctsinclair it's one of the greatest stresses to patients-- they don't want to be a burden to their family #hpm
Wed Oct 10 18:50:06 PDT 2012
jfclearywisc
RT @aliciabloom: @ctsinclair it's one of the greatest stresses to patients-- they don't want to be a burden to their family #hpm
Wed Oct 10 18:50:21 PDT 2012
aliciabloom
it was a small but mighty group tonight. as the hour comes to close, please share final thoughts. . . #hpm
Wed Oct 10 18:52:22 PDT 2012
ctsinclair
@aliciabloom With our small group I could quote Margaret Mead, but that quote is overused #HPM
Wed Oct 10 18:54:26 PDT 2012
aliciabloom
ctsinclair
Final thought via W. Buffett "predicting rain doesn't help, building arks does." #HPM
Wed Oct 10 18:55:42 PDT 2012
aliciabloom
@ctsinclair plus, i think it's more than the allowed 140 characters. #hpm
Wed Oct 10 18:55:46 PDT 2012
equijada
ctsinclair
ctsinclair
RT @equijada: Final thought: Glad I have great kids. "I'm glad you do to." #HPM
Wed Oct 10 18:56:28 PDT 2012
aliciabloom
final thought/recommendation: treat yourself to a pumpkin spice latte this week. consider it seasonally appropriate self-care. #hpm
Wed Oct 10 18:56:41 PDT 2012
jfclearywisc
RT @aliciabloom: Signif emotional toll on family caregivers: Its hard to do something thats personally invasive & painful, she said #hpm
Wed Oct 10 18:56:53 PDT 2012
@equijada :) #hpm
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 9 of 10
10/12/12 1:19 PM
aliciabloom
ctsinclair
@aliciabloom I can shorten it "only a few people change the world. Be one of them." Mead abridged. #HPM
Wed Oct 10 18:57:27 PDT 2012
equijada
aliciabloom
thank you all for joining & hope to see you next week. same time - same place. good night! #hpm
Wed Oct 10 18:58:49 PDT 2012
equijada
Many people can change the world, we're part of them - Anti-Mead #hpm
Wed Oct 10 18:58:51 PDT 2012
equijada
ctsinclair
lfettig
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=10-10-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1
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