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    Diabetes Work Book for Children: Children with diabetes: a treatment and training program
    Diabetes Work Book for Children: Children with diabetes: a treatment and training program
    Diabetes Work Book for Children: Children with diabetes: a treatment and training program
    Ebook316 pages1 hour

    Diabetes Work Book for Children: Children with diabetes: a treatment and training program

    By K. Lange, K. Remus, S. Biester and

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    About this ebook

    Diabetes in children: a treatment and training program
    Diagnosis diabetes! You just heard about it. But what does that mean for you and for your parents?
    Ian (10 years old) has diabetes since a few years. He is talking about his everyday life, his favorite sports, his friends, and his experiences with the disease.

    In five chapters Ian explains:
    • What is diabetes actually?
    • Food and drinks for children with diabetes
    • How to treat myself well with insulin?
    • What do I need to do to keep my blood glucose from going too high or too low?
    • How do I notice that my blood glucose is too high or too low?

    Ian is telling you, what is important to know about diabetes and to have a good life like any other child: go to school, having parties, sports, and do everything, what else you love to do. He also has many practical tips for you, and you can train with him, how to get along well with diabetes.

    In the sixth chapter Ian introduces his twelve-year old friend Laura. Together with her parents she is just learning how she can calculate her insulin dose by herself.

    Each chapter ends with a small knowledge check – so you can see how much you've learned about diabetes. An extra brochure for your parents includes suggestions and assistance for a relaxed family life with diabetes.
    LanguageEnglish
    PublisherKirchheim Verlag
    Release dateMay 3, 2018
    ISBN9783874096645
    Diabetes Work Book for Children: Children with diabetes: a treatment and training program

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      Book preview

      Diabetes Work Book for Children - K. Lange

      Diabetes Work Book for Children

      Children with diabetes: a treatment and training program

      Bibliografische Information der Deutschen Bibliothek

      Die Deutsche Bibliothek verzeichnet diese Publikation in der Deutschen Nationalbibliografie; detaillierte bibliografische Daten sind im Internet über <http://dnb.ddb.de> abrufbar.

      ISBN 978-3-87409-664-5 (EPUB)

      ISBN 978-3-87409-665-2 (MOBI)

      Founded by: P. Hürter, H.-U. Jastram, B. Regling, M. Toeller, K. Lange, B. Weber, W. Burger, R. Haller (1985)

      Responsible for the 5th edition:

      Prof. Dr. rer. nat. Karin Lange (Psychologist, specialized in Diabetes): Medizinische Psychologie OE 5430, Medizinische Hochschule Hannover, Carl-Neuberg-Straße 1, 30625 Hannover.

      Martina Lösch-Binder (Diabeteseducator DDG), Prof. Dr. med. Andreas Neu (Diabetologist DDG): Universität Tübingen, Klinik für Kinder- und Jugendmedizin, Hoppe-Seyler-Straße 1, 72076 Tübingen.

      Sarah Biester (Diabeteseducator DDG), Kerstin Remus (Diabeteseducator DDG),

      Dr. med. Wolfgang von Schütz (Diabetologist DDG): Kinder- und Jugendkrankenhaus auf der Bult Hannover, Diabeteszentrum, Janusz-Korczak-Allee 12, 30173 Hannover.

      Editor: Arbeitsgemeinschaft für Pädiatrische Diabetologie e. V. (AGPD)

      Illustrations: Steffi Krohmann, Köln

      Cultural adaptation and English translation 1st English edition 2017: Katarzyna Zinken, Sheonagh Clark, Karin Lange + Leeds Beckett University, Headingley Campus, LS6 3QQ Leeds, UK

      Acknowledgements: The authors thank Liz Webster, the course leader, and all the participants of the first Advanced Diabetes Educator Course at the Leeds Beckett University, UK for their comments on an earlier draft of the Ian-book.

      Funding: The English translation and publication have been kindly supported by Roche Diabetes Care Deutschland GmbH.

      Index

      Chapter 1

      What is diabetes actually?

      Chapter 2

      Food and drinks for children with diabetes

      Chapter 3

      How do I treat myself well with insulin?

      Chapter 4

      What do I need to do to keep my blood glucose from going too high or too low?

      Chapter 5

      How do I notice that my blood glucose is too high or too low?

      Chapter 6

      For children who already know about diabetes

      Preface

      Ian and then also Laura have helped German children with diabetes to become familiar with the situation for more than twenty years. An accompanying booklet for parents gives advice how to handle this new task for the adult family members and explains in easy terms the concept of age-appropriate diabetes education.

      Age-appropriate education and training has become standard over the last three decades in treating children with diabetes. It is included in both national and international guidelines like the 2014 Consensus Guidelines of the International Society for Pediatric and Adolescent Diabetes (www.ISPAD.org).

