Hospice Stories From The Heart
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About this ebook
Hospice is a great blessing to many people; the patient, the family of the patient, the nurses, the aides, the doctors, the chaplains, the social workers, the office staffs, and the marketers or educators. We marketers are educators of families that usually do not want to meet with us. We as marketers are here to help the family move through denial, the emotional pain of seeing a loved one not doing well physically, and the fear of the unknown. It is an honor and privilege to meet with such a family. Some families are very excited and knowledgeable about hospice and what it meant to them from a previous experience with a loved one. Some families do not want to meet you or look at you in the eye when talking. Some families are angry and think that you as hospice kill people. Most that I meet have heard of hospice but have not had any personal experiences with hospice. This book includes the stories of people who have been touched by hospice. We are going to walk through the lives of many different individuals and their life during hospice. We will laugh, cry and be amazed by their insights and conversations with angels of light and angels of darkness.
Wayne I Norman
Wayne I. Norman has a BBA in Marketing from The University of North Texas and a Master’s in Biblical Counseling from Grace Theological Seminary. Wayne has founded a Christian counseling practice, and worked in marketing, sales, management and finance for over 45 years, founding three companies and working for two of the top 50 corporations. Wayne's desire is to touch the lives of each person he works with in a Biblical, positive way; assisting them by asking questions and listening to their heart desires.
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Book preview
Hospice Stories From The Heart - Wayne I Norman
HOSPICE STORIES FROM THE HEART
By Wayne I. Norman
Published by:
WIN & Associates at Smashwords
Hospice Stories From The Heart
Copyright 2014 by Wayne I. Norman
ISBN 978-0-9906007-0-1 (Print)
ISBN 978-0-9906007-1-8 (E-Book)
Thank you for purchasing this E-Book. This E-Book is licensed for your personal enjoyment only and may not be re-sold or given away to other people. If you would like to share this book with another person, please purchase an additional copy for each recipient. If you’re reading this book and did not purchase it, or it was not purchased for your use only, then please return to Smashwords.com and purchase your own copy. Thank you for respecting the hard work of this author.
DEDICATION
This book is dedicated to Edward and Brenda Makovy in Edward’s memory. Edward was a best friend who introduced me to hospice with his illness and being placed on hospice prior to passing. I knew while being with Edward the last couple of weeks of his life that this is where my heart is – educating, loving, praying, sharing, listening, and caring about each one individually as they get close to passing.
I want to thank God for the many blessings He has bestowed on me with the gifts of service to others in my walk with Jesus Christ and the Holy Spirit.
I thank Judy Wonyetye and Donna Smith for hiring me to open the office in The Woodlands, Texas as a marketer and part time Chaplain. I had no hospice experience except walking through a best friend’s passing.
I thank Alice Lewis, Deborah Major, Nicole Knight, Paul Starnatis, and Dr. Juliet Breeze for allowing me to continue to work in hospice.
I thank my wife Allison for her support and friendship as I work with patients and families. I thank Mike Chaney, Les Karns, Richard Duren, and Alice Lewis for their encouragement to publish this book.
HOSPICE STORIES FROM THE HEART
Introduction
Chapter I. Tell those men in the corner to go away!
Chapter II. Worried about my daughters.
Chapter III. I will not die until my kids speak to each other in a nice voice!
Chapter IV. All they want is my money!
Chapter V. Happy to be at this point in my life.
Chapter VI. Cry, Cry, and then Cry some more.
Chapter VII. Mother does not know me!
Chapter VIII. My father is not a nice person; how can you take care of him?
Chapter IX. I want company!
Chapter X. I want to be left alone!
Chapter XI. Fun to the last day.
Chapter XII. Wayne, do you see the little girl standing by you?
Chapter XIII. Conclusion
Epilogue
About The Author
INTRODUCTION
Hospice is a great blessing to many people; the patient, the family of the patient, the nurses, the aides, the doctors, the chaplains, the social workers, the office staffs, and the marketers or educators. We marketers are educators of families that usually do not want to meet with us. We as marketers are here to help the family move through denial, the emotional pain of seeing a loved one not doing well physically, and the fear of the unknown. It is an honor and privilege to meet with such a family. Some families are very excited and knowledgeable about hospice and what it meant to them from a previous experience with a loved one. Some families do not want to meet you or look at you in the eye when talking. Some families are angry and think that you as hospice kill people. Most that I meet have heard of hospice but have not had any personal experiences with hospice. So I will define where hospice and palliative care terms originated and the difference in each in the United States and in other countries.
Two terms that are new to families are palliative care and hospice. Palliative care (from Latin palliare, to cloak) is an area of healthcare that focuses on relieving and preventing the suffering of patients. Unlike hospice care, palliative medicine is appropriate for patients in all disease stages, including those undergoing treatment for curable illnesses and those living with chronic diseases, as well as patients who are nearing the end of life. Palliative medicine utilizes a multidisciplinary approach to patient care, relying on input from physicians, pharmacists, nurses, chaplains, social workers, psychologists, and other allied health professionals in formulating a plan of care to relieve suffering in all areas of a patient’s life. This multidisciplinary approach allows the palliative care team to address physical, emotional, spiritual, and social concerns that arise with advanced illness.
Medications and treatments are said to have a palliative effect if they relieve symptoms without having a curative effect on the underlying disease or cause. This can include treating nausea related to chemotherapy or something as simple as morphine to treat a broken leg or ibuprofen to treat aching related to an influenza (flu) infection.
Although the concept of palliative care is not new, most physicians have traditionally concentrated on trying to cure patients. Treatments for the alleviation of symptoms were viewed as hazardous and seen as inviting addiction and other unwanted side effects.
The focus on a patient’s quality of life has increased greatly during the past twenty years. In the United States today, 55% of hospitals with more than 100 beds offer a palliative-care program, and nearly one-fifth of community hospitals have palliative-care programs. A relatively recent development is the concept of a dedicated health care team that is entirely geared toward palliative treatment: a palliative-care team.
In the United States, a distinction may be made between palliative care and hospice care. Hospice services and palliative care programs share similar goals of providing symptom relief and pain management. Palliative care services can be offered to any patient without restriction to disease or prognosis, and can be appropriate for anyone with a serious, complex illness, whether they are expected to recover fully, to live with chronic illness for an extended time, or to experience disease progression. Hospice care under the Medicare Hospice Benefit, however, requires that two physicians certify that a patient has less than six months to live if the disease follows its usual course. This does not mean, though, that if a patient is still living after six months in hospice he or she will be discharged from the service.
The philosophy and multi-disciplinary team approach are similar with hospice and palliative care, and indeed the training programs and many organizations provide both. The biggest difference between hospice and palliative care is the patient: where they are in their illness especially related to prognosis and their goals/wishes regarding curative treatment.
Outside the United States there is generally no such division of terminology or funding, and all such care with a primarily palliative focus, whether or not for patients with terminal illness, is usually referred to as palliative care, without restriction.
Outside the United States the term hospice usually refers to a building or institution which specializes in palliative care, rather than to a particular stage of care progression. Such institutions may predominantly specialize in providing care in an end-of-life setting; but they may also be available for patients with other specific palliative care needs.
Palliative care began in the hospice movement and is now widely used outside of traditional hospice care.
Hospices were originally places of rest for travelers in the 4th century. In the 19th century a religious order established hospices for the dying in Ireland and London. The modern hospice is a relatively recent concept that originated and gained momentum in the United Kingdom after the founding of St. Christopher’s Hospice in 1967. It was founded by Dame Cicely Saunders, widely regarded as the founder of the modern hospice movement.
The hospice movement has grown dramatically in recent years. In the UK in 2005 there were just under 1700 hospice services consisting of 220 inpatient units for adults with 3156 beds, 33 inpatient units for children with 255 beds, 358