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    Confidence to Care [U.K. Edition]
    Confidence to Care [U.K. Edition]
    Confidence to Care [U.K. Edition]
    Ebook146 pages1 hour

    Confidence to Care [U.K. Edition]

    By Molly Carpenter

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    About this ebook

    Confidence to Care is the essential handbook for the family carer offering practical insights to understanding, managing and preventing the behavioral symptoms associated with dementia and Alzheimer’s disease. Touching, personal stories come together with practical and easy-to-access tips and techniques drawn from decades of carer experience by internationally-recognized experts. This cutting-edge resource will help the family carer to confidently deal with the most common issues associated with dementia. In addition, advice about how to care for yourself while caring for others is essential. The number of people worldwide living with dementia illnesses such as Alzheimer’s disease is set to nearly double every 20 years, reaching 65.7 million in 2030 and 115.4 million in 2050, according to Alzheimer’s Disease International (ADI). Though research continues, there is currently no cure for Alzheimer’s disease. But until there is a cure, there is care. Confidence to Care includes chapters offering caregiving strategies and recommends other resources for the family carer. This book is the most practical dementia care tool available and unique in its content and presentation.

    LanguageEnglish
    PublisherMolly Carpenter
    Release dateApr 23, 2014
    ISBN9780989783378
    Confidence to Care [U.K. Edition]

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      Book preview

      Confidence to Care [U.K. Edition] - Molly Carpenter

      cover_uk.jpg

      A Resource for Family Carers Providing Alzheimer’s Disease or Other Dementias Care at Home

      Molly Carpenter

      Home Instead Press

      Copyright © 2013 Home Instead, Inc.

      All rights reserved.

      Published by Home Instead Press at Smashwords

      First Printing, 2013

      ISBN: 978-0-9897833-7-8

      10 9 8 7 6 5 4 3 2 1

      First Edition

      Disclaimer:

      Please note that the content, suggestions and tips included in this resource are provided for informational purposes only. They are not intended to be and should not be construed as being medical advice or a substitute for receiving professional medical advice, diagnosis or treatment. Always seek the advice of a physician or other qualified medical provider for any questions you or a loved one may have regarding a medical condition.

      Home Instead Press, LLC, Home Instead, Inc. and the Home Instead Senior Care® franchise and master franchise network do not warrant or guarantee that following any of the suggestions or tips included in this resource will help to prevent, eliminate or alleviate any of the behavioural or other symptoms associated with persons who suffer from dementia, and expressly disclaim any liability with respect to the content, suggestions and tips included in this resource.

      Contents

      Acknowledgments

      Foreword

      Introduction

      Personal Care Activities

      Memory and Behaviour Symptoms of Dementia

      Aggression and Anger

      Agitation and Anxiety

      Bedtime Struggles and Sleep Problems

      Confusion and Memory Loss

      Delusions

      False Accusations and Paranoia

      Hiding/Misplacing Things/Rummaging

      Hostility

      Judgement

      Medication Mismanagement

      Mood Changes

      Repetition

      Sexually Inappropriate Behaviour

      Social Withdrawal

      Wandering

      Help for the Carer

      Resources

      Journal

      About Molly Carpenter

      Acknowledgments

      We gratefully acknowledge the efforts of these individuals without whom this book could not have been possible. Our expert content panel: 

      Bob Bird M.A., a Home Instead Senior Care® franchise owner from Wilmington, Delaware, who has worked extensively in the field of dementia care; C. Angela Burrow CDP, AP-BC, RN, SCM, a Certified National Trainer at the Learning Community for Person Centered Practices at the University of North Carolina-Chapel Hill and a Nationally Certified Dementia Practitioner; and Kathy Laurenhue M.A., CEO of Wiser Now, Inc., a writer, trainer and curriculum developer.

