The Prostate Health Workbook: A Practical Guide for the Prostate Cancer Patient
By Newton Malerman and Rachmel Cherner
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The Prostate Health Workbook - Newton Malerman
CHAPTER 1
How to Use This Book
(and Other Good Advice)
We all live longer today. As a result, most men, as they age, will have prostate problems. It is estimated that over 180,000 men in the United States will be diagnosed with prostate cancer each year, and about 32,000 will die of the disease.
The good news is that prostate cancer is one of the more treatable cancers, especially with proactive, early care. If you have an enlarged prostate, now is the time to start to manage your condition. This book aims to help you do just that. And this chapter aims to help you use this book in the most effective way possible. What follows is practical advice about how to use The Prostate Health Workbook, as well as other commonsense pointers about being an active participant in your own health care.
As the title indicates, this is a workbook. It’s designed so that you can easily write in it and tear out pages. Accordingly, extra forms and space are provided. If, however, you feel that tearing a page from a book is sacrilege, take the whole book with you to your doctor’s appointments, or photocopy the needed pages.
Space is provided in many places throughout the book for your own notes and questions. Write down your reactions as you read. Use additional paper if necessary.
If you are diagnosed with prostate cancer—or any other serious illness—take someone with you to your doctor’s appointments. My wife was able to ask much clearer and tougher questions than I was. If you are single, or your spouse or partner is too emotional about what’s happening, take a trusted friend or family member.
If your doctor will allow it, tape-record your appointments with him or her. In these litigious times, some doctors do not look kindly on this practice. Ask your doctor’s permission, and judge his or her reaction when you explain why you want to do so. My first urologist seemed so uncomfortable with the idea that I decided I’d learn more if I didn’t record the session. I did sit there with my notebook, however, and I asked many questions.
Be sure to inform your physician—and all of your other healthcare practitioners—of your information comfort level. To be an active participant in your treatment, tell your doctors that you want to know everything they can tell you about your case and that you value their candor. You are entitled to receive a thorough briefing.
Before an appointment, make a list of questions to ask the doctor. (See the Post-Testing Questions
worksheet on page 40 for suggestions.) Leave space to write the answers. Give your doctor a copy of your questions while you talk with him or her. You might even consider faxing a copy before your visit. That way he or she will know how many questions you have and how much time to allow for your visit.
If there is information your doctor should have before your appointment, fax or mail the information, along with the date and time of your appointment. Take a copy with you to the appointment in case the original goes astray. Test results, changes in your symptoms, etc., fall into this category. Or, you might elect to deliver this information to the doctor’s office in advance of your appointment. Carefully note to whom you delivered it, and ask for a written receipt.
During appointments in which you have a second person present, have your partner use the appropriate form, too. Worksheets for partners are provided in the Appendix that begins on page 115.
Many technical terms will crop up that you will be uncertain about. When they do, be sure to ask for definitions. If the answer you are given fails to sink in, ask the doctor to repeat the answer or to explain it in a different way. Ask if any brochures or printed information are available on the topic of prostate health. Most people are in shock when diagnosed with cancer or a potentially precancerous condition (such as an enlarged prostate), so your doctor will be accustomed to people asking him to repeat himself.
When conversing with your doctor, try to restate important conclusions in your own words. Doing so gives the doctor a chance to enlarge on those aspects of your treatment—and also helps to solidify the facts and conclusions in your own mind.
If you see newspaper articles about issues related to prostate health, insert them into the workbook, noting any questions the clippings prompt. This kind of research often reminds you of symptoms you neglected to report or questions you forgot to ask. Sometimes a new therapy is reported in the media. Your doctor can help you evaluate the efficacy of such a treatment in your case.
If you have questions, the Resources section starting on page 136 lists books as well as website addresses and other contact information for organizations that will get you started in the right direction. Cross-references to specific chapters within this book are also cited wherever appropriate.
I can tell you from personal experience that if you do take charge of your problem—starting right now—not only can you beat this disease, but you can come out of the battle with a greater appreciation of life. Just don’t go blindly into treatment of any kind. With a small investment in educating yourself, you can proactively obtain better treatment—and better your odds in the process. You have every reason to expect that if you do so, you’ll live many more fruitful years.
Space for Your Notes: