Alzheimer's Days Gone By: For Those Caring for Their Loved Ones
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About this ebook
Deanna Lueckenotte
Deanna Lueckenotte received her formal education at University of Mary Hardin Baylor in Belton, TX and at University of North Texas in Denton, TX where she obtained her BA in Psychology. She then took 9 hours of her Masters at Baylor in Waco, TX. She has spent9 years in long term care and during that time has received her Social Work License, Assisted Living certification and LNFA. She currently is an Executive Director at an Alzheimer's Assisted Living insouthern Central Texas.During those9 years she has been blessed by being able to work with people with Alzheimers and their families. She also educates through the Greater Austin Alzheimers chapter by educating on the basics of Alzheimers for the 17 counties served. She has experienced personal loss from dementia. She loves to spend as much time as possible with her husband and son. They love to travel as much as possible. She recently added two new additions to their family, lab puppies! She likes to spend time with her extended family that also live in the Central Texas area. If I am ever inflicted with this disease there is a good chance that I will go around singing or whistling to the tune of Delta Dawn whats that flower you have on? Could it be a faded rose from days gone by? The reason I would do this is because this song holds very strong childhood memories for me. My dad and I were always trying to sing or whistle this song. Please keep in mind that the person you are taking care of is living in their Days Gone By. To Book Deanna for a speaking engagement please email alzheimersdaysgoneby@live.com.
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Alzheimer's Days Gone By - Deanna Lueckenotte
Alzheimer’s: Days Gone By
For those caring for their loved ones
By: Deanna Lueckenotte, BA,
LNFA, LBSW, CALM
US%26UK%20Logo%20B%26W_new.aiAuthorHouse™
1663 Liberty Drive, Suite 200
Bloomington, IN 47403
www.authorhouse.com
Phone: 1-800-839-8640
© 2009 Deanna Lueckenotte, LBSW, CALM, LNFA. All rights reserved.
No part of this book may be reproduced, stored in a retrieval system, or transmitted by any means without the written permission of the author.
First published by AuthorHouse 6/17/2009
ISBN: 978-1-4389-6749-3 (ebk)
ISBN: 978-1-4389-6748-6 (sc)
Printed in the United States of America
Bloomington, Indiana
Contents
Preface
Acknowledgments
Chapter One
Taking Care Of Yourself
Taking Care Of Yourself
Chapter Two
Behaviors
Behaviors
Chapter Three
Communication-Is it possible?
Types of Communication
Chapter Four
Daily Living
Daily Living
Chapter 5
Lifestyle Enhancement Programming
Lifestyle Enhancement Programming
Chapter 6
Overview of Dementia
Overview of dementia
Chapter 7
Inside the human brain
Inside the human brain
Chapter 8
Research
Research
Chapter 9
Resources
Resources
Chapter 10
Forget Me Knots
Forget Me Knots
Chapter 11
Hope For Holidays
Hope For Holidays
Chapter 12
Home Safety
Home Safety
Chapter 13
Light in the Tunnel Stories
Light in the Tunnel Stories
Papa
A Day to Early
MY DADDY BILL
Remembering
Buster’s Journey
Granny
Momma Dye
Bibliography
About the Author
Preface
Days gone by
with Alzheimer’s can seem like an eternity for caregivers faced with the challenges of taking care of someone with the disease. Alzheimer’s, at this time, still remains progressive and irreversible with no cure for the person inflicted with it.
My sincere goal of this book is to help caregivers find a little light in this darkened tunnel that you must travel. This is not a quick fix guide. This book is a compass to help during the times when you are feeling lost. Keep it close to you and refer to it often.
When caring for someone with Alzheimer’s learn to let go of your reality and enter their reality wherever they may be. As you go through this journey you will continue to learn and experiment with the concepts presented to you. This book is geared to help all types of caregivers no matter the setting. Alzheimer’s is all around us, some of us may not realize how much because we have not been educated in the signs of Alzheimer’s. You can come in contact with someone facing this disease while you are eating out or shopping!
I am writing this book to meet the needs of you who may, at some time in your life, be faced with someone in their days gone by!
Keep looking for the light in the tunnel and remember that some days the light will be brighter than others!
My prayers remain with you and with everyone in days gone by.
Acknowledgments
This book is dedicated to my mom who was also my best friend. Her journey with cancer led me into a tunnel that I thought had no light. Through the years, mom you keep reminding me from up above, how to find even the smallest light in the tunnel for others as well as myself. I love you and thank you for all your blessings and insight that your life and death bestowed upon me.
I also want to thank my family and friends for being so patient with me during the time it took to write this book. All of you mean so much to me. Also, to Jo Blaylock with Elder Options of Texas for reading, rereading and helping critique this book. Dr. Angie Hochhalter PHD, who is an assistant professor in the department of medicine at Scott & White Memorial hospital and Texas A&M Health Science Center, Temple ,Texas. Know that your section on research in this book will touch so many lives and that you are an inspiration to many. Continue your research on Alzheimer’s.
Your personal journeys have made you wonderful advocates for caregivers facing Alzheimer’s. Thank you for taking the time to help me dot my i’s and cross my t’s throughout my own journey with this book. Jo and Dr. Angie Hochhalter know that you have been my light and inspiration at the times I felt discouraged about my writing abilities.
Special thanks to Robert Falcon who is a licensed funeral director and embalmer in the State of Texas and has over 20 years experience in the funeral service industry. He has been recognized by national and local funeral consumers groups for his continued efforts in informing families about their consumer rights, making meaningful funeral arrangements, and providing affordable services. Robert is a native of Austin, TX, where he established two very successful funeral homes. Robert thanks for teaching me to shop even for death and helping me educate others on prearrangements!
Mrs. Dottie Bishop, my third grade teacher, thank you for inspiring me so many years ago in regards to writing. Per our conservation so long ago I promised to acknowledge you when I wrote my first book!
To Bryan, my partner in life: Thanks for helping me believe in my own abilities and my passion for Alzheimer’s! No one would be reading this book today if it was not for you. Your constant wisdom of saying to me over and over When are you going to stop talking about writing it and actually do it?
helped me overcome my fears inside of myself.
To the special people that allowed me to put their light in the tunnel
stories into this book. It made it so much more than could have been imagined. You know who you are and you also know that your stories are helping others through their journeys. You each are a blessing and I hope you continue to find light in your tunnel.
Chapter One
Taking Care Of Yourself
Taking Care Of Yourself
Dementia caregivers are very special people. The demands seem to require super human abilities at times. If you take better care of yourself, you will be better prepared to provide care for your loved one, family members, and anyone else who may need your help.
Some of the unique demands put on you:
• The person with Alzheimer’s may not recognize you from day to day
• They may strike out physically
• They are often unable to give back
• You may not receive a thank you.
• They get worse no matter how good your care is.
• The routine they need may become monotonous for the caregiver.
• The times that they have an alert moment can leave you with a feeling of false hope which keeps you on an emotional roller coaster to say the least!
Some of the special skills a caregiver needs include:
• Willingness to