      In addition, our sincere appreciation goes out to our review panel:

      Dr. Jane Potter, Professor and Chief of Geriatrics and Gerontology in the Department of Medicine, University of Nebraska Medical Centre; David Troxel MPH, internationally known writer and teacher in the fields of Alzheimer’s disease and long-term care; Tanya Richmond, Program Coordinator and an Assistant Clinical Professor with the Centre for Ageing Research and Educational Services; Dr. Amy D’Aprix, M.S.W., Ph.D., CSA, a Life Transition Consultant, author, professional speaker and expert in ageing, retirement and caregiving.

      Thanks to our creative team who helped consult, coordinate, research, write and design this book, including Jim Beck, Georgene Lahm, Rachel Lambert, Kami Manstedt, Alex McCann and Jenny Witt.

      Our thanks also go to The Dilenschneider Group and Significance Press, with special appreciation to Joe Tessitore, Joe Pisani and Patrick Malone for their encouragement and publishing expertise. Thanks also to our editor, Jim Zebora.

      We also extend our appreciation to the following Home Instead, Inc., individuals and business partners who contributed their advice, assistance and especially encouragement, including Jessie Brumbach, Erin Albers, Greg Skolaut, Dan Wieberg, Albers Communications Group, Fleishman-Hillard U.S. and Canada, and Immersion Active.

      In addition, we appreciate the many individuals who shared personal stories about their experience with Alzheimer’s disease or other dementias along with care tips from family carers, as well as staff and CAREGivers℠ throughout the Home Instead Senior Care network.

      Finally, our sincere appreciation to Home Instead, Inc., franchisor of the Home Instead Senior Care network, for its vision and thought leadership in bringing this valuable resource to family carers.

      Foreword

      As we write this, we can’t help but think about the estimated 35 million families around the world facing the realities of caring for someone with Alzheimer’s disease. For each, it must seem like the greatest challenge of their lives.

      You may be one of them – wondering how to help your gentle father who is suddenly showing fits of anger, or your mother who wanders at night, putting herself at risk and keeping you awake with worry.

      For most family carers, caring for someone with Alzheimer’s disease or other dementias is a new and intimidating experience.

      Without knowing what triggers behaviours or some practical techniques to counter them, it’s easy to feel overwhelmed.

      It has been nearly 20 years now, but our first experience with Alzheimer’s disease is still crystal clear in our memories. We had just opened the first Home Instead Senior Care® office to provide in-home care for older people. One of our CAREGivers – very frustrated – called to ask for advice. How can I get Marion to change clothes? she wanted to know. She insists on wearing the same grey trouser suit every day, all day.

      How we wish that we knew then what we know now! What a difference it would have made in helping our CAREGiver find a way to get Marion into a fresh set of clothes. We would have simply told her daughter to buy a duplicate of her mother’s favourite grey trouser suit.

      And that, of course, is why we are publishing this book – to give you practical advice so that you can confidently face caring for someone with Alzheimer’s disease at home. It’s based on two decades of experience working with and supporting people with Alzheimer’s disease or other dementias. We’ve also asked some of the most respected experts in dementia care to share their insights so people like you can be successful in providing care for Alzheimer’s disease or other dementias at home. Some of the best advice in this book came, not surprisingly, from family carers who shared generously from their own experiences to help you.

      At this moment, there are two sobering facts about Alzheimer’s disease. First, our world is experiencing an Alzheimer’s epidemic. Second, in spite of an enormous investment of time, money and medical talent, no cure or prevention for Alzheimer’s disease has been found and none is expected in the foreseeable future.

      For almost every family, that care begins at home and is provided by someone just like you. Without training, most are likely unfamiliar with dementia in any form, and already over-committed with children and a job. Still, they are totally committed to caring for Mum or Dad out of love and a sense of responsibility.

      If that’s you, then you are exactly the person for whom we’ve written this book.

      Through our work in providing care to tens of thousands of people with dementia, we’ve learnt that the behavioural symptoms sometimes exhibited by those with the disease are also the most frustrating to deal with. So with this book we want to help you understand what may cause those behaviours, how to deal with them, and what you can do to help prevent or alleviate them.

      We also understand that there can be emotional and physical consequences for

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