      Despite guidelines and consensus statements, there remains huge variation in diabetes outcomes across countries and even between treatment facilities within the same country. Patient education is one of the most important measures within the scope of diabetes therapy for enabling people with diabetes to conduct active self-management. „SWEET is an acronym derived from Better control in Pediatric and Adolescent diabeteS : Working to CrEat CEnTers of Reference" and is based on a partnership of established national and European diabetes organizations (www.sweet-project.eu) led by ISPAD. With a vision of equal, high quality care for all children with diabetes, SWEET has the mission to harmonize care to optimize outcomes in children and adolescents. In light of the advances of modern diabetes therapy becoming more widely available it created a platform for exchanging best practices among leading pediatric diabetes units.

      With the help of the Leonardo da Vinci Lifelong Learning Program of the European Union an EU wide diabetes educator course was developed and these German educational materials were identified as fulfilling the educational needs. The authors of this English translation and cultural adaptation have taken great care to make these materials appropriate for use outside Germany.

      I am convinced that this edition of the Diabetes in Children education program will have a similar success like in Germany were it was certified by the German Federal Insurance Office for use in long-term treatment and is a part of the German Disease Management Program (DMP) for type 1 diabetes in pediatrics. Disease management is a system of coordinated health care interventions and communications for people with conditions in which patient self-care efforts are of significant importance.

      I wish to thank all contributors, physicians, nurses, psychologists, educators, dietitians, social workers and other members of diabetes teams that have contributed to this program. I trust that those that are facilitating the understanding of this complex disease for families worldwide with a command of the English language may find it useful. The SWEET initiative is committed to support and continuously review and improve educational tools for pediatric diabetes, so please give us feedback for potential areas of improvement. With all my best personal wishes for the child with diabetes, its family, and all those concerned with their well-being, I remain on behalf of the SWEET project, yours sincerely

      Prof. Thomas Danne

      Pediatric Diabetologist,

      Chairman SWEET project,

      Former President ISPAD

      Hannover, Germany, December 2017

      Chapter 1 What is diabetes actually?

      Hi there, my name is Ian!

      I am 10 years old and in year 5. After school I like going out on my bike and meeting up with my friends.

      Also, I like playing on my Wii, going swimming and playing football. My favourite subject at school is PE and I hate doing homework.

      Oh yes and four years ago I got diabetes. I’ve learned plenty about it since then.

      If you like I will tell you a bit about what’s important so you know what is happening and learn about your diabetes. I guess, I have a few tips for you.

      Would you like to listen?

      Then here we go!

      What did I notice right at the beginning?

      I was almost seven. I can remember very clearly how thirsty I was. Even during the night, I got up to go to the kitchen to have a drink. I could have drunk a whole bottle of water at once.

      The next thing I noticed was that I had to go to the toilet a lot. A few times I nearly left it too late! Once, I almost wet the bed.

      My teacher at school was wondering what made me need to go to the toilet so often. I too was confused but could not help it.

      What else happened at that time?

      Shortly before my diabetes was diagnosed I felt very tired and sluggish even when I went to bed early. Playing with my friends wasn’t fun anymore. In PE I couldn’t keep up and had to rest a lot.

      Did you have similar experience?

      Even though that I ate and drank plenty I kept losing weight.

      Eventually my dad asked me to check my weight on a scale. My parents were horrified. I had lost lots of weight and was only 2.5 stone. My mum was very worried. She wanted us to go to the GP the next morning.

      What did your doctor say the next morning?

      The next morning, we went to see the doctor. She checked my urine and a nurse took my blood.

      She looked very serious. She said something about diabetes, but I did not understand it then. However, I knew that something was not right as my mum went pale and her hands started to shake.

      Although I did not want to, I cried a bit when the doctor called the paediatric unit at the hospital to get us in.

      What was wrong?

      The doctor found too much sugar in my blood. I also had sugar and ketones in my urine. I had type 1 diabetes.

      Mum called my dad and we went directly to the hospital. On the way there we collected some belongings from home for me.

      How was it for you when you got diabetes?

      Take a piece of paper to write or draw a picture of how it was for you when you got diabetes. Afterwards you can share it with your parents or your brother or sister.

      Why did I get diabetes?

      At some point your body stopped producing insulin.

      What is insulin?

      The body produces insulin just as it produces blood. You do not notice it. You notice it first when insulin is missing. Then you feel unwell as I did when I was first diagnosed and went to the hospital.

      This is at least how the nurse Anna explained it to me. Insulin is very important. Nobody can live without insulin.

      Insulin is readily available, and you can inject it whenever you need it.

      Once you inject your insulin, you feel

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