One thing about writing for the
newsletter is that the deadline is so much
earlier than when people will actually read
it. I'm writing this during the Christmas
holidays.
spent the holidays traveling up the
east coast visiting friends and family. One
of my stops was in Waynesboro, Virginia,
to visit an e-mail friend, Shawn Decker and
his family. Shawn is a 21-year-old
hhemophiliac who not only is infected with
HIV but also with Hepatitis B and Hepatitis,
CC. And thought that I had problems.
His story was told in the December/
January issue of POZ magazine, with Shawn
oon the cover. He has a project for 1997,
producing a CD of music by HIV+
musicians. The plan is to get at least 500
radio stations across the country to play the
album at 8 p.m. EST on World AIDS Day,
December 1, 1997. He was awarded a grant
to do this from the Daniel Murphy
Foundation which was set up in memory of
another hemophiliac with AIDS. This is
quite an ambitious project, butafterknowing
Shawn and meeting his mother Pam, I'm
sure that they will succeed. Anyone
interested in participating in this projectcan
ook for ads in AIDS publications, such as
this newsletter (see page 21), or in POZ, or
they can check fordetails on his web page at
hutp://www.cfw.com/~sdecker.
Shawn has been quite a find for me.
Right after my web page went up last April,
Shawn found it and contacted me by e-mail.
Eventhough there's quite an age difference,
and Shawn is totally heterosexual, we hit it
off. Though I've had AIDS for 11 years and
thought that I knew so much, I discovered
that I knew very little about the lives of
hemophiliacs. HIV isnevereasy foranyone,
but hemophiliacs have to deal with so much
more, due to contaminated blood products,
and the compensation being offered them
by the blood products industry sucks more
than anyone can imagine. It's difficult to
say this, but the gay community has gotten
off easy, compared to what the hemophiliac
community has had to live with.
Due to the damage to his liver from
hepatitis B and C, it’s doubtful that he could
tolerate anti-retroviral drugs, so he’s lived
with HIV to this point, about 14 years,
without, However, Shawn hashandled HIV/
AIDS with about the best humor that I've
seen in anyone. A good part ofthis is due to
his incredible parents, but therestis just due
to the personality and goodness of Shawn
himself,
Our friendship has often puzzled me, as
Tdon’t even have gay friends his age. My
nephews are about his age, and from them
all, I've learned how easy I can relate to
People a generation younger. I wonder if I
would relate so well if I had ever been a
parent myself, but as itis, it appears that Ido
better with them than adults my age. My
nephews have no problem with me being
‘gay, butto them, I'm family. They probably
wouldn’thavea problem with it, regardless,
but it was a worry before they were told.
Shawn, like them, doesn’t have a
homophobic cell in his body. I don’t think
that he’s ever had a homophobic thought in
his ife. I've learned from Shawn and a few
others, that its entirely possible for straight
men to have no problem being around gay
men. Some of my gay friends have yet 10
earthis. Someof them suspect my motives,
or Shawn's “true” orientation. Before 1
knew Shawn, I might have felt the same
way, but I've learned from this young man.
My only motive with Shawn is to be his
friend, and Shawn's “true” orientation is
justas it appears...heterosexual. This is just
a wonderful friendship between two men
with AIDS.
Besides learning so much from Shawn,
his humor and personality are way beyond
what one finds in most people. Unlike me,
he has the talent to show his humor in his
writing. I've had such a wonderful time
during the two encounters we've had so far,
and I’m constantly looking forward to his,
next e-mail. I'm a lucky man to have
survived AIDS long enough to have met
such a wonderful human being as Shawn
Decker, and to be his friend. If you're able,
check out his web page, and you'll learn to
love him as much as T have.